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Button FT
Anyone have experience w/a button FT? And if so, what type. Found a site, now that I'm looking at a change I wanted to know about the balloon FTs. Found a site: https://www.feedingtubeawareness.org/living-with-g-tube/ Also others where they tell about the different types, now, and a tool the Dr.s can use- an Obturator- to…
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Two Years NED!!!
Hello Everyone! I dont check in often anymore and I’m certainly not here to brag, but I know when my husband was first diagnosed, I loved hearing success stories. Well, my husband is two years out from treatment and just got a clear scan and scope! (He had SCC HPV+ with an unknown primary). He had gone through 8 rounds of…
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Reality check
Hello everyone. Wanted to let you guys know that I had doctors appt today to address my breathing issue. ( Paralyzed right vocal cord blocking airway.) Well this is a new doctor for me who I actually liked! He''s compassionate, helpful, and caring. Very rare combination for Specialist. He''s a doctor, professor, and…
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Nasopharyngeal Cancer Treatment follow-up
I am 59 years old. I had a tumor removed from my neck in December, 2018. Biopsy was not benign. Primary tumor was in my left nasal passage NPC (Naso Pharyngeal Cancer). I had 35 radiation sessions, with Cisplatin, that ended in March 2019. I had 3 more 5 FU Fluorouracil (seek and destroy) chemo sessions, which ended in…
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one year anniversary
Today is my one year anniversary since finishing my treatment for stage 1 HPV 16 Tonsil Cancer with mets to 3 lymph nodes in level 1. The old staging would of been stage 4a. Had Pet Scan 4 months after treatment and was NED. The cancer was only on the right side. My treatment consisted of 35 rads and 3 high dose Cisplatin…
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Interesting Web Site-Medical-Just FYI
I found this web site and am still checking it out. Also has apps you can put on phone or tablet. You can look up any medical condition-- The main page-- https://www.uptodate.com/home The demo video page-- https://www.uptodate.com/home/help-demo
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Update: 18 months Post
Hi Everyone - It's been about 18 months since my husband finished treatment for Stage 4 HVP+ tongue cancer, with mets to lymph nodes in neck. (Tongue surgery, chemo, radiation, modified radical neck dissection.) Third scan just came back NED, which is especially great, since in the meantime he'd developed a "new" cancer on…
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Scar tissue
Hello, I was on this forum a lot back in 2017. My husband was diagnosed with cancer of the head and neck with his left lymph node involved. He finished treatment in April of 2017. All has been well since then. His scans and scopes have been clear. When he received his last CT scans about two weeks ago the oncologist said…
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Another Chapter in my H&N Journey-9/13/2019 Update
New Update 9/13/2019 I will try to keep this and future updates as brief as possible but with enough information. Tuesday, Sept 10, We met with my physician from Hershey Med. PA, Dr. Guy Slonimsky at Hershey-Penn State Health Lime Spring Outpatient Center Lancaster, PA. I had a thorough checkup and was scoped to check my…
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Stage 1 SCC HPV+ Journey
Hello all. I have not posted much on here but wanted to create a post that may, hopefully, help out others who are just starting their journey. To give a little back story, in April 2019, I noticed a lump on the left side of my neck. Went to my primary care who prescribed antibiotics. Those did not change anything so I…
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Checking in
Hi all H&N members: Had CT scan that showed "mass" in my throat. So doc ordered a pet scan. Had pet scan and results were NED. No cancer recurrence. That was the good news. Bad news is my left vocal cord still paralyzed and blocking my airway. I have trouble breathing. But I'm dealing with it, cause will not have a…
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New Here....need advice...throat and neck
38....was a smoker 15 years..quit this year..light smoker....drinker, beer and shots, once a week or so...drink alot of coffee/caffeine I am pretty worried....notice a small hard lump on right side of neck ...like 4 years ago....still there...i have gone to doctors numerous times....told me I have Gerd. Over the years, my…
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How much does it matter where you have your radiation therapy?
How important is it to have your radiation therapy done at a well-known institution? If you had the exact same radiation treatment plan (the same areas were to be radiated with the same dose for the same number of sessions) would it make a difference if you had this plan realized at a good local hospital or at a national…
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Proton beam radiation — experiences?
Has anyone here had Proton beam radiation for a H & N tumor? If so, what were your experience and results like? Why did you go this route?
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Another Chapter in my H&N Journey-Saw My ENT Today
Just an update 9/4/19 I saw my ENT today for my follow up post-biopsy and it confirms I have cancer of the squamous cell type. So far all my cancers have been the squamous cell type but hope this is the last. The next step is my ENT has put in for a PET scan and sees no problem getting it approved considering the biopsy…