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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for October 2014

Happy Halloween
Happy Halloween TO ALL xxxooo Carie
newbie still freaking out
I am 28 with a HD 1b. I was diagnosed on sept 15 and started chemo on oct9. On Oct 22 a day before second treatment I was hospitalized due to bleo toxicity. Doing second treatment today. My hair has started to shed and I feel just plain angry. Not sure why or at what. Anyone else feel this way?
Newbie, DLBCL, pet scan clean but.....
First, I'm so glad to have found this site today. Going crazy. I was sick for quite some time. 2 yrs or more. I was also having marriage problems so I thought I was just run down. I had major back pain, fatigue and chronic sinus problems. At least that's what 4 Md's, hematologist and a week in the hospital diagnosis was.…
walking.
Walking again! I just wanna share that I have not done any physical activity for a while and just started again about 4 days ago. It is so good for us who can do this during our journey of fighting cancer. I feel it is not only helping my mind but my body as well. I never wanna come back home, I just want to keep walking…
Battling Cancer / How did you get diagnosed?
Hey All, So my story starts about 6 years ago or so. I have always been a bit on the unhealthy side. I am 32 yrs old and have three children. My issues started off with a mass on my liver that was about 3in, They biopsied it threw CT but they hit a blood vessel and my lungs filled up with blood so it was stopped and I was…
All kinds of people, all kinds of FNHL
I talked with my neighbor's father today. He is 71 and retired. He was diagnosed with follicular lymphoma at age 58 - 13 years ago. At that time he was put on watch and wait. He is still on watchful waiting and has never received any form of treatment. He was at a major medical Center last week for a 6-month exam. They…
"Double-Boarder" Triple ?
Just wanted to tell my friends here that the prostate biopsy came back positive. Very minor, Stage 1. Easily treatable with radiation or surgical removal. I've got to talk to a radiation oncologist and surgeon to make that decision. Chemo is virtually never used on prostate cancer, and is never curative for prostate…
If you are diagnosed with HepatoSplenic T-Cell Lymphoma, here's where to go
Hello, Here's my quick story. Let me know if you have any other questions or are looking for specific info. Hepatosplenic T-Cell Lymphoma is extremely rare and aggresive - time is of the essence in treating it, so that's why I'm posting this. Story My nephew, Brian, was diagnosed with HSTCL in Feb., 2012, 1 week before his…
Hit the 3 year mark and I am no longer a "Borg" :)
Last week I had my scan and I'm still NED so that puts me at three years remisson! Yay! Today, my port was removed so I am no longer a member of the "Borg" (Reference Star Trek, Borg Collective). The extra "nipples" are gone! I am very grateful and hugs and smiles to all of you!
Sugar
Sugar. Hi Everyone, I finished my second round of Rituxin, Treanda and Neulasta last week. We'll it was harder than the first. My nausea was constant and with Onda setron HCL 8 mg, flip flopped with another 6 hrs one it didn't let up.I would have been happy to throw up and get some relief , even if it were for 10 min. Not…
Causes of Hodgkins Hodgkin Lymphoma NLPHL
In an attempt to solve the puzzle, I'm starting a topic so people can write in to see if there are any similar circumstance leading up to Hodgkin Lymphoma. My Lymphoma was NLPHL. Here are some of the new things I was doing in the two years prior to diagnosis: -lap swimming several time per week in chlorine pool; -taking…
Can cramp be caused by temodar?
I have cramp in my hands, feet, and legs, normally about one day a week, and it can be quite painful. This cramp can perhaps be due to age (I am 70). I take temodar 4 days every month to prevent a relapse of CNS (brain) lymphoma. It seems that cramp is more frequent when I take temodar. I have studied the documentation of…
So Confused
Im having a very difficult time lately. I was happily married with 3 wonderful young boys. My life was not always peaches and cream but it worked. I was diagnosed with Follicular Non-Hodgkins in 2010. At first I spent my time alone crying. Then I decided that I would control the beast and not let it control me. I had a…
Good luck Max
Good luck with your tests, tomorrow, Max!
JIM AND FOXY FOXY
Jim: Don't know if you saw this one: Just wanted to tell you how beautiful that picture is of Foxy snuggling with her stuffed animal. She has very interesting, pretty ears, I think. Amazing, she learned to ring a bell when she wants to go out. My last two fox-terrier type dogs never were totally housebroken. We tried and…
Survivorship Plateau
It has been two years since I was first diagnosed with Lymphoma. I was extremely symptomatic and things moved very quickly after my diagnosis, confirmed by CT scan and needle biopsy. In a state of shock, I met my Oncologist, had 11 vials of blood drawn, had a bone marrow biopsy, an ultrasound, a PET scan, an…
Michelle & Kyle
I emailed Michelle but seems like last time she logged in was Sept. 10. I hope everything is going well for them. Has anyone heard from them? Following posts daily, keeping everyone in prayers, extremely happy when I see good news.. I seem to be down a lot and can't get myself to post much, but all of you are in my…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
Thankful
Hi All, Two years out from my last treatment and my Remission is holding!! I am so grateful for this gift, I have a grandson to play with!!!! I am one happy person. Love my new doctor, had a long discussion about future possibilites and current symptoms, and feel confident that I am in good hands. No matter what the future…
Want to be well.....soon!
Big reality check today. I do some contract work not full time but it helps me with some of my bills. I have been that emotional rollercoaster lately and today I let the gates open. Talking w/ my contractor/best friend of 14 yrs. She asked me how vulnerable do I really want to make my self with being in public service.…
What if? Is it a possibility that Lymphoma is a diagnosis?
Hi All, First I want to thank you all for taking the time to read this post and hopefully provide feed back. My name is Kristen and I am a 32 year old female. Four months ago I went to an urgent care becasue I had a bad saddle sore from road bike riding and had developed a large lump in my groin. Doc said it would drain…

Lymphoma (Hodgkin and Non-Hodgkin)

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