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my story - long term survivor
I've never really shared my 'story' with anyone before and thought I would post it on this forum. I've posted here in the past trying to get in touch with any other long term survivors. I'm writing this from my phone, so please excuse any spelling and/or grammatical errors. At 12 years old (in 1997) I was diagnosed with an…
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encouraging new treatment for GBM
Hi everyone, It's always great to read good news about treatment and this sounds very encouraging. It involves using the polio vaccine in the treatment of GBM. http://www.newsobserver.com/2013/07/16/3034302/tests-show-womans-brain-cancer.html
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avastin for gbm
Good morning every one. i was just told that i am getting on avastin. in may i had a tumor and got syber knifed. and now two months later i have three more. they are taking off the temodar. and instead of surgery they are doing syber knife again putting me on avasin. i guess my body is not working with the temodar. i have…
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Hello from Greece!
Hello everyone! I'm Dimitris from Greece, i'm 50 years old and i would like to share my own experience with all of you here. Last may i've been diagnosed with a brain tumor, specifically with Glioblastoma IV according to the histological tests. In a week's time i travelled to Hannover, Germany to the International…
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Primary CNS LBC Non -Hodgkins Lymphoma
Hi, I am 73 and was diagnoised with non-hodgkins lymphoma in my brain in Jan of 2010. I saw a post about primary cns lynphoma and was wondering if the posts would also be aplicable to me? I have been on high dose MTX anf Rituxan since I was diagnosed. At first it was every 6 weeks and my tumors shrunk. After about 9 months…