-
Synovial Sarcoma
Hi there, My names steve I live in Australia and my brother has recently been diagnosed with Synovial Sarcoma in his left knee. I am trying to start an encouragement circle and was wondering if you would like to participate. If you have survived cancer, particularly synovial sarcoma, please take a few minutes to document…
-
Daughter 21 Years Spindal Cell
My daughter has high grade Myofibroblastic lesion on the skull base at the Occipital bone. Has gone through 30 days of IMRT, the good news is it is localized and has not spread, next on the agenda is Chemo 4 treatments every 3/4 days with Iformasod ( spelled it wrong) every 21-28 days she will get another treatment. New…
-
sarcoma & lymphedema
my daughter had a liposarcoma removed from thigh , along with the femor muscle in sept. 2003. she has been in extreme pain ever since. burning, numbing, stabbing pain. now has lymphedema. dr.s have tried everything they know. 2 PT also. the last one specializes in lymphedema, but is at her witts end. she cannot get the…