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Repeat biopsy Friday
My son (Camp Hoizon Volunteer) is having another biopsy on Friday. He had a biopsy six weeks ago and the three nodes they took were negative which we were thrilled about. They waited 6 weeks and scanned again and there was no change. The oncologist said this isn't normal if it was due to infection. He was put back on a 3…
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New to the site
My navigator suggested that I check out this site and possibly sign up. I have Stage III Hodgkins mutiple sclerosis and have had one ABVD treatment so far with the next one in a week. I am still having ups and downs dealing with the knowledge that I have cancer, but most days, other than not being able to do anything,…
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Checking in
Hi everyone, It's been a little while since I checked in. I have been reading the posts but found it so very very hard to respond. I felt like I was hit with a ton of bricks. So much loss, it was just to to sad for me. I've lost three close friends since march, and the loss of Beth and then Nathan on this board and some…
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Last treatment
Well my fellow lymphomaniacs...I am sitting here in an unusually unsettling state, I know I should be happy, jovial etc right now; tomorrow is my last chemo treatment. But I have to be honest with you, I am more nervous than a prostitute in church. It feels like it is my first treatment all over again. I keep thinking…
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SCIENTISTS SEEK TO REIN IN DIAGNOSES OF SOME CANCERS
Scientists Seek to Rein In Diagnoses of Some Cancers By TARA PARKER-POPE 5:08 PM ET Some of the top scientists in cancer research are recommending sweeping changes in the approach to detection and treatment, including eliminating the word cancer entirely from some common diagnoses. nytimes.com
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Upcoming Scan and the nerves are starting to get to me
Hey Everybody Friday I will be having my one year scan since the Auto Stem Cell transplant for Diffuse Large B Cell Lyphoma. I am getting the normal jitters and fears that seem to overtake you both mentally and physically at times. To make things worse, I woke up Sat with a pretty bad sinus infection and a fever from it.…
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VINNY, MERRYWINNER AND MAGGIE
Vinny, Merrywinner and MissMaggie, I know you guys have to be out there somewhere. Please post and let us know how things are going. Just an update would be great. Even a smiley face would do. We worry miss Ya' John
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many questions
Hello everyone. My name is Debbie and I have Stage 3b colon cancer. I was diagnosed June 2011, received chemo and have been doing fairly well since...tiredness never goes away. I just recently had my six month CT scan and will have to have another one in 3 months because of some enlarged lymph nodes. I was hoping some of…
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Hi buddies!!!
Hi to all my buddies, Just wanted to let you all know that yesterday I finished with my last Rituxan infussion YAY for me!!! I'm really happy that I'm done with them, now I just wait for my next CT scan in three months and that's it, no more treatments!!! I was a litlle worried and I do have a question for all those on…
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Social Security Disability
I just finished my online application for Disability benefits. What an ordeal--I see why people hire attorneys for this. Monday, I filed the Application for Benefits and printed out some instuctions about what information I would need to file the Disability Report. Tuesday, I assembled, compiled, and recapped medical…
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Shouldn't ABVD given in order ?
I have new nurse and noticed that she gave me the ABVD treatment in this order BVAD compare to past 11 treatment where I took them in the order of ABVD, and when I asked her she said it does not make different, but within my self I did not feel good about it. For of you who have ABVD does the order ABVD given makes a…
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11 ABVD down and 1 to go.
I remember 5 months ago I wrote a post saying “One ABVD down and 11 to go.”, now 11 down and 1 to go. I really didn’t have many posts but surely I was checking and following posts 1-3 times a week. As I am excited for getting close to be done with chemo, and looking for it to get married sometime within the next 6 months…
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with Update-Refractory DLBCL
Hi all, If you remember my current onconlogist was thinking of moving me to R-ICE w/ SCT since my cancer did not react after the second R-CHOP treatment. More details in my other post. Anyway, he spoke with the folks at Roswell Park Cancer Institute (luckily on 10 miles from me). I met with a one of their doctors this…
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results are in
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PET not so good
Almost 1year in remission. Had cat scans and PET. The cat scans were good but the PET showed a hot spot at the base of my tongue . Sent me next door to have bloodwork done (which came out fine) and set up an appt. wit an ENT on the 31st of this month. Scared, depressed and mad. Want to think everything is fine, but once…
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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News from Vinny :)
Hi everyone. I received a message/response from Vinny today. He's been taking a mental health break from the site and I certainly understand that - especially with the news of Beth and Nathan recently. Vinny is doing okay having some dizziness and vertigo again and will see the doctor on the 31st. He asked me to say "Hi"…
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Refractory DLBCL - Anyone?
I had my second PET scan today. I've only had two R-CHOP treatments. Doctor is concerned that I'm not reacting to treatment like he first thought. Third R-CHOP is suppose to be on Friday, July 19th. I know I shouldn't self-diagnose but I've noticed the nodes along my jaw and in my pelvis the last 3-4 days. These areas were…
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Nathan
This is Nathan's Mom letting you all know that Nathan passed away July 6th surrounded by all of his family. I want to thank each of you for your love and support of my son. God Bless each of you... you are in my thoughts and prayers.
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Rituxan Maintenance without a Port?
I had my 2nd Rituxan maintenance, blood work, and a doctor visit yesterday. My blood is back to normal--yay. It was slow coming up, but got there. All lymphoma markers are normal--yay! My doctor said we need to think about getting my port out. He said that even though it is being flushed monthly, there is still a chance of…
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Bump in the Road
I was diagnosed with DLBCL Stage 4 toward the end of May 2013. It was not in my marrow. The reason for the Stage 4 was a dime size spot on my right lung. Treatment plan is R-CHOP every 3 weeks for 6-8 treatments. First treatment was 6/5 and by 6/7 the lymph nodes above the diaphragm were 'gone'. Had a transfusion on the…
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GETTING ON THE SITE
THIS IS REALLY GETTING REDICULOUS TRYING TO GET ON THIS SITE. SOMETIMES I GET ON AND THEN CAN NOT POST. SOMETIMES I POST AND IT DOES NOT SHOW UP. THIS HAS BEEN GOING ON FOR A LONG TIME AND THERE IS NO REASON IT CAN NOT BE FIXED BY NOW. SOME MEMBERS HAVE EVEN BEEN BLOCKED FROM POSTING. GRETA HAS NOT EVEN POSTED ANYTHING…
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First cycle of R-CHOP on July 25 (DLBCL)
Hello all. Sending out an update and looking for any wisdom to prep me. June 22nd my case went to Cancer Care. Since then things are moving fast! I have been scanned, poked and drained so many times in past couple weeks. Had tons of bloodwork, MUGA, PET and another CT scan done. Oh how could I forget .... That lovely Bone…
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Infertility and Stem Cell Transplant
Well Kyle is currently undergoing his 4th round of chemotherapy out of 6 rounds. As time approaches, he will be undergoing a stem cell transplant and we were under the assumption that Kyle's fertility would not be affected by his current chemo regime. However, no one mentioned the fact that the stem cell transplant would…
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Today's scan results (Happy Dance Time!)
Got my results and I'm still in remission - Happy Dance Time ! Hugs everybody!
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Scanxiety today
Well, I'm sitting in the radiology area drinking my two CT "cocktails". Of course a little later I'll get my "tequila shot" that makes me feel all warm and fuzzy before I hear the machine say "hold your breath"......"breathe" :) . I wanted to post last night but been having problems getting on the site lately. Anyway, hope…
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I have diffuse large B cell in the brain. Anyone else out there?
Jan. 2010 it was discovered when I felt weak and seemed to black out and was rushed to emergancey that I had two brain tumors. They did many tests, most of which I don't remember and it ended up with a bioposy and it was non-hodgkins lynphoma large diffuse B Cell. I eventually ended up with a consult with Stanford and they…
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Testing to see if I'm still blocked...
I'm just testing to see if this message will post. Sue
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Good News!!
My daughter had her check up this morning. It's been two years since she finished her treatment, and everything is good. Her doctor told her that since two years have passed since her treatment and she hasn't had any issues this is very positive!!! Her bloodwork results are all fine. He does want to keep seeing her every 6…
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Happy July 4th
Happy July 4th everyone! Have a good and safe one! - Jim