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R-CVP versus Bendamustine-Rituxan
Which one is the "best" I was given a choice. Now I am hesitant Care to share your experiecnce. Many blessings to you
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Nhldaughter
I'm not in synch with things lately lost my wonderful Dad last summer around this time, but I've noticed nhldaughter we havent Heard from lately... Hoping her mom nd they're all doing fine... Wishing the same for everyone else here. There were some starting sct haven't heard from them either, the lady with long wavy hair…
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Bone marrow biopsy
Hi all, I had my bone marrow biopsy yesterday and I am on the waiting train. I was knocked out and was thankful because he couldn't get it on one side so had to go to the other. I didn't get to talk to him but in my waking up state I asked the nurse why and she said something about it being dry and another said he…
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Thank Goodness !!!!
I have had cancer, I am more than half blind, my blood pressure is sky high, had 2 by-pass heart surgerys, 2 knee replacements, hip replacement, diabetes, arthritis so bad it takes me 3 hours to get out of bed, can't hear anything less than a jet engine starting up, takes so many meds I am dizzy all the time, can't feel my…
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Looking for some one to talk to
I've recently finish my treatment for Hodgkins and I was on one of my usual check ups when they told me that I might have it again. I don't know if i can handle treatment again and I need inspiration. I've had all the usual talk about it might not be but I'll know tomorrow and I dont think I'm mentally ready to accept and…
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Like Humpty-Dumpty, I can't believe I'll ever be put together again..... :(
Hello from a new and U.K. member who needs help..... I was diagnosed in late March with NHL, which presented in my tonsillar bed. It was a total surprise, because a) I had my tonsils out 50 years ago and b) I wasn't aware of any symptoms beyond a bit of a virus (or was it?....) I started chemo in mid April. I only had 3…
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One year post-treatment, ongoing chest pressure/shortness of breath
I am female, 32 years old at diagnosis of stage II primary mediastinal large B cell lymphoma in Nov 2011. I underwent 6 cycles of R-CHOP and then 20 radiation treatments to my mediastinum. At diagnosis, I was 13 weeks pregnant (therefore, did not undergo R-EPOCH). I am now over a year out from my last radiation treatment…
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SOMEWHAT SCARY BLOODTEST AND VISIT WITH ONCOLGIST
Hello Peeps: Had a PT-Scan today, which to me is a big aggravation. For a long time I have been doing well with my bloodtests. Going along (singing a song??) Saw the oncologist Wednesday, Aug. 21. This time there was a small rise in white cells. I have allergies, one being ragweed, which the doctor thought might be causing…
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NHL - Follicular Lymphoma - R-CVP
Hello, I am starting R-CVP on 9-4-2013. Has anyone gone through this? Any feedback? Thanks
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Sprang from Area 51
Howdy all, I have been sprung from Area 51 (Roswell Park). I feel great (thanks steriods and a unit of red blood). No other side effects. Doctor seems happy. The plan is to get by the next couple weeks. The doctor has scheduled me for a PET and CT scan during the week of 9/2. He will give us the results on 9/9. Those…
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EPOCH R/neulasta misery still going on
My mom has been miserable for 2.5 days now. Nights are tough. I know neulasta causes bone pain, but she also has major abdominal discomfort. Side effects The neulasta and oxycodone 5mg cause abdominal pains too, but she has been miserable. We emailed the doc and he said take pain med every 6 hrs instead if 12. We have no…
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Chemo Induced Peripheral Neuropathy with restless leg syndrome
Fellow Lymphomaniacs... Just wondering if anyone else suffered or suffers from this? Mine started out as a sore back, moved to sore hip, progressed to numbess in my toes and fingers and the entire body having that restless leg type syndrome. Now, I am at the point where I am getting foot cramps and my entire arms are going…
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Neulasta or chemo pain??
Hi all, I think either the neulasta or chemo (EPOCH R) effects have kicked in My mom has been in pretty bad shape for the past two days. she was on Vicodin, but the doc said that could cover a fever. So he prescribed oxycodin 5mg. Even with the Vicodin only once a day the doc made a comment of "don't overload on meds"…
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How bad can it get?!
My grandmother was diagnosed in March of 2013 with DLBCL at 71 years old and scheduled for 6 R-CHOP treatments. The first was terrible and she was hospitalized for 21 days. Each new treatment got easier and more tolerable, and she was able to receive outpatient cocktails through her port. Right before her 6th treatment, in…
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Hurrah! Remission at last!
Finally, official word from my doctor, I am in remission!! Personally, I've thought myself in remission for the last 9 months, but he was reluctant to say so because after chemo in last October, I showed a posivitive PET scan and a negative biopsy! So he didnt' know what to believe! But with every subsequent check up…
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Second R-DHAC starts tomorrow
Howdy all, My second round of R-DHAC should start tomorrow. If the doctor is happy with my progress, I'll receive Rituxin tomorrow as an outpatient then go into Area 51 (Roswell Park) from Tuesday through Thursday for the rest of the fun. My white count has rebounded nicely...almost to 5.0. My platelets have rebounded as…
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Neulasta shot advice please
Hi all, my mom will get her first neulasta shot tomorrow. Any advice for what to do before and after? I want her to be comfortable and know what to expect. Thank you For the advice. Sending good thoughts to all.
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Could it be....?
I am going in on the 28th for a biopsy. Here are my symptoms. Swollen lymph nodes on the left side of my neck (have been swollen since Dec 2012), they didn't hurt until about 2 months ago. Now it's an aching hurt all the time. Headaches, night sweats, extreme fatigue, get winded very easily, coughing, unexplained itching…
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EPOCH R swelling?
Hi all. My mom did her first round of EPOCH R. She got two units of transfusion just now too. She feels a lot of swelling All over her body. Her feet are poofy so is her abdomin and back area. She also swallows and feels tightness. Anyone experience this??? They will discharge her in an hour and say it's just water…
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Double hit update
Rick was scanned today (6 weeks after radiation) and after DA-REPOCH and a stem cell transplant. Was in remission!!! Any other double hitters out there over 3 months out in remission? He goes back in 3 months for another scan but they seem hopeful it will stay this way!!!! Yeah!!!!!!
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Unusual?
I saw my oncologist today and he said I was a very unusual case. He said having FNHL in the small bowel last year which is extranodal and now having it come back in my groin area is very unusual. Boy I hope I got that right! Has anyone had this and if so what was the outcome?
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Swollen armpit lymph nodes:
Hello All, I am a 30 year old male. for the past month or so I have been having a mild pain (discomfort) in both my armpits. I went to a Dr and was advised there were two swollen lymph nodes, one under each arm. Left armpit was slightly more swollen. I was given antibiotics. A couple of weeks later the pain was still…
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Relay For Life
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PET scan and sinus
Hi, i'm new to this site. I am trying to wait til my onc appt to ask this question but I just can't do it! Last year I had FNHL in the small bowel and had a resection with no other treatment other than CT's every 3-4 months to watch. I just had my 1 year PET scan and it showed 2 spots, one in my sinus and one in the lower…
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A Miracle and an Answered Prayer
Recently, I started a discussion thread on the subject of applying for Social Security Disablilty. I received many excellent replies and a (mostly) good discussion ensued. I am especially appreciative to our Les, who is a former Social Security Administration employee, for his contributions. Thank you again, Les. A few…
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EPOCH-R advice?
Hi all, my mom decided she will give EPOCH-R a try. The treatment starts tomorrow. Please give advice and tips if you've been through it. She's 70 years old and this is a relapse to diffuse large B cell from a follicular lymphoma. So it's going to be tough.
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Bendamustine rash/itching
I hope someone has some advice. A family member is having a terrible time with the itching from his rash. He's been taking Benadryl, but gets so sleepy. I'm wondering if anyone has found some other way of managing the rash/itching. Thanks for any help.
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Clear Sailing...
Had my six-month visit with my oncologist yesterday (Thursday), All a-ok. The anemia that gave us a scare six months ago has totally resolved, and is right in the middle of normal values. LDH, Sedementation, all low-normal, which is were they are best at. The doctor recommends that I continue on my dialy Geritol Multi. I…
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follicular transformed as diffuse large B cell HELP!
Hi all, Writing from California. Hi to those I've talked to before. Some usernames I recognize and get happy to see. I return here in a bad state after two years. my loving mother who means the world to her three daughters was diagnosed with follicular lymphoma grade 3A (i think) in 10/2010. she underwent 4 cycles of B-R…
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Medicare Options
I'm reaching out to you guys hoping to get some input on deciding how to handle Medicare which starts for me next month. I met with a Medicare Counselor yesterday and though he was a very nice and interesting person, I'm still indecisive/confused about which way to go. I've been on disability for two years and medicare…