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Retrograde ejaculation
I had surgery Feb 2019 I had a partial prostate removal I know this might sound petty but I did not have any issue except retrograde ejaculation how long does it take to get use to the feeling is the same I just miss the end am I the only one that feels this way
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Wow you can’t trust doctors
most of you know my story ..I opted for combo radiation treatment instead of surgery ...which I regret now very much ...too many drs with too many opinions...that was my biggest mistake ...along with having a fear of surgery which didnt help ....anyway things are getting better starting to deal with it better and then…
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Jevtana
Hi all, We found out that xtandi has failed and my dad's PSA has risen from 16 to 44 within two weeks. The oncologist has said we're now headed to jevtana. We meet with the oncologist wed and dad will also start first treatment with jevtana. After all the research and discussions it appears we are at the end. My heart is…
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For my spouse
My husband was a frequent user of the forum. He was initially diagnosed with prostate cancer in November 2010. Gleason 9, most cores positive with cancer --initial PSA 59, Negative bone scans. He stopped using the forum when he became severely disabled from MS. I used to read his posts and the replies. He made many friends…
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New Diagnosis
Hello all, Prostate cancer, not words I wanted to hear assoiciated with my name at 57 years old but after reading many of the postings here I realize I am not alone. I was diagnosed with Prostate cancer about 3 weeks ago. I had a biopsy done after a very slightly elevated PSA. My PSA has fluctuated from 1.3 to 2.8 since I…
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Study the Survivors
Nice editorial in Nature this week on the need to study cancer survivors https://www.nature.com/articles/d41586-019-01095-9 Here is a little if the link doesn't give you access When Gregory Aune was 16, he wasn’t particularly concerned about the lasting effects of the drugs and radiation that he was given to treat his…
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What's next?!?
Hi all, Just curious if anyone can give any additional insight to my dad's treatment. He has now failed zytiga and xtandi. We went to a new oncologist last week and was told we are at the end of options. The oncologist mentioned Provenge but from my research I do not think my dad is a candidate as he is taking oxycodone…
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Back to work blues
So the dreaded moment came and I had to start back to work after six months off. I have to pay the bills but as with many places I have worked the new place is a bit of a childrens playground (gossip, cliques, etc.). Sadly a permanent job as I need the benefits but it takes a lot out of me dealing with it. This plus the…
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AUS
could anyone recommend a name of a skilled surgeon at Cleveland Clinic who performs the artificial urinary sphincter procedure, it would be appreciated, I am at last beginning the process and it would be comforting to have a recommended name from someone who has gone through the same procedure. Thanks.
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From a friend at UCSF who is a cancer scientist
Here is some information on celastrol---I have looked at it for brain cancer and got very good observations--- Abstract Background: Treatment failure of prostate cancer (PCa) is often due to bone metastasis. Celastrol, an active constituent of Tripterygium wilfordii roots, has shown anti-tumor effects in previous studies…
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Post SRT failure :-(
My journey started in March of 2010 with RP with Dr. Catalona (age 54). Post RP I had an immediate 0.0 PSA for about 18 months (note: post RP Gleason 4+3, positive margins, SV involvement, neg lymph) and began to see a rise until it hit 0.5 in April of 2015. I had salvage RT with 6 months of Lupron that was concluded in…
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Looking for hope in similar situation with parent (new to forums)
Hi there, First off I'm so appreciative of any one taking the time to read this and offer their thoughts or similar experiences - it really means a lot. My Dad was diagnosed just last Oct. 2018 with prostate cancer. I scoured through these boards then and reading other's stories really helped. But a recent setback with my…
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Immunotherapy clinical trial!
I am starting a new thread because my dad is no longer going to be receiving docetaxel chemotherapy. His Foundation One genome testing returned this week. It showed ATM mutations, and he was referred to an immunotherapy clinical trial--a phase 2 trial where he will be receiving the trial drugs and not a placebo, to begin…
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Doubling down on cancer
My first session with cancer was with prostate cancer surery in 2004. Numbers were good for a long time, but last Nov (2018) PSA was 10, chcked again in February and it was 15. OK, so that is the good part. I did not have time to worry about PC, because on February 8th, I had the Whipple procedure done for pancreatic…
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Zytiga for Stage 4
Hello, I have posted before, I apologize for not finding my thread to continue on with . I think it's been at least a year since Ive posted. My partner was diagnosed with Stage 4 in 2016 . Has done the chemo, then had quintuple heart bypass, then had a large part of his jaw removed from I believe the drug given to help…
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First Nuclear Medicine Appt— How to prepare and What to Expect?
My father has his first appt tomorrow. Anyone can share how you prepared for this appt? Any side effects? Thank you