Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines.
Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide.
Other areas of CSN are restricted to members only and cannot be found by search engines.
Head and Neck Cancer
Archives for February 2022
Discussion List
Throat cancer?
My throat has been like this for awhile (first noticed in august) but I chalked it up to dental problems. I also have swollen lymph nodes.
Methylprednisolone during H&N recovery?
Hey everyone was prescribed methylprednisolone for the coming hell of week 6. I never took it until week 9 starting on Superbowl Sunday. I think this was the magic bullet for my quick improvement. Has anyone here taken a round around my recovery time and if so what happened when it wore off?
late check in for 2022 almost 10 years since diagnosis
hello to old and new friends....want to let those recently diagnosed, that this cancer is not only survivable, but beatable too. I got my diagnosis of Squamous cell carcinoma, small tumor on rt tonsil, metastasized to lt. Standard chemo with cisplaitin, and radiation. I had immediate permanent severe hearing loss with…
Newly diagnosed cancer patients: Questions to ask your health care team
Very good info from MD Anderson Cancer Center BY Rosemary Catallo Patients and their families often come into The Learning Center, where I work as a librarian, to seek information. After interacting with people for many years -- and from reviewing the large amount of information we have access to here --I've come to…
Interesting Article
In Pdf form from the American Cancer Society here is something some of you may find interesting and it is pretty extensive. There is a menu showing topics on the left side. Cancer Treatment & Survivorship Facts & Figures 2019-2021 There are parts covered that I think would be of interest to those starting treatment and…
Surgery or not?! Tonsil Cancer
I have HP16 tonsil cancer and have yet to do my PET scan, but my ENT is thinking surgery will be an option. I am not particularly opposed to surgery but read about some risks with it. If offered surgery as an option, should I take it (not sure if it is TORS) Is surgery riskier than just radiation and chemo? Would surgery…
New Tongue Cancer Diagnosis
Hello all, In early December 2021 I was diagnosed with INVASIVE SQUAMOUS CELL CARCINOMA, MODERATELY DIFFERENTIATED. So began the journey. PET/CT, then MRI, met with Surgeon and other Oncology teams later in December 2021. Became part of a new Immunotherapy Study at Johns Hopkins in Baltimore in January 2021. I have had 2…
Post-Op Partial Glossectomy - Please Help
Hello All - I had a partial glossectomy yesterday for the left side of my tongue. It resembles a “cookie bite” out of my tongue but goes down to the floor of my mouth. My throat and tongue are so swollen I can’t speak, it’s incredibly painful. The outside of my throat is huge from the breathing tube. Has anyone else had…
Be careful on this website
It’s the internet and there are scammers. Just a word of caution to keep information secure. If someone wants to send you a Christmas card or asks for your phone number think twice.
Nausea help
I’m new to discussion boards but I really need to talk with others who have gone through nasal sinus radiation. I have been nauseous with headaches since I’ve started. I’ve had 21 treatments so far and it’s only getting worse. My doctor is saying that my radiation will not cause nausea. He is saying it’s either anxiety or…