Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Archives for January 2017

Newbie here
Just found this place, getting the feel of it.
Dlbcl tumor on heart
Hi! Searching for someone who also had dlbcl with tumor originating on heart to share discussion with. Thanks!
mantle cell wait and watch
My mother who is 74 was diagnosed over a year ago with mcl. She is doing the wait and watch. I was just wondering if there is any recent people out there who have been doing the same wait and watch and for how long. I am new to this forum and not very good at using computers so I apalogize in advance if this isnt in the…
So, haven't posted for a while...
So, I haven’t posted for a while. All’s well with me...I wrote a coupla’ months ago that Mac was diagnosed with Acinar Cell Carcinoma of the Pancreas. (A rare form of pancreatic cancer with around 50 people being diagnosed per year in the U.S….but a bit better than regular PC and a few aspects about which that can…
lung transplant and bone marrow
9 years ago I received a right lung after a pulmonary fibrosis diagnosis. Early last year I was diagnosed with PTLD (lymphoma caused by my anti-rejection drugs). Went through RCHOP chemo and then RICE chemo. Now the Dr at Loyola is recommending a bone marrow transplant. Has anyone else had this experience? Ken
Waiting for SCT
Hello friends. My mom had her 5th and last r-chop treatment 10 days ago. She is home, neutropenic, tired and having bone pain. She is in as good spirits as a person can be in this condition. She has her first pet scan scheduled for Feb. 9. We are scared she won't be able to proceed with the planned stem cell transplant,…
Non-Hodgkin Lymphoma Small B Cell Follicular
I am new to this site My name is Roxanne. Two years ago I was told I had cancer and my world changed drastically that day I know I do not have to explain that feeling to anyone here. I was placed on a watch and wait status which only added to the stress and waiting for the other foot to drop. I went to the CTCA Center in…
Exhaustion/Muscle and Bone stiffness & pain.
I haven't been on this forum in maybe over a year...so hi everyone! My constant and never ending issue is exhaustion,massive fatique.After 2 years of Rituxen,6 months of treanda,nulasta,rituxen , now at the tail end of another 2 years of rituxen.Im toast! I am ALIVE...and greatful but toast forsure.I have issues with my…
My Dad again
Dad had his kidney removed on January 7th. As far as we know now he is cancer free. Both lymphoma cancers are dead and now the kidney cancer is gone. 3 days after getting the kidney removed he got very weak. I told the Doctors that he has a history of c-diff. They listened to me and started him on antibiotics before they…
New here....but not to lymphoma - glad to have found y'all!
I have just started a Rituxan maintenance once every 8 weeks for 2 years. I have great reservations about it - but it seemed to be the best course for me. I was diagnosed at the very end of 2009 with splenic margianal zone lymphoma - had 8 rounds of CVP-R - had a terrible reaction to the Ritusan the first time I got it,…
What happens with the dead cancer cells after chemotherapy?
Hi All, I was wondering what happens with the cancer cells that were killed by chemotherapy? How are they eliminated by the body, is that by the immune system? What is left after chemo from a tumor larger than 6 cm in diameter? Scar tissue? How long it takes to get rid of all this debris of dead cells? I suppose each body…
Don't know where to start
Hi, I had my annual physical in May and my bloodwork showed a PSA of 2700. I had what they thought was shingles in October and when they repeated the same bloodwork it showed my PSA at 4400. I had more bloodwork in January and since it was still 4400 they did a prostate biopsy. I get the results for that in 5 more days.…
Husband with hodgkins
Hello, I am new to this discussion. My Husband was diagnosed with Hodgkins Lymphoma In October of 2016. Dr gave a good prognosis, and Lymphoma is curable, but that is down the road. Getting through the treatment is quite an experience. He is approaching his 6th chemo treatment coming up on Jan 9, 2017. Regimen is set for…
Maintenance decision Looking for Input.
Great news for the new year! Had a PET Scan just prior to my 4th cycle, Rituxan/Benda. Onc says there is no evidence of cancer and the mediastinal tumor has decreased significantly , as have all the other lymph nodes that were enlarged. I had my 5th cycle today and Lord Willing my last will be the end of this month. Now…
Supporting daughter with Hodgkins
Hi! My name is Claire. I've just joined this forum after reading a few of the posts. This seems like a very caring, supportive group. My daughter's journey: The first time that she was really ill was last January. Between then and the end of March, she had seen three pediatricians and one dermatologist. She had symptoms…
Still itching after chemo.
hi my name is Al. I was diagnosed with classic nodular sclerosis hodgkin. I finished chemo my scans were good and I going through radiation but I am still a little itchy..during the chemo it went away but as soon as we were done with chemo it started to resurface ...is this normal? I read that for some patients it doesn't…
Nausea and Vomiting
I was diagnosed with pediatric non-hodgkins lymphoma in January of 2015. I'm currently in maintenance, but have been vomitting and feeling nausea after most meals since right after induction in around Feb/March. I've had a gastric emptying study, a brain MRI, and an endoscopy and all came back normal. I'm getting sick…
Happy NEW year
Happy "New Year" everyone! Let's make it a safe, healthy, and happy NEW year! There will be ups and downs and struggles, so cherish each day! Sal0101 (yep! 0101 = New years birthday!) I love each year!

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List