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Test results
Hello everyone, I just hit my 50 day post my autologous transplant mark yay. I was looking at my previous test results from when I was hospitalized for the transplant and I found a number of X-rays that said I might be having some tumors/treated disease in my lungs (it wasn't quite accurate because as you know X-rays are…
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Wig from your own hair?
Hi, Has anyone had a wig made from their own hair? What was your experience? If not, what other types of wigs do you recommend? Jane
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Pulmonary nodules
Anyone here have their nhl go to their lungs? After 9years of remission i have 10 measurable nodules and many smaller nodules in my right lung. Just had the scan. Radiology is going to compare to previous scans. But i see no mention of this in the past. I'm concerned that the beast is back on the move.
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Relapsed Follicular Lymphoma options and advice please!
Hi, I'm new here and looking for advice, information, and feedback to help me make the biggest decision of my life! I have Relapsed Stage 1-2 Follicular lymphoma (diagnosed 5 years ago) which is primarily in my small intestines (jejunem) which causes intestinal wall thickening resulting in small bowel obstructions. I have…
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Autologous stem cell transplant
Hello, I hope all is doing well I was looking for posts regarding stem cell transplant but didn't find any so thought of making one. if you have had a stem cell transplant please do share your experience especially how you coped with the side effects post discharge, its concerning me the most.
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Transformed NHL from Follicular to Diffused Large Cell B
My mother has had NHL for 7 years. She would have treatment and then it would come back. In January, she stopped treatment since she was feeling better and was reacting to what they were giving her (rash all over). Doctor said if she was feeling ok, they could just watch and wait. In February, she started having hip pain.…
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Apology
Hello to you all, I am so sorry that I have been absent from the board for so long, I have been meaning to write and I feel so bad that I haven't done it. We have had a pretty hectic six or seven months and yes Bill relapsed with his mantle cell for about the fifth time. I will try to make this as short as possible. in…
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Worried about Lymphoma
Hi all! I am a first time poster. I have had an enlarged lymph node on the left side at the base of my neck, somewhat more on the collarbone, and some puffiness/a lump on that side at the base of my neck for months, and went to my PCP. I had an ultrasound which showed benign lymph nodes. My doctor called me in an…
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Is it negligent to not do a biopsy after positive PET scan?
The patient has had enlarged cervical nodes (8 months), itching, excessive fatigue, dizziness, nausea, shortness of breath, alcohol intolerance, and new mottled-appearing rash on legs, arms, buttocks, and stomach. Imaging shows numerous lymph nodes in the neck, chest, and armpits slightly under size criteria. the enlarged…
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Severe insomnia after chemo treatment for 32 years
Has anyone else had this, its about drove me crazy,and doctors just say its depression but after 15 different anti depressant mess I still have not been able to sleep more than 1 to 2 hours a night if I sleep at all, keep telling doctors I think the chemo damaged my area of the brain controlling sleep but they still won't…
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Left flank pain
I am currently waiting to speak with my oncologist about my latest PET scan that shows 3 areas with focal increased uptake of 4.3 to 4.7. I am on maintenace treatment and was considered NED in Dec 2020. I am having terrible left flank pain. Has anyone else had this and could you please give me some idea of what this might…
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Swollen Lymph Nodes Behind Ear, Itchy Skin, Mild Night Sweats - Possible Lymphoma
Hi. 5 weeks ago I noticed two visibly swollen lymph nodes behind my right ear. They are not painful. They feel fairly hard, but not quite as hard as the surrounding bone and have a little bit of give to them. The upper one is about 3/4 of a centimetre and the one below is is about a centimetre (maybe slightly larger). My…
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ischemia necrosis gangrene after ABVD and blood transfusion
Has anybody know of anyone who has experienced gangrene in limbs after Hodgkins chemo treatment ABVD ? And was was done if anything to save the patient? I have a relative in Fiji 68yr male who just after 1 dose of chemo suddenly and rapidly declined to this condition. Blood Clot signs appeared straight after a blood…