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Follicular Lymphoma and Lupus
Are there any other members with this combo? I just finished my 1st round of B&R and have a mixed bag of effects. I have no idea what is normal any more and am feeling overwhelmed. Any perspective would be greatly appreciate.
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Lymphoma--"Chemo" Brain
My dear friend has just completed 3 months from being diagnosed, completing a series of chemo treatments (being hospitalized each time). She is absolutely scared to death as she cannot formulate her thoughts, doesn't remember where anything is in her house/kitchen, is very fragile having to hold on to someone and is…
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Double Hit Lymphoma Palliative Chemo Option
Can anyone help evaluate the recommendation for palliative chemo for double hit lymphoma using rituxan and oral lenalidomide? My Dad is deconditioned and weak. He is 81. I literally cannot find anything on this regimen with regard to double hit. I see info on follicular and mantle. Tyring to evaluate comfort care v this…
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DLBCL-in Remission and looking for others
Greetings, I recently completed my treatment plan of 6 rounds of DA-R-EPOCH, 12 IT Chemo infusions, and 2 HD Methotrexate rounds and I am declared in remission. I actually just returned from MD Anderson for my first quarterly post-remission scans and follow-up and I am still showing no signs of the cancer returning. I do…
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HL- Son just finished chemo, but still has small mass in chest. Hmmm
Hi New to the boards. My son (15) was diagnosed with HL Dec 2017z we just finished chemo (5 cycles) and had CT scan. Well, the doctor said there is a small mass still showing, so she wants to do a PET. She said it’s most likely dead cells, but wants to be sure. She also said no rush on doing the scan. I’m so nervous and…
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Car T Cell Therapy
Hi everyone, My mom (61 years old) was recently diagnosed with DLBCL stage 4 and has undergoed 5 lines of chemo. Since it is so aggressive, she is no longer a candidate for a stem cell transplant. We are going to Dana Farber in Boston next week to talk about Car T cell therapy. Insurance is becoming a challenge and the…
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Dismissive doctors?
Hello has anyone dealt with dismissive doctors before? I'm in the process of getting an accurate diagnosis but my doctor seems less than helpful. I've had an enlarged lymph node on my collarbone for a while now and just noticed 6 more apear all over my neck within the last 3 or so months. My doctor ordered blood tests to…
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Lymphoma
This is the first time I am here. Just looking for some advice or recommendations. Next Friday I will be having axillary lymph nodes removed. I had a PET scan done 2 weeks ago and they discovered 2 lymph nodes enlarged and lit up. I’m scared, do not know what to expect. Any thoughts out there?
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For DA-EPOCH-R, how common is 8 cycles?
My wife who's 30 was diagnosed with NHL (primary mediastinal b-cell lymphoma) late last year and has already completed her 6th cycle 2 weeks ago. Throughout the whole course, she's had followup CT scans to keep track of the tumor size found under her chest: After 4th cycle, CT scan showed tumor shrink from 7.4x3.2cm to…
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Interesting concept
Has anyone looked into this? Sounds like the old saying “feed the patient feed the cancer”. https://www.telegraph.co.uk/science/2016/03/12/fasting-for-three-days-can-regenerate-entire-immune-system-study/
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Please Share Your Diffuse Large B-Cell Lymphoma Journey
Hello, I was just wondering if anyone would like to share their journey with me and others about having diffuse large b-cell lymphoma. How their treatment went and if they had a relapse or not. If they had a transplant, how long has it been since that happened and how they are doing? If you read the print down below, some…
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My precious mom
My mom’s been living with nhl for 7ish years now. She’s 71. My dad died of pancreatic cancer at 52, so twenty more than that feels like very good luck. Mom is a trooper and an optimist. She is not in any discomfort, after recovering finally from a brutal stem cell transplant last year. She is tired, though. I am waiting…
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bendamustine rituxan issues
So my mom had her third round of benda-r chemo last week to treat her Mantle cell Lymphoma. She developed a bladder infection 2 days later which they are treating with antibiotics. Before her bladder infection and still, she has to get up 4 or 5 times at night to pee. She is much more wiped out after the 3rd round compared…
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Appointment Length Question
HI All, I am meeting with the Oncologist for my results from scans and blood test. Appointment is for 30 minutes. Im guessing possible non Hodgkins Lymphoma. Appt. is 4pm Friday. Is 30 minutes the norm for advising a patient of a cancer diagnosis? Thank you for your time and response. Marcella
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New with questions
I was diagnosed with aggressive b type lymphoma stage 2 July 28 2017. I had six Rchop treatments at 21 day increments. Halfway through I had ct scan. No cancer. Yipee!! I had 1st PET scan December 19. It showed 1 small hot spot. I went to lymphoma specialist in January. The spot is too small to biopsay so they repeated…
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My 82 year old Father had crash after first chemo
Friends: My 82-year old father had a crash after his first chemo. He was diagnosed with T-Cell PTCELL- NOS. Exactly a week after the chemo, he suffered a medical crash. He got hypoxic and had to be put on a ventilator. His liver and kidneys are also impacted. He also experienced encephalopathy. It has been exactly 15 days…