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Colorectal Cancer

Archives for June 2013

Neuropathy
Steve should be starting Folfirinox this week. It will be the first time he has had Oxilaplatin. I realize there has been a ton of discussion regarding the neuropathy that is caused by the oxy. Unfortunately, I haven't payed much attention as it has never been an issue. I am wondering if there is anything he can do to…
Am i hoping for something impossible?
Hi all, Finally remembered my password to get on here and comment, have been keeping up to date with you by looking but have been quiet for a while now.... Mum has been off chemo after a clear scan ( second time around) for 5 months. She informed me today she has booked in for a scan after having some pain in her abdomen.…
Having resection July 12-what should I eat when I get home?
I'm sure I'll get information before I leave hospital but was wondering what worked best for all of you.
Big decision and not sure what to do
Well my husband just had another round of scans after completing radiation to the 2 largest tumors in his liver. The results were favorable but now the other 2 tumors in the liver have doubled in size and he now has peritoneal mets. We are so disappointed. They said he needs to start back on chemo but not sure which chemo…
Sore - Raw throat. wow this is bad -- Any help or Advice??
Recieved treatment #2 of FolFuri + Avastin this past Wednesday + the 5FU pump for Thursday and Friday. Friday, was the most miserable "side effect day" I've ever had. (after over 55 chemo and 10 radiation treatments) in all of my days of dealing with Cancer battle... that day was the worst. Mouth sores are there, but the…
Liver Flutters
Has anyone experienced liver flutters....it's not pain but a flutter as if there is movement within the liver? I just started feeling this today. I have been a lurker for a while now and just want to express how much comfort, care and good information I have recieved on this board. I plan to participate more in the…
It's been 6 years now
Here I am at my 6th anniversary after being diagnosed with stage iv colon cancer with mets to the peritoneum. I’m alive and well with most of my body parts intact. I’ve lost bits and pieces along the way, but nothing vital. I’ve had three surgeries, one was HIPEC, and 56 rounds of chemo. I spend a small fortune each month…
Dietary Methionine restriction and cancer.
"Numerous in vitro and animal studies demonstrate the effectiveness of dietary methionine restriction in inhibiting growth and eventually causing death of cancer cells." "Another potential strategy for optimizing the clinical effectiveness of methionine restriction will be to combine it with chemotherapy. Several…
I'M PISSED AT MY DOCTORS!
I live in a very affluent city in Southern California. This city is so rich, attractive and expensive that supposedly it attracts the best professionals from the best schools paying great salaries. I am a dentist myself and I know first hand if you are not providing first class service here you will have hard time making…
anyone hear from vickilg?
Ive been thinking about Vicki. Does anyone know how shes doing?
Folfirinox?
Has anyone been on the Folfirinox regimin for colon cancer? I went in for chemo tx #3 yesterday (FOLFOX) and my onc decided to hold the oxaliplatin this time due to severe neuropathy. She said that she would continue the oxy in two weeks in a lower dose. I picked up my itinerary for the next visit and on the way home…
First post-Hallwang CT results
I know some of you have been following my experience at hallwang with interest, so I wanted to post the results of my first post-treatment CT scans. Pete and Ren W are also taking treatment in Germany (not all at Hallwang), and have been including treatments, diets, supplements, etc... that Hallwang does not offer. I went…
its always been the immune system, your onc need to be educated, asco 2013 is a watershed.
i love being controversial. dont read any further if you dislike alternative therapies and only want to do convnetional therapies. so here goes a scud missle into conventional oncology. the latest tests allow us to know your prognosis by measuring the degree of til inflitration into your tumours. til = tumour inflitraing…
WHY DO YOU THINK YOU GOT CANCER?
One of the most frequent questions we ask ourselves is : Why me? And What did I may have done to increase my chances of getting cancer? In my case I'm doing a genetic test so we will see. In Eastern Europe each winter we consumed a whole pig in the form of bacon, sausage, and ham that was heavily smoked, which is the worst…
Colon Cancer Alliance Webinar Presentation
Don't know how many of you called in to the Webinar yesterday evening. The oncologist had some very interesting slides he presented. He talked about clinical trials, new breakthroughs in research, and new medications. Here is the link if anyone is interested! http://www.ccalliance.org/webinars/asco_061913.html Deena
Moms results
All clear. thank you so much for being there forbus
Chemo's done. What's next?
So, my very best friend (closer than a sister) just had her last chemo treatment on Monday. Chemo's been hellish hard for her (that will likely surprise none of you), but she stuck with it. My question is, what's next? I want to be able to support and help her as much as I can, but I thought it'd be easier to do that if I…
Nausea meds: What's your drug of choice?
I'm finishing up treatment #2 of FolFuri, Iriritecan + Avastc biggest sideeffects I'm having are consipation, gasy stomach, hick ups, along with the watery eyes, runny noses.... the usually. but the nauseaousness is somethinkg stronger than I expected. Vomiteding is also daily but doesn't seem to last long. I'm trying…
really!!!!! hubby says I am always angry
it was like a big reveal for me today my friends.... out of the blue hubby tells me he thinks cancer has changed me forever...I am filled with anger says he.....and the anger results in my being constantly piz-ed off with him!!! I must confess to being quite shocked....totally agree that many years of stage IV have changed…
CT scan today
I had my CT scan this morning. They called me at 4:30 with the results - all clear! I always get the radiologist to fax to Md so I can get results same day. Who can stand to wait - not me! Now I can go on our trip to Amaterdam, Netherlands - then on 7 day northern fjords cruise and a few days in Paris after, with a relief…
Here’s The Deal….Test Results Now In…
Before we begin, I just wanted to once again thank all of my friends here for their caring and compassion. The outpouring of emotional support was incredible and I felt kind of guilty rattling everybody’s cage, before I had the answers in, but don’t think I could have bit my tongue for that long anyway with those type of…
Just want to say Hi.
Its been awile since I lurked or posted on the site. I just want to say Hi to those I m familiar with and all the newer folks. I just had my 2 year scan and I'm happy to say its all clear. I live with permanent neoropathy in my feet and a clostomy bag but I can deal with that if I'm all clear. So Hello to my old pals and…
I miss Cynthia/Devotion.
I can understand why she might not feel like rejoining our community, but I sure wish she was still around. Especially with everything going on lately. That's all. AA
Words of comfort and care
It seems that we are having a spell of less than good news for our members, cancer related or not. "Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand." ~Emily Kimbrough No matter our own burdens we each reach out to hold another and offer a shoulder to cry on, an ear to listen or a…
Just Wishing For A Break(Not Cancer Related)
This is not cancer related, but has been another day of extreme sadness for my family and me. We were preparing to go to the cabin to list it with a realtor. My son's dog was all happy & excited as she likes to travel. As she's done a hundred times before, she leaped for the Jeep seat. She lost her grip and fell flat on…
as arnie said I'M BACK, another postcard from duderstadt
the meter is running, stepped out of first class onto frankfurt tarmac with 10k worth avastin as my secret weapin, its time to start swinging. starting gamma delta today. gym and ketogenic and saunas, back into old simple effective healing routine. atarting albendazike today, i this is the last post, see you in first class…
OT-just had a fire and a cancer based vent
The gas line caught on fire because the cable company wrapped the cable around the meter Which caused static electricity. Why does drama always happen around my mother's scans when the stress level is already up there? Why can't we have just one freakin calm summer? My father was diagnosed with bladder cancer in the summer…
lung biopsy
After seemingly beat colon cancer, I apparently now have a tumor/with limph node involement in my lungs. July 8 I go for a biopsy. Will be on pins and needles until then.
Running out of options
Well I knew this day would be here some day but never thought reality would be so blunt. I have scan results today and to my suspect ions my onc said Styrvaga, chemo pill I've been taking since January were nno longer being effective. I've'twas orinally dx with stage four colon rectal with meta size to liver and later…
Thank you
Hello everyone. I want to thank you for your prayers and kind words of encouragement. I went to the doctor today and by GOD’s grace, I am totally cancer free. Liver and blood levels are normal. The surgeon will be removing the port from my neck shortly. I truly could not have made it without my prayer partners and this…

Colorectal Cancer

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