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Casodex no longer working
I posted previously about Casodex not working any more. My PSA is 60 but I have no symptoms. I cannot take drugs like Lupron and my urologist thinks that increasing the Casodex to 100mg could cause serious side effects. I cannot afford zyrtiga or xandi since there is no free healthcare where I live. I'm wondering what I…
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New to This
Good Afternoon All! I am new to this forum but it appears that i will need alot of information from everyone. My husband has not "officially" been diagnosed yet, but with a PSA of 47 and growths felt on both sides of the prostate gland during the DRE the doctor is pretty certain. What really frustrates and scares me is…
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Hip joint pain on ADT
I have develpoed severe hip joint pain while on intermittent Firmagon (since 2017) for advanced PC after RP (2016) and SR (2017) failed. This pain could of course be metastatic disease, old age issues, etc but I have read with interest that some people (both male and female) report joint problems while on ADT. Have any of…
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15.5 years post-RRP: To be (concerned) or Not to be
Morning gents! RRP with Dr Alan Partin (Johns Hopkins) in August 2005. Post-surgery gleason 3+4, T2c tumor, Margins clear. Unremarkable side effects, save for gradually worsened leaking which was helped with a mesh sling in 2006 and then an AUS device in 2017 (which gave me a decidedly fresh outlook on life!). No issues…
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AUS Repair
I was scheduled to get the cuff on my AUS repaired in November, 2020, but my hip died and I had to get that replaced first. Both hips have now been replaced from avascular necrosis- complication from radiation. I am now scheduled to get the AUS cuff repaired April 5. I think I had the AUS installed August, 2010, so it's…
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Proton Therapy
I've been undergoing Proton Beam Theraphy at MD Anderson in Houston, TX and have 6 treatments left. I'm wanting to find out what kind of side effect (if any) I might incounter down the road, 6 months, one year, 2 years, ect?
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New Prostrate Diagnosis
Husband will be 87 in June. Has gelason 9 with bone involvement. What is the out look for him.
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Low But Stubborn PSA Numbers
I was diagnosed with prostate cancer (PCa) in June 2013. I had no symptoms prior to the diagnosis, but a routine blood test revealed a high PSA of 12.7. The DRE was negative. A transurethral biopsy revealed cancer in 7 of 21 cores. The biopsy was staged T2c, Gleason 7, but a second opinion classified one Gleason 7 core to…
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Follow-up
Well, I had my follow-up over the phone for my prostate results with a NP at Levine Cancer Institute. PSA was undetectable which I posted on this site when I got it. She asked me how was my flow? I said fine. She asked was I continent? I said I was (no thins, pads, or diapers) at this time. Then, we talked a little and she…
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Cyberknife providers
I was diagnosed with PCa in April 2015 at Johns Hopkins, with a Gleason score of 3+4=7 involving 40% of one core out of 15. I chose not to do RP or radiation, in favor of another provider doing Focal Laser Ablation , and was treated in November 2015, December 2017 and June 2019 using this modality. Each time the Gleason…
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ED after RP
I thought I might get some advice after my RP on the 17th of December of last year. I am now almost 2 1/2 months post-surgery and I have gained almost complete urinary continence. I am wearing a pad to work but just for back up. I am going without a pad on weekends just to "test the waters" (pun intended). I have gotten a…