-
Non-Hodgkins-Small lymphocytic lymphoma (SLL) treatment
A friend was very recently diagnosed with small lymphocytic lymphoma (SLL). She is in her mid-50s and otherwise very healthy. She has seen one oncologist so far and has appointments for 2 additional opinions (one with MD Anderson). I am trying to find information for her on treatments received by others with SLL and your…
-
Neulasta vs Neupogen
I asked the oncologist today if the Neulasta shots were working. Dad is still ending up in the hospital 7 days after every enfusion with a serious infection and neutropenia. I asked if Neupogen might be the better choice. Or what other options should we be considering. Does anyone have any advice, experiences or other…
-
Forllicular Lymphoma with fluid. Please help
Dear All, I am a new member and need your help. My husband's dianoged with Low Grade Forllicular Lymphoma Stage 1 since May 2016. The symtoms he has are swollen groins and fluid. After we came back from 12-day holiday on cruise, his stomach poped out over night (looks like he's 7 months pregnant). After that 3 weeks, he…
-
Maintenance Tx: Rituxan
I completed induction Tx for indolent, NHL 3B, in December, 2015. My last scan, a month ago, was clean. The suggested maintenance Tx following induction was continuing with Rituxan only, 1 X every 2 months. But I had to quit, after 2 Tx, because the fatigue, mostly, was life-changing, epic-class. The best analogy I could…
-
What I remember
I still remember being a little kid. Looking up at my Dad with awe. Thinking about how big and strong he is. Watching him now battling cancer. I realize how right I was.
-
Dose Adjusted Epoch R
Hello all, I am the primary care-giver for my mother, who has just begun epoch and rituximab treatment for her aggressive double hit lymphoma cancer, dose adjusted as based on her blood counts at the end of each cycle. For her first two cycles her dose has remained the same, in order for her to get the best level of…
-
Frustrated
I walk into the hospital this morning to a terrified Dad. He has diarrhea that is pure bright red blood. He can not sir up without feeling like he is going to pass out. I ask his nurse if the doctor has been in. The nurse says that they have made several phone calls and no one has called him back yet. This has already been…
-
What tests?
A growth was found in the conjunctiva of my right eye and after a biopsy by the ophthalmologist I'be been told it is lymphoma. I've been referred to Princess Margaret Hospital (Toronto, Ontario) and my first appointment is in two weeks. I'm wondering what to expect in terms of tests at my first appointment. I realize this…
-
Splenic Marginal Zone Lymphoma and Breast Cancer
Hi All, My mother was diagnosed with SMZL in December 2014, was treated with chemo and Rituxan, and has been in remission since May 2015. She responded very well to treatment and her spleen shrunk back to normal size. My mother has also been a breast-cancer survivor of 10 years. She recently had an enlarged lymph-node, and…
-
Happy days!
I know Dad still has a long road ahead of him. He is such a strong man. I am so proud of my Dad. I can not even imaging what it is like to fight a battle like this. His blood counts are back up... he got the feeding tube out this morning YEAH!! His oncologist is very happy with how well the chemo is working. We are going…
-
Alternitave meds
Took Dad to his oncologist appointment yesterday. Good news is they said the tumors are shrinking. The last CT scan he had does not show all the little spots of cancer that were spread through out his abdominal area. Also the large tumor that made it so he could not eat before has as they said "has practically melted away"…
-
Waiting time before getting pregnant after ABVD
It is now six months since my wife had her last treatment with ABVD. We are striving to have a baby but doctors are saying we have to wait at least one year. Googling our problem didn't help so much as there is no enough researches on this matter. Therefore, I hope you will share your experience here. 1- How long did you…
-
rituxan treatments
I was diagnosed with follicular indolent around 3 months ago. Oncologist suggested "watch and wait". A week later, all involved lymph nodes started to grow. Both sides of neck and groin. Did an incisional biopsy and it was still considered follicular. Decided to start Rituxan treatments, 1 weekly for 4 weeks. After 1st.…
-
Home from auto SCT
Home has NEVER felt so good. Really, NEVER. Ever. Ever. Overall, this has been harder, physically, than any previous therapy (including the nearly 600 hours of R-EPOCH + Neupogen back in '11 when my 2 forms of NHL were finally diagnosed.) Through all of that I nearly-always felt like a successful, robust and vigorous…
-
What changes did you make
Just wondering what changes you all made after your diagnosis and/or treatment. I've talked to a few survivors who made drastic changes to the way they eat, the cleaning products they use, the way they wash their vegetables, etc, etc, etc. But, even more survivors seem to have made little to no changes other than 'trying…