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Newly diagnosed adenoid cystic carcinoma in submandibular gland
I was just diagnosed with this apparently uncommon cancer. I have not found very much about it online. I would love to hear from anyone familiar with this. I am scheduled for resection of my gland and selective resection of some lymph glands as well. I will be having radiation treatments after surgery but no chemotherapy…
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gag reflex
Hi folks. The last two days it's been a roller coaster. I have 12 rad days to go and I can still eat and drink. The problem is that the mucous is so much that when expectorating the stuff pushes my gag reflex and *everything* comes up and doesn't stop until it's all out, I mean ALL OUT. This is different to nausea. I do…
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Sweetblood22
Has anyone heard anything from sweetblood22 lately?
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Broke Down
Hey everybody, Went yesterday for chemo and then went across the street for rad treatment and the machine was broke down. The tech said the repairman would be there in about an hour. Needless to say I didn't wait. Tech said we will call if we don't get it fixed. So today I went to take back my chemo pump went across the…
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VITALSTIM OR E-STIM
Hi Everyone, My husband was diagnosed with throat cancer is August finished treatment in November had both Chemo(2) & Radiation(35) and now has difficulty swallowing. He has a PEG yet but only uses it for water. He is able to eat some foods and drinks ENSURE. His swallow studies show he is aspirating on some of his…
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Article
Although this literature is from 2000 and the survival rates are probably higher now especially with the new information about HPV Squamous, this article is very detailed and covers almost every angle. I read this a while back and then couldn't find it. Finally stumbled on it again. Copy and past the link to your address…
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false hope
we were told last week that the head and neck surgeon could easily remove the tumor and the tonsils. well, needless to say, we walked of that appointment elated. now back at the radiation doctor he gives us a whole different picture. the air has been knocked of our sails. we need some encouragement. we are getting so worn…
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PINO TEA - Gagging and eating difficulty
gagging new I have just finished my 30 sessions (radiotherapy only) last Thursday. My problem all through this has been the taste of food/gagging. My throat is sore but not as bad as the horrible mucus in my mouth. Doctor said just to keep spitting it out. The salt/bi-carb (in warm water) does help slightly and I believe…
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Kick-off Monday the 15th - 0800 Hours
Another one walks into the flames. Tomorrow is Day 1 for my Chemo and Radiation odyssey. Looks like they will burn me for 38 days, ending on May 5th. I will be poisoned in three rounds, in week 1, week 4 and week 7. My chemo oncologist is planning to infuse Cisplatin over a two-day interval, for each of the three rounds.…
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Mild persistent cough
I am 18 months out of treatment for Squamous base of tongue. For the last couple months I have had a little annoying cough that just feels like a little tickle in my throat. Not a wet cough. I had a cold/flu that was pretty bad and seemed to start it off though it may have been completly unrelated. I always look for simple…
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Eating and coping with recovery
Hi, My name Is Mary Ann. I just had my 4th surgery for oral cancer. It has been 7 years since the last tumor, and I guess I really thought I would never have to do this again. My story is long and and I won't bore you with the details. I just would like some suggestions about eating. Also being seen in public. I will look…
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Pet Scan again
Hi everyone!! I haven't been on CSN for quite some time. I do check in and see what's going on:) I wish everyone the very best, always. I go for my first PET scan at the end of April. We don't have a PET scan here on Vancouver Island, so I will be going to Vancouver to have it done. I have a few questions, if anyone could…
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For Micktissue
Mick a lot of us here are a little worried because we have not heard from you in a few days, hope you are doing well my friend. I know the treatment is more then likely getting very hard right now, just hold on the finish line is not to far away now. All the best to you my friend.
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Amifostine
Hey everybody, Just got back from rads, and the doc discontinued my amifostine. It made me real sick Wednesday, and I threw up after rads. I gotta tell you guys, that is something you don't want to do. Felt like I was breathing fire. It was terrible. But i guess it's one thing I won't have to hassle with now. I mean it let…
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Trigeminal Neuralgia
8 years after treament, I have recently been crawling the walls with extreme pain in the right side of my faace - very like the pain I had during radiotherapy, but just on one side, as if I have severe ear ache, dental bscess and broken jaw all at once. Docotr has finally said it is trigeminal neuralgia, and has started me…
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First Scan Tomorrow, Need Prayers
Hi everyone, Im going this morning at 8:30 to have my first Pet/CT scan since my last treatment this last December, and I humbly am asking for any prayers you could say for me. I am really nervous, hence the fact that Im still up and It's 12:15 am here on the east coast. But seriously, any prayers and luck is greatly…
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Acupuncture
I have read on this website about using acupuncture treatment to help restore the saliva glands. I am now out of treatment (35 Rads) for just a little over three years and still suffer greatly from dry mouth. I have used quite a few products to help alleviate this problem with little or no avail. I have tried the drugs for…
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interesting decision by deputy chief of american cancer society?
Headline news in the Chicago Tribune on 3/8/2010. Deputy Chief medical officer of the american cancer society refused to have a CT scan done citing the risk for cancer was too high. It seems an imaging test revealed a small nodule in Dr. Len Lichenfelds lung. Article does not mention type of imaging test or why it was…
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Ear pain
The longer I wait for treatment the more pain I have in my left ear, it was my left tonsil that had the tumor and both tonsils were removed. The docs told me that radiation will take care of the pain. I have my trial run this Wed. 3/10/10. And I will start radiation either on the 11th or 15th of March. Has anyone else…
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SCC of left oral tongue and floor of mouth
my father was diagnosed with left oral tongue cancer and it is also on the floor of his mouth.. has anyone out there had any experience with this? the doctor said it was rare, it only accounts for about 3% of oral cancer, now i have come across so much information and spoke with different people on this board regarding…
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Newly diagnosed metatistic SCC unknow origin
Looking for others with insight into treatment and diagnosis. Newly diagnosed with stage IV (a) we think, meet with docs Tuesday. Surgery last Friday removed tonsil and 1cm tumor did multiple tissue biopsy's tonsil and all biopsy's negative. So essentially we have a PET scan with two neck masses and needle biopsy's of the…
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Hi Fellow Fighters!
Just wanted to check in and say Hello. I do read all your posts because you have all become my family. I have been busy with my 80 year old Mom, who has been it 2 Nursing Facilities, and hospitalized twice in the last 5 weeks. The care in these places are incompetent, and I feel sorry for the elderly who have no one to be…
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More than one surgery?
Hi there I haven't posted in a few months but was hoping someone has an answer to this question. My mum's tumour in her sinus cavity was not completely removed due to the location mum had 5 weeks of radiation in Nov 09 not a high dose because of the location of tumour that was left. Well now the bugger has come back my…
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Dental Problems
I am having major dental problems three years post treatment for throat cancer. Already had several crowns and several fillings. Is it true that you have to have hyperbaric oxygen treatment before having teeth removed. Any dental help I can get will be appreciated. My teeth were not very good at beginning of radiation,…
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surgery/radiation
i am now thoruoghly confused. was all ready for the torture of radiation, and then went to a head and neck surgeon today and he says he can get it all with removal of the lymph nodes and the tonsils. any imput???????
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Skiffin16 - Update
Friends, Just a quick update…. I had my routine CT and blood work this week. Yesterday I went for the follow-up consultation with my Chemo MD. All of scan images were good, nothing new to be concerned about. All blood work is good, actually finally after almost 15 months my blood is all back in normal ranges. Kidney and…
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Skull base surgery -Retropharyngeal Node
Has anyone had any experience with Retropharyngeal Node resection? It's between the sinus cavity, ear and eye. I've developed this nasty little tumor and it's encroaching my carotid artery. I was dx with Medullary thyroid cancer 3 1/2 years ago. I've had 4 surgeries including a trache and 2 rounds of radiation, 1 external…
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MRI and Biopsy Report!!! Help Needed
My father got the results of a TONGUE biopsy today..in the end it is written that "squamous carcinoma " MRI report suggested that.. enhancing soft tissue lesion seen in left half of tongue reaching upto midline.It measures 50 x 22 x 28 mm in AP,transverse and cc axis.the base of toungue is uninvolved Please help me to…
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Feeling Cold
Those of you who have been through treatment: What's with this feeling cold all the time. Bob(my husband) is 5 months out - all is well, but he is always complaining about being cold. Anyone else out there feeling "chilly" when no one else is????? Just wondering?
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just diagnosed with salivary gland cancer
Hi, i'm new to the site. I'm only 21 and i was diagnosed with acinic cell carcinoma of the parotid salivary gland last month. i am 3 weeks out of surgery (they removed most of it but couldn't get to some that was below my facial nerves) and am waiting to move up to Seattle for neutron radiation. I think i'm still in shock,…