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Archives for November 2013
My mom found out yesterday
Hi everyone. I'm brand new as of a few minutes ago and this is my first post. Its long and its pretty rambly but I needed to get it all out there. Thank you for welcoming me into your community. I'm glad a place like this exists. My mom has been having severe headaches for about two months now. She'd take some medicine for…
PXA with or w/o anaplastic features & BRAF mutation
Hello. I am just trying to do some research, I was wondering if anyone one here who has been diagnosed with a pxa w/ or w/o anaplastic features also has the BRAF mutation and what your course/experience has been like.
Diffuse Fibrillary grade II brainstem glioma
My son is 9 years old and was recently diagnosed with a grade II diffuse fibrillary glioma (astrocytoma) in the mid brainstem. He has suffered migraines since kindergarten and now they have developed into status migraines lasting for weeks at a time. His tumor is in the Mesencephalon. We have been told by his NO that these…
Trying to look at things differently
I was listening to Joel Olsteen on TV, and he helped me realize that worrying and stressing doesn't change anything. We need to put our trust in God. None of this that is happening caught Him by surprise. He's knows exactly what we are going through. We just need to hold on and be strong. He will bring us through this.…
GBM IV - Etoposide
Hi all, My father was diagnosed with GBM almost 3 years ago. Yesterday we found out that in the last two months since his last MRi his tumor has spread and almost doubled. He had been on temozolmide the last year everyday low dose and yesterday we switched to Etoposide low dose every day. The down side to all of this is…
hard to connect
I'm glad that our cancer is so rare that there aren't very many of us out in the world, but it is frustrating in some ways because it's difficult to find and maintain connections on boards like this one. I check here frequently, but it seems as though the members from the past are either recovering well, or have lost the…
Prognostic significance of extremely low platelets?
My husband was diagnosed with AOA III in September. He had surgery to remove an 8cm tumor on his rt. frontal lobe, followed by 6 weeks of RT and tmz. His last treatment is today (yay!). However, his platelets dropped dramatically, from 329k on 10/15, to 52k on 11/1, and 30k on 11/4. His NO wants to do a PET scan to…
Anyone Still On Here From 2009,2010,2011 with Anaplastic Oligodendroglioma Grade 2,3?
Looking for survivors from when I first joined this site in 2010 with the same tumor as my husband? Anyone out there? I would like to hear how things are going.
New to Site, Need Advice
Hello all. My Sister starts full brain radiation today. After many months of chemotherapy for lung cancer (and others), the cancer has spread to her brain. What side effects should I be most aware of to help with deal with this new treatment? With Chemo, she has already lost her all her hair and can be forgetful (we call…