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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for March 2019

15 years out and here again
Dx 2004 nodullar sclorosis hodgkins. 6 cycles ABVD and hit remission. Followed for 10 years and 5 years ago stopped seeing oncology. Fast forward to two weeks ago I had a stroke. Spent 2 nights in the hospital, luckily, no permanent damage. But, in the MRI or CT of the head/neck (looking for clots), they saw the edge of…
Primary refractory Hodgkin's Lymphoma
My boyfriend was 2/3 of the way through AVD (Dropped Bleomycin after the first 2 cycles because it was causing lung toxicity) when a PET scan revealed that the cancer was growing back. Today he's getting a biopsy from nodes near his lung to confirm the Hodgkin's diagnosis before he starts a clinical trial that includes ICE…
Was last on here in 2014, Hi to all the old timers and the new!
Luckily I received an email notification today that I had a message waiting here. I had several as I haven't been posting as I transitioned to closed FaceBook groups for HD repercussions, late effects and Breast Cancer after HL and others. I thought many times I need to update everyone on my exit but never did sadly. It…
Losing my hair
Most of you have gone through this a long time ago, but it is my current reality. In the long run, this will seem less catastrophic but for me this was a reason that I seriously considered delaying or refusing traditional chemo. It may sound vain, but it totally rocked my world off kilter. I was not blessed with beauty or…
Looking for advice
I’m wondering where I should go from here. Just an FYI-my sibling died at age 37 of NHL. Almost 4 weeks ago, before my 39th birthday, I started getting these weird chest pains. I took myself to the ER for it, as it was burning and alternating sides. I’m female, and thought I was having heart attack symptoms. Then, it…
Port Removal Delay and Other Stuff
Well, I was scheduled to have my port removed on 3/15, however I caught a nasty little virus from my 7 week old baby grand and ended up with pnuemonia. I was sick for over three weeks and running a low grade fever for the entire time. The port removal can wait but honestly my frustration at getting sick so easily and not…
Bendamustine + Rituximab and fever
My first post here. I have Mantle Cell Lymphoma and started B+R chemo 2 weeks ago. The last couple of days I have been fighting high temperatures. Fevers up to 103. Tylonol helps and launches me into a sweat and the fever goes down. My clinic has taken cultures to see if there's any infection, but given that all my blood…
Recommendations for Cancer centres in Dallas, TX?
Hi all, I am newly-diagnosed with B-cell lymphoma, doing a PET scan and bone biopsy with further testing to stage it and classify the type. I have been dealing with texas oncology and have only had a limited exposure to them due to the newness of my diagnosis but have not been impressed with their facility. When my primary…
Swollen lymph nodes...Waiting for answers
Hi, I'm new here and would like to hear others' experiences/symtpoms regarding swollen lymph nodes. It all started last September when I felt a swollen lymph node on my left parotid area. I went to the ENT, who thought it was nothing, but still ordered an ultrasound. The ultrasound showed a 1cm lymph node with 2 others…
Systematic lymphnode enlargement- too small to biopsy
Hi all- I am new to this board and am hoping someone has had a similar occurrence. I am a cervical cancer survivor of 1 year so when my lymphnodes came up I immediately thought the two were connected but the symptoms have since progressed and taken a different turn. Please see my timeline below and I would LOVE to hear if…
New member - FL coming back?
Hi, I´m 53 years old and got diagnosed with Follicular Lymphoma last year. I was in Stage 4, with pleural effusion. I went through R-CHOP that seems the only treatment they know here in Brazil. My hematologist decided to give just 5 cycles, because I responded too well. Now six month later, 2 of my old lymph nodes started…
Planning to have port removed
When i get through the next 4.5 months of r-chop, that is. I start this part of my journey tomorrow morning. Happens to be my birthday, am looking at this as my present to myself is to get this show on the road. Hoping I will tolerate this chemo like my doc thinks I will. I was hoping to get away with either surveillance…
Symptoms
My Dr. believes I have Hodgkins Lymphoma. I've had a biopsy done but they didn't have enough cells to test all the markers. I will be seeing an Oncologist soon. My question is....before you were diagnosed what kind of symptoms did you have?
Follicular NHL now CLL
Distractions and detours.
Have been away since Monday on another medical detour. Fresh out of one ER and two hospitals. Over last weekend, began feeling worse. By Monday, much worse. Lethargy. Near zero appetite, rising fever, strong headache and major balance deficit, making walking dangerous. Off we went to the regional ER. They did chest X-ray,…

Lymphoma (Hodgkin and Non-Hodgkin)

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