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Brain Cancer

Archives for February 2013

GBM Grade 4 - Need advice on diet, supplements & Novocure??
My 56 year old, picture of health, Step-Dad was just diagnosed with Grade 4 GBM. He had a seizure on Feb 19, 2013 and the MRI found a grape sized spot in his brain, he went in to surgery on Feb 22, 2013 and got all or most of it out. He is going to start Chemo and Radiation this week. I was wondering if anyone had a list…
tumor in my head
Not sure WHAT is happening. I go to see a Neurologist, because a tumor was found (by accident) in my head. My regular doc said it may be a "burnt out" tumor. I don't know what to think of this.
Grade 2 Actrocytoma Survivor
Hi - I am a 23 year survivor of a grade 2 astrocytoma - dr. still trying to get me to do MRIs every 5 years. Any input as to if this would be necessary??!! God bless you who are battling.
Capsol-T
Anyone had any experience with Capsol-T? Or Curcumin? Let me know! Thank you!
anyone else been in the same situation?
Hi All. first time on here so let me introduce my self. I am Ross 65 and my wife Christine is 62 & we live in Sydney Australia. I am Christine's carer. I feel I have to tell the whole story here so here goes and bear with me please. Three years ago this month Chris was doing the morning breakfast dishes and felt funny in…
Please Help, Lovely Son is Medullablastoma survivor of 14 years
Hello, I just joined this network today. I am in dire straights of trying to figure out where the line is of what is possible back lashes from radiation and chemo, or if it is something else. I am going to get right to the issues. My son is my world, I don't want to argue with him anymore about these issues, I want him to…
Merchandise?
I am wanting to purchase some t-shirts and things for my family, to support GBM. I'm looking for something that donates some of the proceeds to research, treatment, or something of the sort. Does anyone know of any websites or companys that do this? I'm not having much luck :( Thanks!
Is it possible to get better at Hospice
Hi My BIL was moved to hospice 1 week back...his condition was really terrible when he was at the hospital...he is still not doing great but it looks like he is getting better..when i say getting better he still cannot talk but once in a while he utters a word...he stays up most of the time and sleeps at regular hours...he…
GBM High Grade - Going Alternative Treatment/Agent Orange
Hello all, I'm struggling a bit and decided this looked like the place to go! My husband had surgery on January 9, 2013. They were able to get over 98% of the tumor - yay! When David came out of recovery, he couldn't do anything with his right side. Please keep in mind he worked full time as a correctional officer until…
Astrocytoma grade III and my dad. Please shed some light, I'm new here
hey everyone my name is mike and I am painfully writing this post about my best friend, my father. Here's his story: On 9/28/12 my dad was taken to the hospital after having a seizure. After a couple painful weeks and a biopsy later, the cause of the seizure was grade 3 anaplastic astrocytoma. 4 small tumors with the…
My son Brain Cancer
In 2007 at the age of 14 my son was diagnosed with two gliomas, one attached to the optical nerve (which left him vision impaired) and the other one attached to the pituitary gland. He went through 30 sessions of radiation and 6 months of chemo. After 2 years of treatment he went into remission for 2 yrs. On his fith…
AT/RT
I hope this post with encourage and give hope to families who's children have AT/RT. Our daughter Sophie was diagnosed with AT/RT at 3 &1/2. We were a normal family living normal lives on the Gold Coast in Queensland Australia when our daughter was taken to Hospital on the 15th August 2012. She became ill over the weekend…
Avastin for Oligodendroglioma Stage 3
Hi is there anyone out there who has used Avastin to treat Oligodendroglioma...my brother in law is in stage 3 ...my brother in laws cancer has spread to the Spine....he is 29 years....the doctor has given him 1-2 months..although they have ruled out the possibility of him getting better yesterday he was smiling and even…
GBM IV What a shock!
My husband had a gran mal seizure the 7th of January and we are now into the "gold standard treatment" for his type of tumor. We are hoping that the radiation doesn't take out his right eye. The anti-seizure medication is making him a little testy and anxious, and he is sleeping alot. We know what the odd are in buying…
Twin born with ‘orange-sized’ tumour
A baby girl has been born in Sheffield with a huge tumour which accounted for a sixth of her body weight. The orange-sized growth was so large it was crushing Isabel Roberts’ throat leaving her unable to breathe naturally. Doctors needed to rapidly fit a tube to help her breathing before she stopped getting oxygen from her…
GBA IV
Hi everyone I am bedside myself atm and dont know where to go for help my dad was diganosed with GBA IV today he is only 54, iy has benn removed and he starts treatment soon but they said it will grow back and he has roughly 18mths I refuse to give up and believe that I want to help him what can I do? any alternative…

Brain Cancer

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