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Prostate Cancer

Archives for September 2017

It's Time For a Decision
Hello my PC brothers. I started on this site a few weeks back when I first had my diagnosis of PC. This forum has been extremely helpful to me and also provided some much needed comic relief as so of you are great writers. So here I am after meeting with doc's/teams from 2 highly regarded institustions I need to make a…
Which treatment????
I am about a week into the time to treat decision phase (even that is unsure). I had 4 cores 3+3 and one was upgraded to 3+4, decipher test showed intermediate risk. My doc who I trust suggests it is time to treat. On these forums, I get many different opinions, which is why I am on them. I totally seek diversity of…
Sleep
does anyone else have a hard time going to sleep after chemo and how do they overcome it. Thanks
psa doubling false negatives
I have been reading your posts for a while - appreciate your input and from other great suppotive folks on list. New to list not sure where to start, please reply to me or list as is appropriate. Me - IMRT in 2012. Gleason 3 + 4, PSA at time of radiotherapy 7.4. after IMRT 2012 PSA was 0.2. Climbed since then at abt a .7…
AS no longer an option
Well, my Decipher results came back in the intermediate risk category and with the other factors, my doc is recommending we intercede. I have been walking the tightrope for a couple of months and time to start the process of deciding and actioning the intervention. I am leaning towards RP but still need to do a bit more…
Is AS deciding not to decide?
I am new at this PC adventure and in the early decision-making state. I read a great deal, am active on a few forums, have a great Doc and feel well informed. Yesterday on a forum a Gentleman shared his AS story and the shock of going from G6 to G9 in five years. A great discussion in the thread occurred. To say it set me…
6 month post prostatectomy/diverticulotomy
I'm new here, so here is a little history. I am 70 years old recovering from a combined prostatectomy and diverticulotomy. I have a fairly complicated history of bladder issues. I have had some incontinence problems for some time. Nine years ago, I had green light prostate surgery which helped my retention some, but not…
3 Year CyberKnife Results
I joined CSN in 2013 after being diagnosed, 3 of 18 cores positive, 3+4 Gleason. (my story here: https://csn.cancer.org/node/264905; My CyberKnife experience here: https://csn.cancer.org/node/292915). For those that want to be spared the threads - here's an abridged version: My case was relatively low involvement, possibly…
Research reports and the lingo
I have some experience with research reports, both writing and reading. In this forum, we come across many and are trying to make sense of them. One of the best tips I ever got about research is the following 4 steps. 1.Practical problem (does X effect Y)? 2.Statistical problem (does a sample population have a…
delayed symptoms from cyberknife treatment
during a consult my ucsf doc said within 5 years 50 per cent have sexual issues from cyberknife.later reading on my own i see that urinary issues also can occur after cyberknife up to 5 years past treatment,i am also concerned with possible rectal cancer connection.any comments particularly about the urinary difficulties…
Question for anyone who has had radiation treatment for Prostate Cancer
New to the forum and looks like some interesting information on cancer. I finished up 44 radiation treatments for prostate cancer about 13 months ago. The treatment was not that difficult physically and I never had any of the issues typically mentioned by my Oncologist. I was able to maintain my exercise and full work…
choosing the best seed radiation doctor in south east?? a source? not proton
my husband has a current PSA of 5.8 ( had been 6.8) -- and it is contained. 8 needle biopsy.--- from all i have read- surgery seems the last thing we want to do-- thus, current consideration is LDR braachy seeeds - perhaps with HT. the issue is: choosing a dr. whose background is quite open to read about-- where do we go…
Strides for Prostate Cancer?
Folks: I just saw an event announcement for American Cancer Society Stride for Breast Cancer here in Bellingham, Washington. Do any of you know if this is inclusive for prostate cancer as well? If not, is there another ACS event equivalent for Prostate Cancer? I also notice there are events called Race for The Cure for…
AS presentation by my doc
This is my doc, I think this is a pretty good presentation on AS monitoring. http://www.grandroundsinurology.com/monitor-patients-surveillance/ Denis
Hormone therapy may boost prostate cancer growth
Hormone Depletion Activates Tumor Survival Process in Prostate Cancer, Study Shows The article linked above begins: "Prostate cancer hormone depletion treatments might, in fact, be boosting cancer growth and making a tumor more aggressive, researchers at England’s University of Surrey found."
diet restrictions during radiation
I am starting radiation treatments and doctor tells me not to drink coffee or carbonated beverages . I miss this and wonder if it would be ok to sometimes cheat. Do not understand why carbonated beversges are bad since they are no longer carbonated when they reach your bladder. What are reasons for diet restrictions?
Just beginning this jounrey
Hello All,, Less than 72 hours aafter my diagnosys I am trying to figure this all out. Sorry to all of us that have to deal with this. I have heard a few times now that PC is very treatable and if your going to get "C" then this is not a bad one....What ??? Of course I should just wait until all my scans and appointments…
ayurvedic Cancer treatment
Guys, Have you any Idea about the Ayurvedic cancer treatment center in India...If you have please let me know.
urethral shortening discomfort and pain
Has anyone else experienced prolonged pain/discomfort due to urethral shortening? I am 10 weeks post operative RRP and the pain discomfort level has plateaued at about a 3 in the morning, lessening to a 1 as the day progresses with no pain or discomfort when not standing, walking or transitioning from/to sitting or lying…
Good read New yorker
Worth the read https://www.newyorker.com/magazine/2017/09/11/cancers-invasion-equation Denis
my takeaways from Prostate conference
Here are my thoughts and feelings on the PCRI conference. I attended the PCRI conference for the first time. I was struck by the number of men with advanced disease and pleasantly surprised by the number of men on AS and many with G3+4. The keynote folks had one theme and that is seeking docs with high expertise. Caution…
Celebratory / reminder tattoo
Hi all So one thing on my mind after all this was to get a small tattoo - something to remind myself of my luck and avoid complacency. Sort of a PCa "Remember thou art mortal". I've done the due diligence and found that tattoos are associated with increased cancer risk. Has anyone else got one / considered this / looked…
Gleason 8-Reoccuring Pca
Hi guys, Ive been following the forum for a few months now but I didn't post my story as most of you have done. so here it goes. Any comments would be appreciated. Though my cancer was diagnosed in January 2013 , my journey began in January 2010 when I got a call from my older brother who told me he had prostate cancer and…
Recently diagnosed with prostate cancer, gleason 10
Hello All, I came across this forum by searching the internet, and reading the posts here gives me some hope and courage. My dear father was recently diagnosed with prostate cancer. Case history as follows: 1. He was having trouble with urine flow, and saw an urologist who gave prostate ultrasound and PSA to test. USG…
Am I opening a new chapter?
Hello friends, For those of you who do not recognize me, I am 91 years old and a 26-year prostate cancer sur4vivor. I had radical prostectomy in 1991, underwent radiation treatments in 2005, and went on hormone treatment in 2008. My annual PSA readings were undetectible (<0.1) in 2009 through 2015. The undetectible symbol…
clamps
Hey guys, I'm on Lupron and waiting for radiation. Still incontinent and just plain tired of it. Thinking about getting a good clamp. Do any of you have any suggestions on the best clamp to buy? Did you need a prescription for it? Thanks
Confirm MDX - DNA test
I'm a new member here, currently on active surveillance. I thought some folks might be helped by my recent experience with this DNA test. The Confirm MDX test is done on tissue samples from a prostate biopsy that are negative. It yeilds a likelihood that there was cancer nearby the site, even though the biopsy was…
Decisions in Operating Room
Ive decided to go with RP using Davinci as most conservative route. Surgeon is well skilled, using Davinci a couple times a week since 2004. My question, are there decisions the surgeon makes in operating room or is the surgical plan strictly based on biopsy and staging preop? My biopsy showed Gleason score 4+3 in 2 out of…
Surveillance to delay treatment, decision time?
I have read numerous books, chatted with many online, met with multiple doctors, talked to a few who have gone before me and I am coming to a place of acceptance that I will eventually have treatment. The critical questions that remain are When and How will I know it is time? Active Surveillance’s intent is to watch those…

Prostate Cancer

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