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Delicate issue
Hi this is a delicate matter, my delicate area is irritated and red (like nappy rash) I am wondering if my body fluids are irritating this area as I am on pazopanib and have been since September so nearly 14 months now. Has anyone else had this happen, what creams did you use, I have tried several nappy rash creams and…
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RCC and Anemia/Iron Deficiency
Anyone else experience this? I had severe anemia and iron deficiency prior to discovering my kidney cancer so I assumed afterwards that it was related. However, the summer of 2014, which was after my partial, I was so severely deficient that I got blood transfusion and a series of iron infusions. Told to take iron 2x a day…
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Surgery AGAIN -Number 3 :(
Things did not go so well today. Lesion on liver is a mets, spot in abdomen watched from last MRI is now considered a tumor, and enlarged lymph node found near portal vein. Lung CT Scan showed 2 small nodules on watch. Bottom line another surgery with two procedures with two different doctors to remove liver lesion and…
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First "scan"
I am thrilled that my first scan episode (chest xray, blood and ua) have all come back clean! I am confused about one thing though, I am scheduled for my 6 mo scan in January. It is for a CT with/without contrast. Is that normal? I thought we were not meant to have contrast with one kidney? Thank you in advance for any…
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Chromophobe RCC case
Hello everyone! I am 2 years post op from complete neprectomy. I had a very large 22cm Chromophobe RCC tumor removed, stage 2, no mets. I am just wondering if anyone with ChRCC ever experienced mets anywhere else after surgery? I am wondering if there are favorite places of ChRCC to reappear as opposed to others. I am…
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Contrast reaction
Just had my 1 year scan and had a small allergic reaction to iodine contrast(sneezing and itchy eyes). Does that mean i won't receive contrast for my next scans?
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Contrast reaction
Just had my 1 year scan and had a small allergic reaction to iodine contrast(sneezing and itchy eyes). Does that mean i won't receive contrast for my next scans?
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Joining the club
I just got home from the doctor. I went in for a CT scan for some pain in my "left" side. The results came back to say that a 4.5cm mass was found in my "right" kidney. I have an apppointment with the surgeon tomorrow morning but of course I am scared out of my mind. The dreaded "C" word was a gut punch from out of no…
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Question Re: Stage III with Metastasis
I need some inspiration from some of you out there whom I know have fought courageously for many years. I just had my 2nd three month MRI etc. since my surgery in April and received the report this morning through my electronic medical record. I am scheduled to see the doctor tomorrow for all of the results. The MRI a few…
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After the hospital stay
I will be having my surgery on November 17, partial nephrectomy robotic. I'm single and live alone. (Unless you count my dog and cat) Although I have family and friends close by they all have their own lives to live and jobs to go to. Will I be ok by myself once I'm home from the hospital? They say I will be in the…
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Pain in groin/node
I have a small 1.3 tumor on my right kidney that my last scan showed has started to grow. i meet this week with my surgeon to schedule surgery to have it removed. For the past couple of weeks I have had a low grade fever off and on and have had pain in my right groin area. Has anyone else had painful nodes in your groin…
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Fat infiltration and calvification
Recently I was in the er for a matter not related to my past history of RCC. which I had partial nephrectomy for in Nov of 2013. The er dr did an abdominal ct without ccontrast and talked to me about a 1.5 cm fat i filtration (hard to see for sure) with calcification at cortex. I know I had ct with/without contrast on Sept…
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BMS checkmate 214 trial
4th scan results today. 8%reduction in lung mets. very mild side effects. Have been in BMS trail 214 since March. Now only on Nivolumab and have had a total of 58% reduction in 7 months. Again I thank everyone very much for sharing all the information and support. Never give up and always Believe. Praying for y'all. Texas…
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Brand New Here - The Waiting Game....
Brand new here. I am a 43 year old female that had an ultrasound last week for gallstones. Well, they did an entire abdomn ultrasound and found no gallstones (been having horrible abdominal problems like upper abdominal distention, acid reflux, pain, chronic diarrhea - sounds like gall bladder, right?) But, what they did…
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Renal Mass
Hello I've been reading this discussion board for a couple days now, and I am really just a bit lost and scared. Here's my story I had a follow up CT on my lung from a nodule a year ago and the doctor called me the next morning to tell me that it's the same size as last year but incidentally we found your spleen enlarged…
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Family Affair
I wanted to update you on my family affair. May 2015 I have been diagnosed with kidney cancer. Had surgery chromobe renal cell stage 3. Going in for my first scan on Thurs. 23rd. results on the 29th. My son, 36 years old father of two, has kidney cancer and scheduled for radical nephrectomy on Nov. 12. All I can say is I…
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Probable metastasis to the mediastinal lymph node
Hello everyone. I just received word tonight from my Pulmonologist that they suspect my RCC has metasticized to the mediastinal lymph node. My surveillance CT last month showed nodes in the lungs and an enlarged mediastinal lymph node. PET/CT Scan says that the lymph node is 2.2 cm x 3 cm and the lymph node exhibits…
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Officially 1 year from Surgery
Today (10/21) marks my one-year anniversary from surgery for kidney cancer. It comes at a time when many things are going on; we are 37 weeks pregnant tomorrow and work has been busy. But one thing that I did feel about the anniversary... Many people see a cancer diagnosis as a "life changer;" a time when one should…
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New to the Site
Hi everyone. My name is Scott and I am not new to cancer but am new to this site. I wanted to introduce myself and say hello to everyone who this disease has touched and wish you all well. I have had RCC for 2 1/2 years now and am stage IV after having my kidney removed and in a second surgery having 17 surrounding lymph…
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Anyone Stage 4 and still working?
My husband has been on Short Term Disability for 4 months. We were hoping he would go back next week but we changed our minds. He is just not well enough. His main problem is fatigue. I just worry about the "what ifs" he can't go back. I don't want to be a Debbie Downer but I want to be realistic and plan for our future.…
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Small Renal Mass Recurrence
I had a 1.7 cm renal mass removed from my right kidney in July 2014... I was scanned on Jan 13th and no most recently Oct 13th. Apparenty they found another mass less than 1 cm. When they reviewed the Jan 13th scan they found it was there as well. (It was missed initially but when the MRI in Jan 13th was completed they…
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NED!!!!Scanxiety big time: 2 year mark for my husband
Well, I've been dreading this upcoming week. Our family has suffered some losses this month and it just seems like we can't catch a break. Today we our 10 year old daughter accompanied is to her first funeral, for an amazing family member gone too soon to cancer. Later this month, my husbands close friend will also be…
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Antioxidant-use-may-promote-spread-of-cancer
FYI... who knows! http://www.upi.com/Health_News/2015/10/16/Study-Antioxidant-use-may-promote-spread-of-cancer/2051445022723/
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Bone scan, muscle uptake.
Just received results from bone scan, not mets in the bones. But there was an uptake in the teres major and teres minor muscles 6cm x 4cm x 3cm any toughts on what that could be? My GP ordered a MRI to check this but didn't seemed to know a lot about it. I also have my 1 year(14 months...) ct planned for the 28th, maybe…
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CT Scan results.. should I be worried?
So I had a partial nephrectomy in July 2013 with stage 1 grade 2 RCC of the ever popular clear cell variety tumor removed. In September 2013 I had a scan and it showed a 1.2 cm cyst in the "interpolar region" of the same kidney.The adrenal glands were normal. All of my chest x-rays since have been clear. Now, at 2 years…
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Just had tumor removed
I am one of the fortunate ones. In March I fell on ice and ended up with a brain bleed. While being treated for that they did an abdominal and pelvic CT scan. It showed a 4 cm (approximately 3/4 inch) mass. Three months later it was rescanned and I was told there was a good chance if was cancerous because it grew slightly…
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Serious Question
I am wondering how many stage IV RCC's are out there and how many have made it five years or more. I know the statistics I just want to see what real life says. If this is to personal or morbid feel free to comment. I know for me I am stage IV working on year two now. I am not feeling great but that is due to the Votrient…
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kidney removed 2012, Now reoccurance stage 4
Hello again My husband had his right kidney removed in 2012, he had been ned untill this last scan in aug. We went in expecting to hear the everything is good, see you in a year. That was not the case. He has a mass on liver, needs biopsy. we went to hospital for biopsy scared of what would or could happen. They took him…
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Small neoplasm found
i am a newbie. Two years ago a small 1.3 cm spot was found on my right kidney. I consulted with two urologists who recommended active surveillance. I have been having CT scans with and without contrast every 6 months and there has been no growth of the neoplasm. My Dr. says I have about an 80% that it is cancer. Well...my…
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I could swear!
I'm stage 4 grade 4, so newbies with grades 1 & 2 dont take fright! So the last cancer drug I was given reduced my tumour by a third but the side effects made it impossible to eat, work, swallow, leave the bathroom or retain consciousness. Ending up with a spell in hospital with pneumonia and amnesia. So I've had a lovely…