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Daughter's AA3 Recurrence
My daughter was initially diagnosed jan 2014 when she had just turned 25, with a Right frontal lobe tumor. She had surgery the next day to remove most of it and then we sought out a 2nd opinion at Mayo Clinic. She opted to do radiation there and then PCV chemo. Due to radiation nectrosis, she had a second craniotomy early…
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Shingles- side effect of temodar
Hi all, my mom (now 66 yrs old) was diagnosed with grade 4 glioblastoma on May 5th 2017, she has had 3 surgeries, 6 weeks of radiation and chemo, and she just started her second round of temodar, and after her first 5 days, she got shingles as a side effect. Heartbreaking. Has anyone out there experienced this, or their…
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Glioblastoma - patient sleeping endlessly
My dad was diagnosed of brain cancer in Jan. Undergone surgery and chemotherapy radiation till March. Last 15 days he has declined rapidly and is bedridden completely in ICU. He hardly responds to commands. Doesn't open his eyes at all. His vitals were bad earlier but now wvweveryth is in control. Doctor says they have…
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GBM Survivor
I was just reading some of the posts in the brain cancer topic section. I noticed that people are lookiing for survival stories...well, I guess I am one! I was diagnosed with stage 4 GBM located in my medulla oblingata (brain stem) in January 2001. I was 6 months pregnant. Go forward 17 years and I am still alive and my…