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medicare running out
what to do for my friend currently in rehab facility - she will be on avaistan starting next week...every 2 weeks....her limit left is 30 days to remain in facility....she has AARP and medicare....can't apply for medicaid...any suggestions as to how to get more time for her to remain in rehab center? She can't afford 24…
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My dad has a glioblastoma multiforme stage four.... Some advice please!!!!!
Hello everyone. My father was diagnosed about three months ago after what we thought was a stroke, but then we found out it was a seizure due to the tumor. It is inopperable and about the size of a walnut to start. The explained to us that there isn't any true cause of this type of cancer and that it is extremely…
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GBM 4
I am still doing fine 8/25/2012. I am now 44 months out from diagnoses 12/15/2008. Had surgery in Toledo Ohio on 1/13/2009 (debulked a 7.5 cm tumor)then gliodel wafers with 30 radiation treatments and temadar now for about 43 months.(5days on 3 weeks off) Doctors all say I am doing great. Last MRI was June of 2012 and…
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Medulloblastoma Survivor help
Hi, I'm writing to see if I can get some information from some of you out there that have survived medulloblatoma or have children that have survived. My son was 10 years old at diagnosis, had a resection, radiation treatment and 8 rounds of chemo. He was not High Risk. During treatments and for a time after he received…
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momsworld
My beautiful girl Kasey Nov 24, 1997- Aug 21, 2012
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just an update...
So the first dose of navelbene was yesterday. Not too bad so far, I already have that metallic taste in my mouth so I'm already using plasicware. A little diarrhea. I'm still having some SE's from the rads. My forehead is red/pink, and some rads fatigue but I'm managing my energy so that critical stuff gets done. The rads…
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From GBM to Cold PET Scan in 15 months
I thought I'd share some good news...In April of 2011 my world was turned upside down with a very pessismistic doctor's news I had a GBM, 9 months is what he said. So I found a new doctor at Duke University who offered me hope. I went back to work in October, moved into a new house we built and had a "cold" PET scan in…
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lost a mother ......
Hi its been awhile since i visited this site. I found this site when my mother was diagnosed with lung cancer that spread to her brain, last January 2012. Each day was different, there were good but mostly bad days for her. Last May 2012, she was admitted to the hospital due to severe weakness. Since then she was always…
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Grade III: Anaplastic Oligodendroglioma
Hi everyone, My brother had a seizure (Epileptic attack) while driving and got into a car accident. Fortunately, the doctors did head scans and found to see what looked like calcium deposits on his brain. My brother has been healthy and has shown no signs of illness what-so-ever. They did further tests and found a large…
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Oligoastrocytoma Grade III
Hello everyone! I'm new to this site and I'd like to tell you my story. My name is Olga and I'm 28 years old. I had a seizure in april 2012, soon afterwards I was diagnosed with brain tumour in left frontal lobe. I was operated and had almost everything removed. It was Oligoastrocytoma Grade III and I will have…
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who needs help?
Hello my name is Kristy and Me and my 2 boys ages 12 and 6 live in Missouri. We havebeen through a roller coaster battle of my husbands brain cancer. November 13th 2009 my husband was diagnosed with a brain tumor in his cerebellum. My husband had his tumor removed in St.Louis which pathology showed it was a pilocytic…
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Medullablastoma survival rates
Hi, I've just joined and would like to connect with other medullablastoma survivors. I am 33 years old and was diagnosed with a grade IV medullablastoma when I was 31. I had surgery which removed what the naked eye could see of the tumour. I had chemo before, during and after brain and spinal radiation. Overall I'm doing…