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Finally
Surgery finally scheduled for April 7th barring any complications. I see the Oncologist on the March 19th for follow up then the preop team for my instructions on getting ready then report for surgery on the 7th fingers crossed no more problems. But while looking at Drs notes after last Ct scan they are mentioning…
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might be useful
http://clinicaltrials.gov/show/NCT01522820 "A Phase I Clinical Trial of mTOR Inhibition With Rapamycin for Enhancing Intranodal Dendritic Cell Vaccine Induced Anti-tumor Immunity in Patients With NY-ESO-1 Expressing Solid Tumors"
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Peter McCallum centre Melbourne Aust
Anyone been to this centre. Experience? amyone had lung surgery here? Good doctors? i was hoping for,microwave therapy but my largest tumor 62mm might be 1cm too big!!! rhen have to,hope for surgery
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UPDATE - One More Treatment
An update for the below... They put him on Cymbalta to help with the hand and feet numbness. This caused him to have a seizure this morning. He is okay, though. Scared the crap out of my mom though. Seizures are scary, but my fiance, his brother, and his sister all have epilepsy, so it's a "normal" part of life for us...…
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Update,
Got a good call from the hospital yesterday,they informed that "part 1" of my Radio Embolization test went well and I am a candidate for this procedure, March 24th. I wish they could do today, but I understand that there's a ton of number crunching involved and everything needs to be perfect. There was some talk about…
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Stivarga (regorafenib) did not work
After 4 months on the oral med Stivarga (regorafenib), we got the results of Pat's latest CT scan that the drug is not working. So, he was taken off of it. He was in the hospital in Jan for 6 days fighting an infection. A visiting nurse was coming to our home every week to help Pat avoid a return to the hospital.…
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MD Anderson
Will be on my way Friday to Houston for a Monday morning appointment! Was scheduled for my 1st treatment today but got the 5pm call yesterday for MD. Will meet Monday, get Lord knows what done to me on Tuesday and meet again Wednesday. A little anxious! but ready to get this fight started. Getting my PET put on a disk to…
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been a while aggie0053
have questions been almost 4 yrs clean the other day pain in stomach had blood work and c scan gall bladder stones pain went away the next day had to see my dr. he checked the results and said 4 lymph nodes in stomach enlarged don't know what it could be, sending me to a dr tomorrow, just worried
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good CT scan
As a pretty old timer here now, I am sorry I do not post as much as I should. Dx 2006 and now 2.5 years clear after 4 thoracic surgeries, liver surgery, colon surgery, 10 months of folfox, and a couple pulmonary embolisms... many of you are going through worse and I understand the loss, unfairness and pain. It was…
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FOLFOX Side Effect Questions
I had my 9 of 12 FOLFOX chemotherapy today, and I had a couple questions. It should be noted that they pulled the 5FU bolus (I still have the 2-day fanny pack) last time because my labs kept tanking and they didn't want to keep delaying treatment. So my first question...does anyone ever feel kind of "panty" the first day…
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Just saying
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CT Scan today
Well VA moving ahead quickly now. I saw onc weds and she asked about bowel movements and got concerned when I said it had been couple days and prescribed medicine for that. Then called yesterday and said Inwas to be admitted on Monday in prep for surgery after talking to surgeon. Then they called this Morning and had me…
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Update on Craig's pain surgery
The following is from Kim, Craig's wife: I wanted to thank everyone for all the prayers and support. He is home and resting. It may take up to 10 days before we know if it worked. Marie if you want to let CSN friends know please feel free to share with them. I know some of them may want to know. Let's all offer our best…
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Maintence Chemo options: Xeloda vs. 5FU?
Mike's last scheduled treatment is on Tuesday. Due to the study he is partaking in, we will be moving to maintence chemo. He is currently taking Avastin, Leucovorin, Oxailiplatin, Irinotecan, and 5FU pump for 48 hours. For maintence chemo, he has the option of doing Avastin, Leucovorin, and 5FU pump every two weeks or…
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Laz is NED!!!
I just got my PET Scan result and it shows no cancer activity now anywhere, including that seminal vesicle that looked abnormal on the CT. So after almost 10 months os treatment and fear I'm considered NED. I'm very relieved. Thank you so much for all of you. Could not do it without you. Wanna dedicate my happiness to…
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Scan results...:-(
Friends, Here's the lastest. I meet with a Vascular and Interventional radiologist today to discuss radioembolization for the 20 or so cancer spots I have on my liver. He also addressed doing chemoembolization for the large tumor I now have on my adrenal gland. Today I found out that my cancer is no loger respoding to to…
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Im afraid that my brother is going to pass on sooner than I expect
I am pretty new to this site. I am hoping someone can tell me what to expect next. My brother age 42 was diagnosed with stage iv colon cancer and liver mets on 26/11/2013. He has gross ascites and needs to have a tap after every 5 days, He has gross ascites which is very uncomfortable and painful. He has always been health…
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How long does it take to recover from Chemo and Radiation?
I know my Onc and Rad Onc told me that recovery could take up to a year or more, but still I thought that I would bounce right back. I didn't! I am seven months out from treatments, and still work through several side effects. - Neuropathy in both hands and feet. There has been great improvement in the hands, the numbness…
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Surgery Tomorrow
My apologoies to the group for being missing in action.....that's how bad the pain is right now, just crippling and I'm mostly in bed all day, it's been a bad scene. The pain pils dull the pain but cannot get me on my feet for long, just enough to do what what I gotta do....then take the pressure off by laying down. Pills…
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lump in throat
I had chemo #3 last Friday and for the last few days have had a feeling of having a lump in my throat all the time and wanting to swallow. Has anyone else experienced this and know what it might be ? Thanks. Sue.
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lisa2012 Irinotacan Question
Hi Lisa, Im Rachel, I read that you are on Irinotacan and wondered how you are doing on that chemo? I may be starting it soon as my Xeloda. Eribitux and OXY aren't working and CEA is now going up again. I heard that it's a bit harsher then what I am going through on this chemo cocktail What are the side affects, other then…
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Cannabis oil Video
I've been on this for a couple months and CEA is now going up, but I learned that I should be using it morning and evening. Going to give it another try. I almost, yea almost. feel like saying heck with chemo and just try this alone.... Hate the thought of chemo breaking my body down. http://youtu.be/WRJxauzFfNMc
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update just needing prayers and cyber family love
I know its been awhile since i have updated you with all my recent problems.after the stent was put in my bile duct because the tumor on my pancreas was blocking it i gained my strength and continued on with irrtiatecan and avastin.i had this dose even lower because liver enzymes were still up.then in 2 weeks went in for…
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CT Scan in an hour
My ONC also told me yesterday no surgery to the 3 lung mets while I have a spot in my liver. But if the liver spot is gone he will do the lung surgery. He also told me that I was on chemo for the long haul; this was the first time he didn't look at me in the eye. CT Scan today, CEA should be in soon, it went up 7 last time…
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Avastin
Looking for any information about avastin. My mom is dealing with incurable cancer and her dr told her yesterday that he was adding avastin to her chemo treatment that she is getting tomorrow. Side effects sound scary. Thank u so much!!! God bless
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My sweet Sister
Hi all. Where do I begin.....my sister was diagnosed with Colon Cancer 12/24/12 and told she only had a year, maybe less. She, thank God, is still with us but is beginning to decline rapidly. The cancer has spread to her liver (about 80% filled with tumors), her Kidneys, her stomach lining, her pancreas, and her Sternum…
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Status Check Call
Hey, I have an idea. Wouldn't it be nice to see everyone's status in a single list? If we post a Status Call on a monthly basis we can each comment on it with a short summary of our status... Our status should include Name, Stage, Current Status, Current Hopes It would make tracking and sending out positive thoughts /…
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Waiting Game Pt 3
HI All! Well we have a plan! I am going to start Folfiri w? Avastin again. I responded well to it before, and kicked some cancer hiney for me! We will re-evaluate in about 10 weeks for surgery or more chemo. I have a tumor next to the rectum. I have a couple more in the peritoneum near my belly button. One can actually…
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Katie Lost her First Tooth!
This past weekend my little angel, the child whose birth forced the discovery of my own illness, lost a tooth. Many of my acquaintances may not understand the significance but I know the folks here on this board will. During my c-section the attending surgeon to my OBGYN felt a node beneath the uterus. She called for an…
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Any Craig updates?
Has anyone heard from Craig or see any FB updates? Just been thinking about him a lot and missing him around here!