Brain Cancer
Discussion List
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Fucoidan
Has anyone heard of or is using Fucoidan as a supplement along with their other treatments?
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new to glioblastoma stage 4
hello everyone, i am new to this site and have been reading a few things. my question is : is there anyone here that has glioblastoma stage 4 or are you all family members of people with it? i am 39 years old and have just created an account with my story on it. i found out in dec 2012 about having this after a tumor was…
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inoperable Anaplastic Oligendendroglioma
Anyone on here who was unable to have the removal surgery doing well with radiation? My dad has 4 tumors and they will not attempt to remove. We are about to start radiation. Just wondering if anyone who was unable to remove the tumor was having good results? thanks
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My Husband
Im new to this site and i have alot of questions. MY husband has stage 4 gilblastoma. I thought he was having a stroke so i rushed him to the hospital back in Nov. but after a battery of test, they found he had a tumor 3 inches. So first thing on a monday morning he had surgery. They got some of it. He has done his first…
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WSJ article.....inspiring!
I read this article in the Wall Street Journal yesterday and thought many would find it inspiring. Iram Leon: May the Last Marathon Be The Fastest—Gusher ... online.wsj.com/.../SB1000142412788732341910457837487017927...2 days ago – Iram Leon stands on the sidelines of his own race against time. Lodged in his brain is an…
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Glioblastoma Grade IV - chemio tratment how to prevent nausea please
Dear all, my name is mari and my mum erminia is the love all my life! we had a great Christmas altogether with me and my sister and our families coming to visit her...our children running and bouncing waiting for Santa... big feast on the table ,that days were full of joy and happiness..... On the 16th of January my mum…
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Alternative therapies
Hello I would like to ask if anyone here has experience with a therapy/medication which is not usually prescribed from the oncologists, in other words not PVC, temodar, avastin. 1) DC Vaccine 2) LDN 3) Clomipramine 4) Vitamin D3 5) Aspirin or other anti-inflammatories many thanks Akis
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Brain Cancer Killing Cap - TT Field
My Dad had his first MRI after completing radiation and temodar treatment today and they have found that the tumor is radation resistant and has changed the status of the tumor from Anaplastic Astrocytoma III to Glioblastoma. The Dr. recommended a new approach that has only been around a few years called TT Field Cap.…
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Oligodendroglioma Grade II
First, I want to thank everyone who posts on this site. I have learned so much about my tumor as well as other type of gliomas and appreciate the sharing of experiences. I had my surgery so quickly after being diagnosed I did not have the energy to research or join this network. I would love to hear from others who have…
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Tocagen
Anyone have any experience with the Tocagen trial?
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Glioblastoma help and advice pretty please
My grandaddy has been diagnosed with this illness, it is currently 4.19am in the morning here in the UK I am physically exhausted. My grandad came back a few days ago from hospital, some days he is compus mentum but at night at silly hours he wakes up and I usually calm him down and send him back to bed but tonight there…
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Coming up on one year since dx, help!!
My mom (54) was diagnosed with Glioblastoma Multiforme IV in April of 2012. It was so large and so deep that 5 neurosurgeons deemed it nonresectible. She went through the month of radiation with Temodar, and it didn't even touch the tumor. One month after stopping radiation, they began giving her Avastin along with…
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Husband diagnosed with Anaplastic oligoastrocytoma grade III, scared and confused....
My husband was recently diagnosed with Anaplastic oligoastrocytoma grade III just a little over a month ago, he had surgery on January 30th and they were able to remove about 95% of the tumore and when he was being discharged we were given some paperwork with all these words and numbers on it, and it was still over 2…
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White Blood Cell Count
My Dad was dx with Anaplastic Astrocytoma 3 right before Christmas. I flew to NY to be there for the biopsy and just came back from a second trip up for the completion of his radiation treatment. It was a blessing that I was able to spend 11 days being with my Dad and talking about old times. His long term memory seems to…
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Thank you for this website, it makes me feel like I am no longer alone.
My grandfather is basically a father to me. Having both parents die, my mother reccently, dad and brother I am all alone. I am a young girl living here in the UK and have had to do so much growing up over the years and most reccently with my grandfathers brain cancer glioblastoma multiform right frontal lobe diagnosis.…
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Starting Temodar Today... Nervous and Scared
I am 33 years old and was diagnosed with Grade II Oligodendroglioma in October of 2012. I had surgery the next day to remove the tumor and the surgery was very successful. They told us after the surgery that they think that they go all of the tumor, but there were some gray areas in the spot still. When we asked about…
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any further treatment to prevent reaccurance of brain tumour
I was operated for grade 2 astrocytama arround 2 yrs back and again arround 4 month back for grade 3 astrosytama along with radio therpy treatment for 6 weeks with oral Temodar capsules. Though i feel well but do i need any further treatment to prevent it to reaccure