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Lymphoma (Hodgkin and Non-Hodgkin)
Archives for September 2018
Discussion List
Any tips on alternative to MD Anderson?
I plan to go to a major NCI affiliated cancer center this fall for a checkup/PET/2nd opinion. My two daughters live in Texas so MD Anderson comes to mind, killing two birds with one stone so to speak. My concern is that when I went to MD Anderson April 2012 I was extremely unhappy with the experience. I found it to be a…
Fast Relapse. Going to Sarah Cannon for stem cell trans. ISO like for info
Well, here we go again. I thought I was a survivor but I guess I have to put my fighting gloves on again. I'm seeking anyone that has had stem cell autologous transplant for Large B cell NHL. I've read general info but would like to chat with someone that has actually been through it. I have my first consult scheduled at…
New drug for FNHL
U.S. Food and Drug Administration Approves Duvelisib (COPIKTRA) for Relapsed/Refractory Chronic Follicular Lymphoma New York, NY – The U.S. Food and Drug Administration (FDA) announced it has approved the use of duvelisib (COPIKTRA) for the treatment of adult patients with relapsed or refractory chronic FNHL. Duvelisib…
37 year survivor of Hodgkins with recent tongue fasciculations
I was diagnosed with Hodgkins Disease when I was 20. Received a month of cobalt radiation and 6 months of MOPP chemotherapy. Have had many adverse side effects from the radiation. When I was 38 I was diagnosed with Breast Cancer. When I was 49 I needed an aortic valve replacement. When I was 55 I was diagnosed with…
Second opinion????
Alright. I’m a 23 year old female. I’ve had some weird symptoms over the last year or so. General fatigue, some weight loss mostly due to lack of appetite and some weird fevers at night mostly. I chalked it up to my bipolar disorder and just carried on. Fast forward about 2 months ago. I went in to the doctor for a lump in…
Advice and Help PLEASE!!
I am a 40 year old who in the past has never been sick, never even had a primary care doctor until last fall. In the fall of 2017, I noticed that something wasn't right with me. I have always been very energetic, have two children who keep me going all the time (very active in sports and after school activities).…
Year and a half still worried
Hello all sorry to bother you and intrude on more serious problems. But would love some opinions on my story. Worry wort here! About a year and a half ago I was deemed suspicious after a fine needle biopsy on an enlarged node In my neck. At the time no symptoms present and even up till today no symptoms really. I went…
Recurrent spot/ulcer in back of throat
Hi everyone, I’ve just joined the site today and am desperate for an answer!! I had Hodgkin’s lymphoma back in 2009 - diagnosed late January 2009 and 6 months of chemotherapy on what I believe was the ABVD regime. This was followed up by radiotherapy for roughly 6-8 weeks. Following my treatment I was fortunate enough only…
Effects of chemo
I have FNHL and finished my Fludarabine/Cytoxan/Rituxan regimen in June. I have an issue. After eating I get a kind of crash (for lack of a better word) resembling what I have heard described as a low blood sugar episode. I feel weak and tired and exhausted. I lay down and it goes away in about an hour. Doesn’t seem to…