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Long Term HD survivors
Hi All, I would really like to talk with other long term survivors of Hodgkin's Disease. I was treated in 1971 and I am looking for other survivors treated then or even later. Please contact me directly at zame@earthlink.net thanks!
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splenic marginal zone lymphoma
I had my spleen removed 2 years ago. The specialist has adopted a wait and see approach. Everything seems to be alright but I am in a continual state of anxiety waiting for something to happen. Has anyone had this experience . How long could I expect to be in remission. My life seems to be on hold and I just can't function…
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guilty?
this might sound crazy, but it's something that i'm genuinely trying to come to terms with. does anyone out there feel guilty for having a form of cancer that is "highly treatable & highly curable"? i met so many people over the course of this experience who may or may not get better, my doctors were alway so positive…
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Can Scar Tissue be Mistaken as Activity/Uptake on a Pet Scan?
Just wondering (yes, wondering again...always on my mind). Can scar tissue be mistaken as activity/uptake on a pet scan? I did not think that scar tissue shows up on a pet. Anyone know? My next pet scan is scheduled for June 1st. Seems like a LONGGGGG time from now, so bear with me on my constant posting. I am nervous…
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Exercising post treatment
Hello everyone. I just finished treatment yesterday! 6 months of ABVD and 13 radiation treatments. All in all, I feel pretty healthy and energetic, but I'm having a really hard time exercising again. I gained some weight because I had to take prednisone as a result of lung toxicity from bleomycin. So not only are my lungs…
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Hi Stepet....
Thanks for your response regarding my recent pet scan results. Initially last year when I was diagnosed I went to a 'local hospital' for the pet scan. After completing 6 cycles of ABVD, I went to Fox Chase Cancer Center for the post chemo pet scan because it was supposedly better. (Hmmm...) Unfortunately he did not have…
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Please help only 23
Hi good-people of the earth my name is Nina- are there people put there that have cured there Hodgkin's using 'alternative' treatments? It has spread in many-many of the tissues of my body. My family is tierd of helping me (it's been 8 months since I havn't felt well) and I have little of my own money or access to welfare…
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Frightened -Post Chemo Pet Scan Results
Hello, I have been reading posts throughout the past few mos, but have never posted until now. I am a 38 yr old woman, diagnosed with Hodgkins Stage 3 or 4, no one really knew for sure. The Hodgkins was in my neck (That is how I knew I had it from a biopsy), in my chest, my spleen and possibly starting in my liver (thus…
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MALT lymphoma
I am a 27 yr old woman that has survived MALT lymphoma of the salivary glands twice already. When I was first diagnosed almost 6 yrs ago, there was so little information available that it was really difficult to know how to proceed. Since then, I have seen 10 different onc's for this and have yet to find one that has…
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GRANTS
MY DAUGHTER HAS FINISHED HER TREATMENTS AND WANTING TO GET HER LIFE BACK,SINCE SHE LOST EVERYTHING DURING HER BATTLE,WOULD LIKE TO START A DANCE STUDIO. IS THERE ANYONE WHO KNOWS OF ANY SPECIAL GRANTS? SHE WAS DENIED FINANCIAL AND MEDICAL HELP BECAUSE SHE WAS DIVORCED AND NO CHILDREN. HOPE THERE'S HELP OUT THERE THANKS