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The other shoe has dropped...it's back
I'm losing it here....two years out with triple negative....and it's back....found an egg size lump right above my clavicle on Friday..seemed to appear over night...been having some breast pain and other issues for several months...saw my oncologist today...I was hoping it was a swollen clavicle lymph node from the oral…
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See what happens when we travel on the Pink Bus together????
The GOOD news is ...after a long afternoon of breathing tests, results and comparisons with what is the norm and how I compared with them~ and a physician who actually spent 45 minutes with me~ his conclusion is my cough is NOT cancer related!!! Another reason to change oncologists? Upon checking the CT scan from March,…
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I've been MIA but never stop thinking about all of you.
I took a nasty fall off the top step of my brick patio and ended up in the ER for 5 hours. My left arm and half of my mastectomy chest is black, purple & red. I had a hematoma in my arm so stopped taking baby aspirin. Thank goodness I didn't break anything. My thigh is bruised as well as low spine area. The ER dr think my…
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Diep reconstruction
Hi. I had a double mastectomy and now have expanders in place. I've had them in for several months because I had radiation in Sept. '10. I have been thinking all along that I would have implants put in when the time comes (most likely October '11). Now I am wondering whether I should look into Diep reconstruction. Is there…
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Mammo's yearly not every 6 months?
Just went to see my surgeon today and he started me on tamoxifen, told me to see him in 6 months, and that I will get mammo's yearly? I thought standard procedure was every 6 months after having b.c? While he said HE will see me every 6 months for an exam, shouldn't I be getting mammo's every 6 months also? He is my main…
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Did your hair or nails start growing before taxotere treatment was over?
I've had 4 A/C treatments and tomorrow will be my 4th and last taxotere treatment. My hair started growing back a few weeks ago, along with my nails....Has this happened to anyone else? Thanks Renee
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LYMPHEDEMA WRAP
Went to see a specialist today because my arm swelling has been increasing. I have had PT for lymphedema before but this is the first time they have wrapped it, it will remain wrapped for a week then we will see if the swelling has reduced. She is also giving me several exercises to do. I'll let you know how it goes. I…
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Taxol and ear issues
I finished 4 rounds of A/C and had my first round of Taxol a week and a half ago. I don't know if it is a taxol side effect or just a sinus issue. My ears feel similar to when you are on an airplane. They feel kind of clogged and have a buzzing sound in them. When I plug my nose and blow out it relieves the pressure and my…
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blood clot on port
Hi everyone. I am a new member of this wonderful group. I have been reading your posts hoping to find something about this. Over the weekend my left upper shoulder, chest, arm, and hand have swollen like a ballon animal. I called the dr over the weekend and he suspected it might be a blood clot. So, long story short, I had…
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Deported
Hey Ladies, I was officially "deported" today my dr. did it in his office the needle that numbed me hurt you know being stuck in the port all the time made me forget how the needle felt I ask could i keep my port and he gave it to me i had no idea how long that little tubing was but any how i have 4 stitches. Thank you God…
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~~What's The Weather Like In Your Neck Of The Woods?~~
It is hot, hot, hot here! ♣Susie♠
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Anyone have answers (Foods and supplements that should or shouldn't be taken) ?
Hi, everyone, I'm getting confused by what I'm reading and hearing about food and useful supplements! The messages are very mixed: Soy is OK for BC...soy is NOT OK. CoQ10 is a great complementary supplement (NIH)...no it's actually dangerous (I found a paper published last year that said it actually causes cancer to…
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Peripheral neuropathy from Cytoxan/Taxotere - permanent?
Hi everyone, After my second round of Taxotere/Cytoxan, I am experiencing pain in my fingertips and some tingling in my toes. Is this peripheral neuropathy? If so, what does that mean? Is it permanent? Will it get worse? Does it mean I should stop the chemotherapy? Any thoughts appreciated. Eva
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The Pink Bus is headed your way!!!All Aboard!
Sorry for the short notice, ladies~ I have an appointment with a pulmonary specialist this afternoon and could sure use the company and encouragement!!! The BC which is taking up space in the lining of my lung is causing me such shortness of breath along with this chronic, sounds like a 3 pack a day smoker's cough, that I…
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What is oncotype?
You would think after all this time that I would know all our lingo! :) Thanks, Wanda
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june 28th
I just realized in less then 3 wks it will be 3 yrs since I finished my radiation...JUNE 28, 08...I remember this day more then any other day....(JUNE 22 will be our 26th anniversary) I go back to oncologist (3 wks post hysterectomy) wed...I am sure i'll be put back on tamoxifen (since nothing left to harm with side…
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New to this site
Hi, I'm new to this site. I was diagnosed 3-3-11 with breast cancer. I had a lumpectomy and node biopsy on 3-30-11. Stage 1.. no nodes. but because of gene testing results I am now undergoing chemo with radiation to follow. I am getting cytoxin and taxotere with the neulasta injection 24 hours later. I had my first…
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Today is MJ Jones 453's Birthday!
Best Wishes for a wonderful day - filled with happy surprises and lots of love! -Jenny
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Aromisin
I was wondering if anyone else saw the news about Aromisin. They are saying it's a "new" drug that is being praised for it's great results with relatively no side effects. I was on it and did have bone pain. Just wondering why they are reporting that it's new. My daughter called me all excited that I should try it and I…
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Need to be lifted....not about "me" my son....
Insomnia owned me last night again and now I must take my 3 1/2 year old son to get tubes in ears and adnoids out. He has Down syndrome, hole in heart and only one working kidney. He's had two surgeries in his short life but anything hospital, "being under" makes me the craziest mama in the world. I won't be alone, hubby…
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Are there any other nuns out there?
Imagining that I'm probably not the only nun out here who has had this dx...and I'd be grateful to hear your stories, and to hear how your inner lives have been changed. I'm Buddhist, not Catholic, but don't really think the difference matters so much as far as this is concerned...we share similar priorities. I've got…
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Breast Cancer Survivor Dance Tribute
http://youtu.be/ZJb4pTNcocQ or www.pinkwell.org Please look at this and pass on to friends and family. Hugs, Ticky
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The Heaven Can Wait Walk was Great!
Our walk today was a big success. There were over 4,000 people - which is good for a town of 85,000. The most emotional part for me was when everyone was asked to kneel while the survivors all stood. Of course I was very happy and proud to have my husband at my side (he even wore a pink cap). I also spoke with someone I…
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BC Blogs
Does anyone here follow any of the many breast cancer blogs that are out there? If so, what are some of your favorites? I enjoy Ann's "But Doctor I Hate Pink". There are others I look at from time to time, but if I regularly read all of them, I'd never get anything else accomplished! "The Pink Ribbon Blues" is eye-opening.…
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A great day!
Hi all.....just wanted to make my good, positive feelings last a little longer and share how wonderful the Race for the Cure was today in Seattle! We had bright sunshine, awesome support/volunteers and true sisterhood. I've been doing the walk for many years, but only two as a survivor. I feel blessed and proud to walk in…
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Port removal
My port comes out tomorrow. I have finished with chemo since sept and been cancer free for 1 yr and 4 months. I want to thank all of you for your support and advise through my journey. I know I could not have done it without all of your words of wisdom and encouragement.
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Mammogram Cone Downs (MAG VWS)
Mkay, I give up..What is a Mammogram Cone Downs (MAG VWS)? For some wacky reason, I have this visual imagery of them sending in the clowns, clowns with cones and big red noses pasting those thingies that go over your nipples on everything everywhere, just a hilarious pandemonium. =) But, I'd hazard a guess to say I'm…
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Radiation during chemo - did anyone try this?
Hi everyone, I am considering starting radiation while still undergoing chemo. Did anyone here try that? My radiologist said I can do it "if I am tough enough". She said there is no medical disadvantage, only potential advantage, to this choice. I will soon be fitted for my "body cast", and then I can start radiation when…
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I Feel Frozen
Hello Ladies. Emotionally I've been all over the map since my mastectomy surgery this past Wednesday. Physically, I'm healing well, still sore and painful. Mentally I'm in a fog. I've been taking pain and sleep meds since surgery so I'm sure they play a big role in feeling so dazed. I can't help but think what life is…
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waiting is the hardest part
I think that waiting and not knowing is the hardest part... is it cancer or is it something else..CAT scan, bone scan and mammogram all on Tuesday then back to my oncologist on Thursday... the sooner I know the better I can deal with it and move on with my life... I am a fighter and I am going to fight like I did last…