The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
Lymphoma (Hodgkin and Non-Hodgkin)
Archives for March 2009
Discussion List
thirty year survivor now having medical issues--tell me I'm not alone
I had Hodgkins in 1980 as a senior in high school at age 17. With all the advancement in treatment I almost feel like I had Hodgkins in the stone ages now. I am now 47 with a wonderful family. My chest and neck were radiated. Five years ago I was told that I had pulmonary fibrosis(scar tissuein my lungs) probably from the…
just wanted to talk about it
I was diagnosed with stage 4 Hodgkins lymphoma when I was 11 and am now 23 and have been in remission for about 10 years. I feel that I handled the experience fairly well when I was younger but within the last year or so its been kind of hard to deal with for some reason. I cant really explain it but I have been feeling…
Burkitts Lymphoma
Looking for others with this rare cancer or have been through the treatment. I was diagnosed on Feb 12 2009 with Burkitts, a few days before that I was treated with R-Chop which really blasted the tumors (which were many). I had the R-CHOP basically to save my life as we couldn't wait on MAYO any longer. I am now half way…
HD 15yrs out, newly diagnosed with DCIS
Wish I had found this site sooner. I thought the tingling and hearing loss was just me! I was diagnosed with HD in 1992 after a routine physical found a lump. Laperotomy, spleenectomy folloed by mantle and peri-aortic radiation (6 weeks maybe?). Re-occurance in my pelvis (or maybe it was always there?!) in 1993. Treated…
new dx- diffuse B cell NHL-need suggestions
It's been a rough 3 wks and just found out I have aggressive diffuse B cell NHL stage 3a today. I start chemo in 2 days-rCHOP- 6 courses then radiation therapy. I really need help getting in a positive frame of mind to get the best outcome I possibly can. My family has been very supportive. Any suggestions of what has…
Looking for a good Oncology doctor in the Raleigh NC
Hello everyone I am a 10 year survivor of Hodgkin's Lymphoma who has moved from Nebraska to North Carolina. I am looking for a good doctor to take over my care and follow up's with here in North Carolina. I was wondering if anyone knows any good Oncology doctors in the area of Raleigh, North Carolina so I can do my follow…
new member and glad
my name is ralphie i am a seven year survivor and i never told my story cause i just didnt think that people would understand.it was right after christmas when i found a lump on my collarbone, then after xrays ihad three tumors in my chest and one in my neck. it was hodgkins and i thought i was gonna die i had a 2 month…
just cant let it go
i was diagnosed with lymphoma in 2002 it has mentally and physically destroyed me. today is the aniversary of my first chemo treatment 3/3/02 and i dont know why i remember every date i had chemo and its 7yrs later is there anyone else like me cause i just sometimes feel alone and its seems like nobody understands
Epoch-R
I am looking for someone else that has been on the clinical trial using Epoch-R. I was diagnosed with diffuse large cell lymphoma April 2008. I had 6 rounds of chemo at Siteman Center in St. Louis and am now in remission. I had trouble with my blood counts during treatment and had to have 15 units of blood. I am now having…
Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines.
Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide.
Other areas of CSN are restricted to members only and cannot be found by search engines.