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Scans Tomorrow
I debated doing this, but here goes. I'm having my 18 week scans tomorrow and, yes, I'm incredibly anxious. I had gone to a kidney cancer support group meeting last night to hear a lawyer speak about the new healthcare law and I met two new fellow kidney cancer patients, and their personal stories added to my worry over…
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Surgery in 22 hours
Driving up to Tampa this afternoon. Have to be at the Moffitt Cancer Center at 5 a.m. tomorrow. Dr. Sexton. Have been able to keep the anxiety away by keeping busy. It's out of my control at this point. Thanks for all the feedback and support. Will be posting as soon as I feel up to it.
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Ultrasound Results
I recently had a renal ultrasound and it found that I have a complex multiobulated 5.2 cm lesion within the upper pole of the left kidney that contains septation which demonstrates vascular flow on color doppler imaging. Also additional 1.9 cm lesion within the lower pole of the right kidney with mural nodule or…
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Intro, my story (12 days post nephrectomy), and THANKS to those who have posted here!
Hi, everyone! This is my first time posting (though I spent some time reading before my surgery). THANK YOU to those of you who have posted your stories. They were incredibly helpful in letting me know what to expect, and what questions to ask. This experience would have been far worse if you guys hadn't prepared me --…
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Cancer Treatment Centers of America, anybody?
Hey Team, I am considering going to Cancer Treatment Centers of America. I especially like that they integrate naturopathic medicine with conventional treatments, and they seem to be a little more personable. I am starting to feel like part of an assembly line at my current cancer clinic. Are any of you being treated at…
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Op tomorrow morning
Well the time has arrived and I go in for my surgery tomorrow morning, needless to say I am a little scared but optimistic. I will probably feel a lot better once I have spoken to the anaesthetist about my concerns for my lungs. I have been told that it will be laparoscopic surgery and should take around 4 hours, so…
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Why is aspirin bad for the kidneys?
Actually, I have only one kidney now. In another post, someone said no aspirin as it is an anticoagulant. Will taking aspirin for my heart health cause bleeding from the kidney?
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Info on Avastin
Hi all I have been off the radar for awhile but doing much better. Its been since March 7 2012 that I had my left kidney and lymph node removed, 2 rounds of sutent in May, June 2012 for lung metastasis but had to stop due to the pain that it caused to my mouth (had numerous mouth surgeries for prior tongue cancer and the…
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Scan results- Clean!!
We met with the surgeon this morning and got the results of the first CT scan since surgery. I got an "all clear" on the scan!! I think I'll splurge and have a glass of wine tonight. Many thanks for all of your prayers and well wishes. I cannot tell how much they are appreciated. You are all wonderful and supportive. I vow…
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Surgery on Tues the 15th
After 7 months of waiting, time is finally flying. I'm a little scared. I'm a big wimp and hate pain-especially after the 4 surgeries I've already had in the last year :( . At my pre-op appt, the anesthetist ordered an Epi and PCA, but warned me I will still have likely signifigant pain. Ugh We have an added wrinkle as…
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6 month scans coming up next week.
I had bloodwork done today in prep for my 6 month scans next week. Onc office said some stuff on my last labs were cause for a little concern...indicated my eGFR was one of the issues, along with creatinine. So my scans are set for next Thursday, and then I see the oncologist on the following Tuesday. This will be the…
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Kidney tumor 3.7 partial nephrectomy
I'm 39 yrs old male and they found a 3.7cm lower pole tumor on left kidney.. surgery is some time next month.. They say it's slow growing. They are doing the robotic procedure.. What does that mean anyway.. So 85 percent it's malignant.. What happens after surgery .. Please you guys help me give me advice, what am I…
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Nivolumab-Sutent Scan update
Scan today still showed a mildly swollen adrenal gland. The question we are not sure of: Is it scar tissue from having the 3.8 cm tumor in the gland, or is it still a touch if cancer still remaining. The treatment for the next 12 weeks is to continue with Nicolumab infusions for every 3 weeks. We have dropped Sutent from…
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Kidney friendly pain med?
I have been trying very hard to be friendly to my kidneys since my partial nephrectomy...drinking lots of water,eating healthier, walking more....my question is what is the most kidney friendly pain medicine for an everyday type headache or other common aches and pains? I read that ibuprofen is not good for kidneys but…
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nephrectomy - the usual?
Hi, I have a rare type of sarcoma which started from a tumour in my kidney and I am due to have a laparoscopic radical nephrectomy next Monday. The surgeon says it should be fairly straightforward as far as these things go. I don't post much on this board because I don't have RCC but I was hoping some of you might be able…
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one week post op- still in hospital
I am still in the hospital after having an open partial nephreectomy. Pain has been intense, but surgerons have been stingy the first three days, which I think let to a difficult post op. I spiked temps 101 first post op night and every night since....some days I was as high as 200.6, I had a Chest CT because fever,…
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Update on my husband...
Well today was the day Mark (hubby) saw the specialist and the news isn't good but it could have been worse. First, his lungs look fine. No sign of whatever they saw on last chest scan. This is a relief. However, there is definately a new mass in the same kidney as last march. This means, he will be having surgery again…
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Pain after 6 months
I had a robotic partial nephrectomy on Aptril 11th and am now scheduled for blood work, chest x-ray and CT Scan on October 21st, After the nephrectomy I had a lot of problems with bleeding and was taken in to the hospital 4 times and finally underwent surgery again and they put 13 coils around the kidney to stop the…
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Surgical report
I just obtained my records from my surgeon as I am not happy with his follow up. Never orders anything but 3 month blood test after radical nephrectomy with encapsulated malignant tumor. But now, after reading report am worried about something else that he described about the surgery....found a "severely redundant and…
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Scan on Friday
Hi Everyone, My Scan is Friday morning at 9:30 and I am getting a little nervous. It has been 7 months since my Lung surgery and I really can't tell a difference in having had a portion of it removed. I am just hoping and praying my scan stays clear! Thanks to all of you for helping me through, I really have come to rely…
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12hr to surgery
sugery in 12hr or so. Am very nervous I've never had sugery before or admitted in hospital. But I need to get this done. thank you all for ur advise i Regained my sanity when I found this group. Dr Google drove me into despair
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Pathology report
we just got the results and tumor was 10 cm, no cancer in adrenal or surrounding fat and the Furhman grade is 2. the surgeon had guessed it to be a grade 3 prior to surgery because it was in spine so all in all, the pathology was a decent one. didn't realize how stressed I had been until I spoke to surgeon since I was not…
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Quietly Freaking Out - Lung surgery
Saw the Urologist today. It was the one month post op check. I had my left kidney out on Sept. 6. I had a pet scan 2 weeks ago. I have a 1-1/2 cm nodule in one of my lungs. The doc says that the scan shows no cancer activity but, he says, the nodule should come out. I guess this is being discussed by a tumor board (of…
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standard of care
Just curious to see what the post-op standard of care (in regards to scans) is with those in similar circumstances as mine. I will be flying to Oklahoma City in November to have my first set of scans since having a radical nephrectomy on May 29th, and by scans, I mean a chest x-ray. I am also scheduled to have a CBC…
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New plan
BLKJAK and I have talked and come up with a new plan for this "educated guess" of collecting duct carcinoma. Tomorrow I will be calling the oncologist and the case manager from our insurance company and requesting to have Mayo Clinic covered as "in plan." Then I will be contacting them and asking that they either take…
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T-shirts
Group, I am ready to put together an order of T-shirts 100 minimun. I figure that person sholp have at least 3, 1 for the morning, i for the waterpark or amusement park and 1 for evening ware. so that we are recognizable at all times. I figure with individual delivery we are looking at about 13 dollars per shirt. The…
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CT scan this morning. (10/4)
Well, today is the day. My first scan since surgery (radical left nephrectomy) two months ago. Although optimistic, I find myself somewhat nervous this morning. Meet with the urologist a week from now. Nothing most of you haven't already been through. Just membership dues to the club. Fingers crossed. praying. Izzy
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Upcoming Surgery
Hi everyone, this is my first posting and seeing that people are very supportive here, looking for some encouragement. I am having a left radical nephrectomy on the 14 Oct. and I am a wee bit worried. I have underlying health issues, Bronchiectasis, Diabetes, Hypertension, AF and have had a pleural empyema on my left lung,…
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Forum question --- looking up previous posts
On several occasions, I have wanted to go back to read posts by certain posters to learn of their background story. How do I do that? Clicking on the author's name doesn't bring up an option to view previous posts. Tried searching by the person's name and nothing comes up. Is there a way to look at a person's previous…
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Kidney Cancer - husband had it - now me
My husband was diagnosed with kidney cancer that spread to his liver. He was a heavy smoker. Well, I started having blood in my urine last month and had a full nephrectomy (left kidney) - the doctors say it's possible from second hand smoke. I'm still in shock. Has anyone heard of this? My husband died six years ago. I had…