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Short note
Been awhile since i posted,had chemo again for the 3rd time since first dx 2008. had Treanda and Rituxan, one time a month 2 day session for 6 months, and it really kicked my butt. I didnt do the stem cell, told my Doc i wasnt ready for that, had labs done and it is showing my white cells are dropping little by little,…
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lizz888--Stem Cell Transplant Update
Hi, All! This post is just to add to the posts here from those anticipating stem cell transplants or who already received their transplants. After 6 rounds of RCHOP failed to put my dad's lymphoma into remission (although it certainly looked like it was going to) he went right on to RICE and prep for a stem cell…
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One constipation idea...
This info is just in case somebody else out there is having a similar problem. I realize I may be only a tiny percentage of patients, but this discovery changed my chemo life completely. Like everyone I approached chemo determined to do exactly as I was told. I love my Oncologist and totally trust his care. Like most,…
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Regaining Energy and Strength after Bendamustine and Rituxan
My friend has completed Benamustine and Rituxan treatments. He wondered how long it would take for him to regain his previous energy level and strength Thanks!
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LRF (Leukemia Research Foundation) for All Blood Cancers
Today I was at a Town Hall meeting held locally by the LRF. They had 5 doctors from major hospitals in the Chgo area, who specialize in the blood cancers. (One of them is the Dr I am seeing at Rush.) The Town Hall was people asking questions and the doctors answering them. There were some vendors there to povide…
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Windows Study for Mantle Cell
Hey folks. Just a note to let you all know I'm still here and doing well. I've been in the Windows Study at MD Anderson for the past 4 months. I just finished a trip to Houston and had a PET scan and BMB done. They were NED. Praise God!!! I still have to have a colonoscopy done and if that is clear then on to a heavy dose…
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Prednisone
Over the past several months, I have had numerous flare ups of a seeming allergy--to something. It would manifest as big red lips and chubby cheeks. And I mean BIG red lips. The movie stars and their silicone lips don't hold a candle to mine. I was finally referred to an allergist/immunologist. Yesterday because of my…
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Can results vary with different scan methods?
Hi! It has been 1 year since I received the news that my Follicular Lymphoma was in complete resolution. I had received 2 PET Scans- one with the iinitial diagnosis and one after 4 treatments with Bendamustine and Ritauximab. One year later, my doctor did a CAT scan (my first). In the findings they said that one of the…
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cancer at 22 years old possible. sonogram tomorrow
So tomorrow i have a sonogram and i. Just learning to use the discussion board. Im not quite aure if i am doing this right. Ihave had a swollen lymphnode in my neck for a while and one in the crease of my tthigh and abdomen. Anyways. Point here is i am breast feeding and i had notice a lump under my armpit when i was…
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Symptoms
Hello. I'm on here not because i was diagnosed with this form of cancer or any cancer, but because for the past almost two years I have been having symptoms that point in that direction. Around March of 2014 is when I noticed the symptoms. I was getting sharp pains in my stomach daily, pain in my groin and pelvic area, was…
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How to Read Health News
I have mentioned, here on this forum, more than one time, one of my favorite websites for current information on lymphoma. Lymphomation.org. At the discussion boards, they recently linked an article from Blood, a weekly medical journal published by the American Hematological Society. The article is titled How to Read…
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Newly Diagnosed with Ocular Lymphoma sadly no subtype identified from biopsy
My 70 year old mom was finally diagnosed with Ocular (eye) Lymphoma after vitrectomy procedure. Suffreing from uveitis and inflammation and vision problems for over a year. Her Lymphoma is in Uveitis area or viteous fluid of eye. The report says they were not able to idently sub type. Could not do CD 20 marker. Only told…
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4 Years In Remission from Stage IV Non-Hodgkins DLBCL and Scared for the First Time.
In September of 2011, I wrote the following: “…hearing that my “backache” was an aggressive and very advanced cancer has thrown me for an utter and completely surreal loop but I feel (down deep / in my soul / existentially) that this isn’t gonna’ get me. Advanced/aggressive DLBCL can be treatable - possibly, curable.…
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Shouldn't the ENT be doing blood tests and other differentials before going right to a lymph node re
After a pet scan showed obvious multi layer swelling of nodes (1.5 to 1.9cm) one one side of my neck and a few in my abdomen, they are saying lymphoma. THE initial biopsy via FNA (fine needle aspiration) came back inclunclusive or at least that said the cells were atypical. So now I'm scheduled to see my ENT oncologist and…
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Rituxan Maintenance Schedule for MCL
Following treatment with Rituxan and Bendamustin, what is the usual maintenance schedule for Rituxan? My friend had a complete response after 3 B-R treatments, but he will continue for 2 more. He will probably begin mainenance when he is done.
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Last scheduled chemo
Hi All, My last scheduled chemo is Tuesday, two weeks after that is my last methotrexate treatment. One part of me wants to jump with joy, the other part of me is nervously waiting for what is next! I'll have a PET a few weeks after my final treatment which should give some insight on what's going on. I did have 2 CT scans…