Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2015

MCL Looking for support for my dad
hi everyone.... im new here and hoping to find survivor stories and hopefully some people for him to talk to about what to expect in his journey. my dad is 60 and was diagnosed on May 1st....just 30 days ago after an ultrasound and biopsy of an enlarged lymph node in his groin. The first oncologist suggested the watch and…
Lymphoma Meningitis
In December 2013 my husband was diagnosed with Diffused Large Blue Cell Lymphoma. In April 2014 he finished is last chemo cycle (R-EPOCH) and was in remission. Unfortunately, he relapsed in April 2015 with DLBCL in his menigies, AKA Lymphoma Meningitis. This is a sub-type cancer that enters into the fluid of the Central…
MRI Brain Scan
I have been in remission from non-Hodgkins Lymphoma Diffuse B Cell for three years now. Each PET scan comes back normal and clear. Early last June I started to get instances of fatigue off and on, then as time went on it progressed where now it is every day and can get pretty extreme. Because of the symptoms, and the fact…
Metallic taste
Hi all! I just had my second round of radiation today & I can taste metal. Is that normal for radiation in the groin area? Or is this just in my head? My radiologist never mentioned it as a side effect. I've found if you have radiation in your head or neck you can have the taste. Thanks for your help!
Late Effects: Heart Valve Disease/Replacement
In 1987, I had radiaton therapy for Hodgkin's disease. In 2010, I was dx with diseased aortic and mitral valve. Cardiologist estimated my aortic valve would need to be replaced in five years. In 11-2014, I entered the ER with stroke like symptoms. A full cardiological and nuerological work-up revealed my aortic valve…
trying to find an answer, normal labs and xrays
How were you diagnosed? I have had a lump, non painful, in my neck 5 years. 5 years ago I started having soaking sweats to the point of staining sheets because my colored panties who transfew all over my whhite sheets. Saw my internist who did my cbc, xray, and ordered a ct of head and pelvis. The pelvis was denied by…
weird symptoms, possible lymphoma?
I probably wouldn't of even thought about lymphoma if I hadn't stumbled across a defining symptom. I was sitting at a bar with my boyfriend and took my few sips of alcohol (I don't drink much) and my shoulders started aching again. I looked over and asked if his shoulders ever hurt from alcohol. He looked at me with a…
Happy to Connect With Other Survivors
Hello all: I'm Happy to connect with other survivors here in this group. 1987 & 1989: Hodgkin's disease; CLL: 1991-1996. Living with late-effects of (1987) radiation. Chronic fatigue most limiting to my daily activities. Glen
Likely lymphoma, what to expect?
Hello everyone! I've found this great forum and I'd like to hear from the experiences of others to help me learn what to expect. I'm a 29 year old male in otherwise very good health. Here's a brief timeline of where I am: Feb 23rd, notice first lymph node, left side of groin. March 20, notice first night sweats, about once…
I need opinions. Not sure where to get second opinion.
I have had a very large, hard non moveable occipital lymphnode since the beginning of Dec. I had a neck CT which showed multiple swollen nodes but my CBC is fine. Doc wants to wait for 3 months and repeat tests. I don't like this plan. I am exhausted, itchy but all over and not extreme and have had trouble with tolerating…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List