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Post chemo effects of Rituxan and bendamustine
I have completed 6 IV sessions of chemo ( Rituxan/Bendamustine) and am in remission...2 months. I'm experiencing a rash in my crotch ( 3 mos) and itchiness on my neck, ears, upper arms and chest. I would appreciate any info from survivor patients that have experienced similar symptoms and their remedies. Fatigue is also a…
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Weight Loss, Rash, Swollen Lymph Nodes
Thank you for taking the time to read this. I am a 26 year old female, 5' 5", and have typically been an average weight of about 135. I gave birth in June 2015 and weighed about 155. By December 2015 I was losing a few pounds every month despite eating 2,500 calories everyday. My GP tested me for thyroid issues and the…
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How to adapt to new lifestyle
SOOO this is my first blog and I am really excited to have found this network. I am new so I am not sure how this really works but I want and I NEED to vent about my disease to people who have actually shared my experiences. Family and friends are AWESOME but there is something about sharing your feelings with people who…
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Are "healthy" diets and supplements harmful?
Or do they just give a false sense of control.? Are they even dangerous? http://www.redorbit.com/news/health/1113189455/antioxidants-may-promote-cancer-growth-071114/
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Knee surgery
Well have to do knee surgery May 5th, have torn meniscus and cartlidge problem. Have to go off of the blood thinners and do shots . Fun. I do my year scan in the beginning of June then see my oncologist June 13. It seems like things just never end. But hopefully every one is having a nice Saturday my prayers are with all…
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Stable Disease?
It has been over a year since i have been diagnosed with Hodgkins Lymphoma (at age 17), and everything went really well. I've had 2xOepa and 2xCopdac cycles and no radiation. While i believed i was healthy until today, i recieved the letter with the results of the latest examination today and decided to read it precisely.…
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Best approach from an emotional perspective
Indolent FNHL is one of the toughest forms of lymphoma to deal with emotionally. Would love to have a frank logical discussion about how victims of this awful disease deal wih all the uncertainty of its course of progression. We are all different as are our emotional abilities to deal with this. Some cling to the hope that…
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It's Back
A few days ago, I had a 4 month appointment with my hematologist oncologist. Every appointment I've had with him started with a trip to the lab for blood tests. This time, he hadn't ordered any which I thought very odd. After we talked and he examined me, he said he wanted me to have a CT scan. A nurse walked in and handed…
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It will be two years on Sunday...
On the 24th of this month 2014, I heard those numbing three words, "you have cancer". Three weeks after that my older brother called me crying and in a barely audible voice, he cried "dad has cancer". We both have/had lymphoma. Seventeen months later my father passed. In a few days it will be two years that I kept this…
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looking for Donald
Has anyone heard anything from Donald I think it was Donald 57 not sure. But would love to know how he is doing since he had Zevalin like I did. I guess I am wondering if anyone has had Zevalin or Bexar and had a recurrence. Thank you all Hildegard
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port flush
First of all I am wondering how often every one gets a port flush, when in remission? I have been in remission since 09 but had FNHL stage 4 and am on blood thinners, also other issues so it is not so easy to to go to get it done just like that. I have been going every 6 weeks and this oncology nurse today said we do this…
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Newly Diagnosed with Waldenstroms Stage 4
Hello all, I am new to this arena. At my 60 year old routine exam last month my blood counts were down and I was severely anemic. Many tests later (blood work, bone scans, and bone marrow biopsy) they have diagnosed me with a rare non_hodgkins lymphoma called Waldenstroms. I am to start chemo on April 28th using CDR combo.…
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Birder
Has anyone heard from birder?
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The latest
Well, been awhile since my last post, wont see the Onc til the middle of May sometime, she wouldnt do the PET scan because i had the bone density scan and hip x ray and she said too much radiation etc, well the bone density scan shows osteopenia which means steriods were most likely to blame, its the begining stages of…
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Had 6 cycles of ABVD
i don't mean to be a Debbie Downer and I am greatful to be in remission but I thought I was going to feel better than this. My last infusion was 21 March and I am feeling pretty down since I am not bouncing back like I thought. I know I need to be patient. can anyone shed light on how long it took after treatment before…
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Finally decided to share my story
hey all, finally decided it it was time to share a post. I was 48 years old when I was diagnosed with NHPHL. diagnosis did not come easily as I didn't have your typical symptoms. It was mid-July 2015 and I was experiencing a nagging unproductive cough for weeks. I went to my GP on two different occasions. The first time I…