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Lymphoma (Hodgkin and Non-Hodgkin)
Archives for March 2021
Discussion List
Second round of antibiotics ahead of head/neck CT
Not much new to report. My insurance is apparently pushing back on the testing. The ENT is having me do a second round of antibiocs and return in a little less than two weeks. The supraclavicular lumps have been increasing, so he seems set on a biopsy and did say excisional would be best. Won't know until the CT though,…
Antibody test after Covid vaccine
I have splenic marginal zone lymphoma, was treated with rituximab, last dose on Dec 9th, 2020. I had a first Pfizer shot on Jan 24, 2021, and the second three weeks later. There is a study going on which is testing for antibodies, and titers, after vaccination in people with leukemia and lymphoma.…
Hoarse voice with PMBL
I discovered lymphoma （a big mediastinal mass）because one day I had trouble talking. My voice is distorted and it takes several breath to finish one sentence. Now I'm scheduled for 3rd cycle of chemotherapy next week. This problem has improved a little bit but not very significant. Doctors showed little concerned in last…
New to me
While reading my latest summary from a major cancer center I came upon a new (to me at least) word. "Pancytopenia caused by chemotherapy". From what I can tell it is a type of anemia in which wbc, rbc and platelets are all low. Has anyone rlse had this diagnosis and if so is it reversible, ie treatable? I will be speaking…
numbness finger tips with R-epoch
I've just finished 2nd cycle of R-epoch, now I'm experiencing numbness of finger tip (mild but no sign of improvement in several days). I was told this can get worse with repeated doses and can be irreversible. has anyone experienced the same side effect? Did it go away? Should I ask doctor to reduce etoposide/vincrestine?
Awaiting biopsy results
Hi! New here and aimlessly looking for similar stories, hope, anything really to calm my nerves. Mid Feb I noticed a large lump on the left side on my neck. Made an appt with my ENT and PCP, blood work came back fine and ENT ordered a CT scan with contrast. Results indicated that I have a 3 x 4 x 6 cm cluster of lumps on…
Pet scan results rescheduled is this bad news
I was suppose to get my pet scan results today after 6 cycles of chemo for non Hodgkin lymphoma after 3rd cycle mass went from 10cm to 7 I did another 3 rounds ended Jan 1 I was supposed to get my results today but Dr reschuled said she had to talk to tumor board is this bad news I can't sleep
My son
Hello, I just joined today. My son was officially diagnosed with Hodgekins Lymphoma Stage 2. He will have 6 months of chemo beginning around the 20th of this month. Whew... I live in GA. He is in Ohio living with his father and we stay in touch. We were told that he will lose his hair with chemo. His Dad and I have seen…
False Positive Question/When a Node is Considered Suspicious
Hello All, It's been a while since I've been on the board and posted anything. But I have a question regarding a pet scan I had. My main question is: can a 3.3 cm x 2.3 cm inguinal lymph node with an SUV level of 7.6 on a pet scan be a false positive? When are they considered suspicious of being malignant? Additional Info:…
Has anyone here taken duvelisib/ copiktra
I'm starting a clinical trial and it's a very new drug. Wanted to talk to someone who had taken it. Thank you
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