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Emotional Support

Archives for May 2009

update on mom
BAD NEWS GUYS: my moms first chemo was not working...so she was trying a different chemo that dr kok said might work well now friday 22nd of may she had another scan to find out that this chemo is not working now what im to the point i dont know what to do...now on top of it all my dad is sick ugh i dont know how much more…
Really scared and feeling really alone.
Hi, I have recently undergone surgery to remove my right middle lobe of my lung. I had a carcenoid lung tumor. The doctors tested the surrounding lymph nodes and they were clean, thank god. I had the surgery 3 weeks ago and I am home recouperating. I actually feel physically pretty good. The doctors said they will follow…
What a difference a second opinion can make !!
I just came back from an appointment for a second opinion with a new rheumatologist after the first one ran no tests, took only 10 minutes with me and did only one physical test yet came up with a diagnosis that basically came down to 'stress'. I was reduced to a wheelchair 5 years ago because of debillitating pain in my…
Gist (Gastro Intestinal Stromal Tumors) Cancer
Does anyone on here have this? What meds are you taking and how long have you had it? I was diagnosed in 2007. Took 400mg Gleevec then 800mg. Cancer is growing again, now i have to start Sutent 50mg. I will start on Wednesday. I would like to visit with someone who has the same cancer as i do. Thank you. Evie
7 cm nodule on my lung?????
I had an extreme coughing fit - ended up in extreme pain - went to the ER - had an IV catscan - no blood clot thank god! but found a 7 cm nodule - what does it mean??? i am probably getting ahead of myself - go see pulmonary doc on tuesday....but of course still freaking out till then. Then my mom's voice whispers in my…
body image
Has anyone on these boards had plastic surgery after cancer to undo what the surgeons did? If so did it help? I'm not coping with my scars at all or the daily reminders I'm still having from colon cancer. I'm still very bitter about this. Don't tell me to focus on what I have to be thankful for. I just want to look at…
Lost My Mom to Cervical Cancer One Month Ago
I lost my mother one month from this coming Thursday to cervical cancer. My Mother was 63 years old she would have been 64 next week. I am a 33 year old married woman with no children. Since losing my Mother I feel like I am 5 years old. I cry and think about my Mother at least 30 times in a given minute. I call her cell…
Another Year Gone By
Recently I celebrated another birthday, my 52nd. As with most birthdays since my illness it has made me reflective. I spent my birthday with my husband riding in the foothills of northern California enjoying nature. Along our drive we found ourselves on an old road that led to a watering hole popular with teenagers and…
myelodysplasia syndrome patient
i'm Dynie,27 years old. almost 3 years ago when i was diagnosed with MDS. over that years is a monthly blood and plateletes transfusion to get through this life. i know that there is a procedure called bone marrow transplant that will help me get better but so expensive and i can never afford it. hope i can find plenty of…
people who dont understand about mood swings
what i am trying to say is that people who dont understand about a person who has cancer and is trying to find their way back to being so called normal . they understand that sure we are human like them but we had this dreadful illness and are trying to get their life back on track so everything around them feels normal…
Vegas, Baby!!
Hi all, Just wanted to let you know that my husband and I are going to Vegas at the end of the month. Can't afford it, don't care!! Gotta get away from doctors, nurses and people with needles!!! Hope all of you find an escape once in a while, also. I would tell you more but, what happens in Vegas... Have a wonderful day!…
SSI and Medicade
Hi Everyone, I had a phone interview this week with the Soc.Sec.people. I have Gastro Intestinal Stromal Tumors (GIST). I was denied help because we have life insurance(just enough to bury my husband and myself) and a very small savings acc. The savings i can understand and could pay 2 farming bills and it would be gone.…
friend needs a hospital
i have friend with a 19 yr old daughter who found out last saturday that she has stage 2 cancer. one problem is the mom is divorced from a guy who doesn't pay child support much less carry insurance for his kids. she has applied for medicaid or medicare. i am not sure which is for her case. but it is government and they…
Update on mom
So we have found out that the chemo is not working so they are trying another kind of chemo she goes monday 11th to get her 2nd one of this new one they are tring then they are going to do a ct scan and see if it is working if not they are going to STOP the chemo :(
Living alone with cancer
Would like to hear from other people who are dealing with cancer alone. I have talked with people who have a spouse, kids or just have a room mate. I am alone and would love to get some new ideas how do deal with this.
how will chemo affect my partner when we have sex?
We are wondering if the chemo will affect my partner and if we have a waiting period after chemo treatments before we can cuddle and have sex...
Going back to work
Hi, I have a problem, I got myself a job 3 weeks ago which I love, the people are great and I really fit in as I am somewhat of an expert (ex-as in Has Been, and Spurt-as in Drip under Pressure) In horticulture. BUT My husband is really having a job dealing with being alone all day when we used to spend every hour in each…
Spring- A time for renewed life and hope!
What a beautiful Day!! I sat on my patio and watched the birds play in the trees and my animals laying in the grass near me, enjoying the weather and the chance to bask in the sun. I hope that all of you can enjoy the season as well; we may not be in the best physical shape, but the new growth of flowers, trees and baby…
my husband died and i miss him
Angel passed away april 16 2009 Now I have to go on alone how do you do that after being married 35 yrs he was 53 and i am 51 Just going home is heartwrenching for me because i will never see him againor talk to him like before. I am a wreck. he did instill in me to be strong and i am trying my best. michelle
I've lost too many friends
I am recovering from successful therapy for nasophyngeal cancer. Since the beginnng of the year, I've lost 3 friends to different cancers - kidney, throat and brain. I just want to tell Brenda, Sandy and Mark that you will all be part of me forever. I'm learning not to take every doctor's checkup for granted.
Doing the right thing
I have been away from the discussion boards for a couple weeks and its nice to be back. Last week my sister passed on after fighting a genetic illness for 48 years. She was born with Hallerborden-Spatz, a rare disease that allows iron to build up in the brain and replace brain cells. She was quite normal until two years of…

Emotional Support

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