-
Been a while - update on my dad
Hi all, It has been some time since I have posted about my dad's prostate cancer. I have some new questions and will update everyone as it has been a while. He was diagnosed beginning of June with stage 4 metastatic prostate cancer, gleason score of 10. Cancer spread to liver, pelvic lymph nodes, chest lymph nodes and…
-
Newly Diagnosed
Had a biopsy three weeks ago with a Gleason score of 8. I was very suprised because the urologist, in performing the biopsy with transrectal ultra sound, stated the prostate looked good except for a few calcium deposits. I had prostate biopsies two previous times, the last about 8 years ago, and they were both negative.…
-
Prostate cancer returns
After about 7 years of controlled Prostate cancer, it has returned. PSA is now 25 (from .05) for a long time. And signs of Bilateral linguinal lymph nodes. Enlarged prostate. Earlier was taking bicalutimide, now doctor has said it is refractory and started Fosfesterol for the past 3 days. Loss of appetite, extreme fatigue…
-
2013 and updated 2014 patient satisfaction study Proton Beam Therapy
I have copied a link to a recent study of the Health Related Quality of Life as reported by Dobson DaVanzo & Associates in a study that was sponsored by the National Association for Proton Therapy. The survey responses were from 3,789 patients who received treatment from 12 different PBT centers, with 26% more than 6 years…
-
Protons are different than Photons
Let us all agree that less body tissue which becomes radiated is better than more body tissue that is radiated while under therapy for PCa. Then we must also agree to understand that Protons when used as the source of radiation are unlike Photons. The radiation energy in photons (X-Rays, Gamma rays etc) is present in the…
-
Biopsy accuracy? Genetic testing of biopsy tissue = 2nd opinion options
Here are 2 articles regarding the advances in gentic testing of biopsy tissue that help to determine the "$64,000 dollar question". The "$64,000 dollar question" is this - is my PCa a slow growth non aggressive type or is my PCa the fast growth aggressive type? This is obviously the "holy grail" of PCa pathology as it can…
-
PSA Levels Reduced With Intensive Lifestyle Changes - Ornish Study
I was poking through the forums and noticed that Dean Ornish's studies on prostate cancer were not mentioned on these boards, which seems remarkable to me given that he reversed or halted prostate cancer in a group of 44 men. The study was published in the Journal of Urology, Vol. 174, 1065–1070, September 2005. You can…
-
PCa update
Swingshift, thanks for the suggestion to start a new thread. I'll re-post some info from the other thread; Hello all, Psa 6 or 7 months ago was 14. Early this year it was 12. It's nearing 5 Yrs. since a biospy. Dr. suggested a repeat biospy altho he was against it a year ago. I had no trouble the 1st one but I read where…
-
Is there a way to receive an e-mail when a reply to certain posts is made
I am a member of another forum and I can opt to receive an e-mail when replies are posted to threads that interest me. Is that possible on htis forum? I have searched but haven't found a way. Thanks in advance David
-
post MDA appt. status review
Bone scan confirms that the cancer has not affected my skeleton and initial MRI also suggests that the cancer is currently contained within the prostate. This is what my urologist suggested, remove entire prostate. This what the radiation oncologist suggested, PBT and IMRT both with and without Loupron. He stated that…
-
PSA Post HDR Brachytherapy
I am just about three years out from HDR Brachytherapy and my PSA is creeping up. Has anyone had this experience? What have they done to determine whether it is reoccurence or not? Also, if it is reoccurence what are the choices for treatment? Thanks in advance. David
-
Possible reoccurrence after HDR Brachytherapy
I was treated for prostate cancer in Feb and March of 2013 with 2 fractions of HDR (14 Gray each). In 2014 I was diagnosed with Myelodysplastic Syndrome (MDS) which has progressively gotten worse. In the workup for a Bone Marrow Transplant (BMT) my doctor ordered a Nuclear Medicine Bone Scan. It revealed a couple areas of…
-
PSA now 1.17
I just had a new Psa test and it was 1.17. Six months ago it was 3.6. Frankly, I thought 3.6 was very low for me. To review, three years ago, I was diagnosed with Stage 4 with matastases over about 70% of my body and a Psa of 300, and was given not much of a chance. I am wondering how I could have a Psa of 1.17 which is…
-
Nutrition & PCa Guidelines from UC San Francisco
To All: I have taken an approach that dramatically improves my diet and will focus on building my immunology. Here is an easy to read nutritional guide of 64 pages in .pdf format that I ran across. The guide has many footnoted passages that detail what foods and supplements will help you avoid and or impeded the progress…
-
ADT May Contribute to Heart Disease
We've all heard that you're more like to die "with" than "from" PCa but a new study suggests that those who take ADT drugs to treat PCa may develop heart diseases and die from it instead of from PCa. Just another reason IMO not to take ADT drugs unless absolutely necessary. See:…
-
A Journalist's Story . . .
Here's an interesting 2 part article written by a journalist chronicling his experiences w/PCa as an active surveillence patient for the past 5 years: Part 1: http://www.medpagetoday.com/HematologyOncology/ProstateCancer/56070 Part 2: http://www.medpagetoday.com/HematologyOncology/ProstateCancer/56091
-
Glad to be hear PSA 11.7 GS 3+4=7
To All Forum members: Thank you for being here! This looks like a nice forum for me to learn from others with the wisdom gained through experience. Age = 61, health = average, no other medical problems identified. So far MRI w/rectal coil at MD Anderson - Houston, TX. Follow up included Fusion Guided Biopsy, 1 out of 11…
-
PSA of 88.4. It was 55.8 just two weeks ago!!!!
Hey everyone!! I had my prostate removed in May 2014 (PSA was 29.5) Had Bladder Sling surgery to fix incontinence in September 2014. PSA was 7.4 in January 2015....Had Lupron shot. PSA was 4.5 in April 2015.....Had Lupron shot. Started having bad pains and found out that I had Diabetes with insulin numbers of 399+ and…
-
Post RP Genomic testing to determine likelihood of disease recurrence
Folks, I am a new RP patient. My cancer was detected in October 2015, and I just had a robotic RP January 26, 2016. I have not read my pathology report, but the doctor did give me a good news/bad news phone call. Good news was no lymph node involvement, bad news was a positive margin. So I don't have any details of what…
-
Artificial sphincter
Do I need an artificial sphincter? I had robotic prostrate removal surgery 3 years ago and I am still incontinent. My suregeon suggest an artifical sphincter but I am not sure if it would be any improvement. i am currently using the Uriclack clamp and am using one to two pads a day. Mostily only one but if I am more active…
-
PSA 30
Hi I'm new to the board here. I am a spinal cord cancer survivor and just found out my PSA levels today are 30 my Dr. Tells me that this is very likely a strong sign of prostate cancer (my father had prostate cancer 14 years ago and told me his PSA was 18 when his was diagnosed) I am now waiting to see my urologist for…