-
Inoperable astrocytoma
My daughter in law was diagnosed with an inoperable astrocytoma in Sept. 2010. The neurologist said the tumor was mid brain, and was huge. The only symptoms she had were seizures, she would have petit mals frequently and her memory was affected, and the only physical sign was tremor in her right hand. The tumor is wrapped…
-
life with oligodendroglioma
anyone out there with oligo?
-
Nongerminomatous germ cell tumor
My son was diagnosed with a NGGCT of the pineal gland in 2009, he was 13. Happy to share stories if anyone else has had similar. I cannot find anyone in Australia who has had it.
-
My Dear Friend Leslie
Dear Leslie- Today is Thanksgiving day and I just got off the phone with ****. I am so heartbroken to hear where you are since we spoke last. Leslie, you are the most generous, kind and loving person I know. As I told ****, I was so hoping the doctors were wrong. Even through my tears, as I type, all I can think of is all…
-
GBM -- 20 Months and Counting! Clean MRI
I just had my most recent MRI, looks good. I was diagnosed in March of 2011 and feeling great, so I just wanted to share some hope, I have a LOT!!,!
-
Grade III Astrocytoma inoperable - help please
Hello, My husband was diagnosed with grade 3 astrocytoma and it is inoperable. It has spread throughout the brain, the two hemispheres and the corpus collosum. He is due to start RT and chemo. He has been unresponsive to steroids so far. Can someone please give me hope that we can beat this. Do people make it without…
-
Secondary brain cancer I need information from real people
My wife is 48 years old. She was diagnosed with triple negative breast cancer November 2011. She went through two rounds of chemo, surgery with a reconstruction, more chemo and then radiation. In July of 2012, she was halfway through radiation and she was diagnosed with as secondary cancer, carcinomitous meningitis. It has…
-
Am I over reacting
My husband has stage IV Oligodendroglioma, He has been into nesting for months. Making sure everything is up to date. Make sure I know where everything is located. It's all been a good thing. But beside with his mood swings lately he has taken up buying things totaly un-needed. But many of the things were for me so.... I…
-
gbm hope!!
my father is now six months into his journey with a gbm stage four that was determined inoperable. on nov. 1st we went to get his mri and were prepared for the worst because he has become very symptomatic to the treatment of temador, avastin, lithium, and the various other drugs. we assumed the symptoms were from the tumor…
-
My 5 Year Old Daughter & her Grade III Bilateral Thalamic Tumour.........help?,
Hi My 5 year old daughter diagnosed in June this year with a Grade III Glioma Bilateral Thalamic Tumour - it is deemed inoperable due to its location and the prognosis is life expectancy of 1-2 years with treatment. She completed her course of radiotherapy and initial course of chemotherapy in September and first…
-
Update on Fiance (Grade 2 Oligodendroglioma)
I have not posted in sometime. I read and look around frequently but rarely post. My fiancé has been doing great (Grade 2 Oligodendroglioma, left parietal Lobe, Partial resurrection, no gene deletion) No growth on MRI’s (one year mark) still no treatment after surgery, they have told us that he will eventually need…
-
AA3
I work as a caregiver to a woman who is confined to the bed with a really bad back among other things, and her husband Ted was diagnosed with AA3 just two days ago. Ted doesn't want to know what is to come other than his treatment plan...he's afraid if he is told that he will go blind that he will be "blind"…
-
Novacure
Hello all This is Sarah's mom. Does anyone know anything about Novacure? We have not had any good news for my daughter yet. This is one option we heard today, but it will not save her life, only prolong it for a little while, May God bless you all. Edna and Sarah
-
21 years after surgery of Astrocytoma Grade 2
Dear all, My mother had a surgery when she was 39 years old in 1991. She is brave, strong and never gives up. The type of the tumor was Grade II. After surgery she had chemotherapy. Also she took pills for a few years but she returned to job after chemotherapy. I left home for school in 2003. Up to that time she was OK and…