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In this days , l Want to thank all of you ...
Your generosity ,help , optimist and friendship your joy of life ,support, and wisdom. It's been 4 years since starts on this jurney, 4 years of pain and frighness ,4 years of feeling like a zombie, but also discovered that has been 4 years of friendship ,solidarity, love beyond my little circle of family and friends .Also…
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Christmas and New Year.
Just like to wish everyone a great Christmas, and hoping that all your dreams come true in 2013.
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Maglets
Hope you are enjoying your holiday with your kids. My mon and I are busy making edible fruitcake and hummingbird cakes. She is so happy that I am at home. Yesterday we had a girls day (no boys). My mom sister and I took my 4 year old niece to the children's museum, to get her nails done and out to lunch per her request.…
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how many more ?
how many more xmas ? I asked myself the other night. As I walked through sydney city looking at xmas display windows, xmas trees really holding both the kids hands very tightly amongst 1000s of other families. I felt like this xmas is extra special for us. i asked myself quietly how many more xmas's with the kids, wife and…
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Just feeling sad...
Feeling a bit low today. I can't help but think about how in past years, I was out hustling and bustling for those last minute things for the kids. Amazing how life changes in the blink of an eye. Judy
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hello
haven't been on in awhile everythings ok 2 and a half years clean just wanted to wish everyone a happy and peaceful holiday
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Vectibix only...an offhanded Christmas gift
Ok,, well as you may recall I have been very confused by the results I have been getting. I did the usual Folfox initially and still 6 months later mets were found in my lungs.. tiny yet many.. so then my first onc wanted on give me xeloda.. didn't sound right to me since that is 5FU which I had been on for most of 2011…
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My CEA
Over the past couple of months, my CEA has been on a steady incline. This week, it's almost doubled again jumping from 939 all the way up to 1739. Me and the onc have been arguing with the insurance company to get a PET scan done like right freaking NOW. The onc's office says they keep getting denials and the insurance…
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Attention Maggie
Hi Maggie Is it Greg Hebert that you were referring to earlier? If so, small world. He is well known in my area as a radio host. Very well liked man. Recently voted Most Inspirational Person of the Year for his courageous fight and for raising thousands of dollars for research. He was a beloved member of the community. He…
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site problems
The developers are working to address the many issues that have occurred. The upgrade worked perfectly on the dev site; it's very disappointing that so much has gone wrong. I'm very sorry for the situation. :-( Greta
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okay taking advantage
okay so here is the deal....we can only post..so I am going to take up your time and tell you a Christmas cancer story. I have one daughter only who married last year at the age of 29 .....her husband (Jewish) love him love him.....has a younger sister who married a young man with jaw cancer .....diagnosed 3 years…
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Video Test
http://vimeo.com/27961375
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How do you say slow......
HoHoHo this site is slow(er) OMG! -Pat
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me too
ahhhh me too.....nice big wide open look to it but it will not respond.....wait and see..... mags
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Glitches
I'm sure that there are going to be several glitches for them to fix before all falls into place. I'm not able to comment either. It's going to take some getting used to but glad to have a new forum modification. Thanks CSN for the upgrade. Kim
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Can't add comments
It wants me to preview first but I can't post. Was trying to post to Pepon's post that hoped the pm's come back. This I hope is just a simple glitch that can be fixed soon!! Winter Marie
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Is this a temporary malfunction or it's part of the design of the new software ?
Why if I create a thread in the display says it has been created by other? There is no way to know who is writing unless you open all the threads ! Crazy. Also concerning the avatars ,do I have to load my avatar again? . Hugs mates!
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low cea stop chemo
MY daughter just got her cea back. after colon and liver resection (without chemotherapy) her cea is 1.3 . She has been seeing a N.D..Before she got the results back she started chemotherapy (her second round) has anyone stopped chemotherapy after a few treatments . Would love to hear from someone who did.
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Hi mates this is FRIDAY any interesting plan for the weekend?
Sorry to be so late! But it didn't work until few hours ago!. I'm having lots of plans , family, friends ,shopping , every body is here , enjoy the holidays my friends!. Hugs!
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CEA steadily rising, new chemo Irinotecan
Well, as I thought, the CEA is steadily keeping up it's rise, up to 24 this week, so onto Irinotecan every two weeks. New chemo for me. This sure bites, but what is one to do?? Oh, well, onward to fighting it a bit more. Winter Marie
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Tongue Sores
Oh the irony of life. Just yesterday I told my friend that I was feeling good. God laughed and today I woke up with tongue sores and foot pain. I am sure I was not out partying last night so this is chemo related. Doctor called in a prescription for Magic Mouthwash. Does anyone know how quick this works?
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Can't blame the US Postal Service
The circumstances of life, commitments to family, and the delay in finding the holiday spirit within, has led to my not getting my Christmas cards mailed out. So, instead, I have placed on my expressions page for you. Please be sure to click on the image to enlarge it. May each of you find much in your hearts to celebrate…
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From The Frying Pan To the Fire..........UPDATE
Just jumping in to wish all my friends a pleasant holiday season. Hope all who celebrate have your shopping done. This weekend, it will probably be a zoo out there. My hubby is still in the hospital with A-fib, CHF, and failing kidneys. Next option may be dialysis. He told me a few minutes ago that another team of doctors…
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Dealing with tooth today....
Well, it's been long enough that I've been off the Avastin that I can have this tooth dealt with....been on I.V. anti-biotics (that's a whole other long story....this time of year at emerg. is shoulder to shoulder with really ill people with viruses....last thing I needed to be in contact with). I'm a nervous wreck!! Weird…
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Can pet scans give false positive?
My mom had full body PET CT scan ystday - 1yr followup after surgery,chemo and radiation treatments for RC IIIc stage. It said "Impression: Metabollically active focus along right internal iliac vessels with small nodular soft tissue-this could be the metabolically active lymph node - needs interval followup for stability"…
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Happy Holidays to All:
Just stopping in to wish all my precious Semi Colons a most wonderful holiday season filled with family, friends, good food, love and comfort. Now I have got to get packing as I am leaving town to spend several days in Chicago with my daughter. Hopefully the weather does not impact my train travel too much. I miss George…
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Fight, fight, fight!
Good read. http://www.google.com/search?q=youtube&ie=UTF-8&oe=UTF-8&hl=en&client=safari#q=Bluetooth+keyboard+install+iPad+site:youtube.com&sa=X&ei=sajOUJ_tD9GUjALo1ICADA&ved=0CEEQ2wE&hl=en&client=safari&tbo=d&bav=on.2,or.r_gc.r_pw.&bvm=bv.1355325884,d.cGE&fp=f683588d6988a423&bpcl=39967673&biw=641&bih=421 Happy holidays!…
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I can see you again!
Hi Guys, I don't know what has been going on but everytime for the last couple weeks I wasn't able to get here; was there some technical issues or was it me? Any hoo... I just wanted to check in and wish everyone a Merry Christmas and let you know I'm a lurking. ;) Lot's of love to you all. Brenda
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Folks, we have shrinkage!
Scan results today showed a .2 cm shrinkage in one tumor, and a 1cm shrinkage in the largest tumor, and the others are not lighting up as much; they figure its necrosis!! Robert hasn't had any treatment for 5 weeks due to the port removal. He does have a small linear clot it the vein above where the port was. No blood…
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Planned CSN Outage
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff