Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2021

Brevity
If it takes a lot of words to say what you have in mind, give it more thought.Dennis Roth
8 months sick. misdiagnosed. waiting for bone marrow biopsy
Hello friends. I am 34 years old, and was a healthy and active male. In early Sept of 2020 I started experiencing stabbing, and piercing pain in my gut. I went to my PCP who ran a few blood tests but found nothing wrong. He gave me some pain meds and sent me on my way. In Oct I had to go to the ER the pain was so bad. I…
Bogus advances
I do not have a strong opinion regarding this. The FDA is damned if they do, damned if they don't. People want new drugs gotten to market FAST, but then want them to be PERFECT also. An impossible task..... https://www.foxnews.com/health/fda-to-scrutinize-unproven-cancer-drugs
Follow up doctor visits
After diagnosis and treatment how often did you see your oncologist? If in a partial remission for awhile (9 years) what do your visits consist of? Blood work,scans, exams? Just curious what others have experienced. My oncologist has not done one scan in the 3 years i've known him, does a cbc but this time wants no blood…
What tests are necessary for a diagnosis or rule-out?
I hope it's okay for me to post this here as I don't have a diagnosis, but I figured you would all know better than anyone about what tests are necessary. A few months ago I noticed a rock solid lump below my ear. I was (still kinda am?) convinced it was a Parotid tumor and just left it alone. A few weeks later the lymph…
Covid vaccination failure?
I had my two vaccine doses. In mid-April I read that a high percentage of lymphoma patients in treatment, or recently in treatment, are experiencing vaccine failures. Severe B cell depletion is not a great starting point for developing antibodies I guess. I went the next day to get a Covid antibody test, and sure enough,…
New to forum, in middle of FL treatment, need perspectives please
Hi folks. Looking for perspectives or experiences from others. I was diagnosed with FL Grade IIIA in Feb, 58 years old, picked up on a routine abdominal US scan. Asymptomatic other than a swollen jaw node in Dec that went away after 3 weeks. Total of 5-6 nodal clusters throughout the torso, the main ones in middle of gut…
sleepiness
I was originally diagnosed in May 2020. I received a chemo treatment then, based on what I was told (I was also suffering from hydrocephalus at the time. After severa; MRIs, CAT scans, and PT scans, it appeared the cancer was gone. Then, around September or October, my doctor sent me for one last set of scans to confirm…
How long have you survived
I came across the original post in the head and neck cancer section so I thought I'd recreate it for our lymphoma community. Let us spread positively and hope. Do share your story

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List