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confused
Ok. My best friend was working with me about a week ago. She punched out from her shift, started to say she felt like she was gonna pass out. So the longer she sat down the worse she became. Eventually my boss had to drive her home because she was confused and could barely walk. She would not go to emergensy room.…
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Brain Shunt treated dementia, gait changes and incontinence!
Hi All, I want to post some good news! Due to extensive chemotherapies, Whole Brain Radiation Therapy and then Autologous Stem Cell Transplant with High Dose Chemotherapy, which has left hub free of disease since May 2010, he was left with dementia, almost inability to walk and incontinence which left me changing the…
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Grade 2 Oglio; to operate or not to operate? and where?
My brother-in-law has recently been diagnosed with a grade 2 ogliodendroglioma. One neurosurgeon has said he should have an operation and that he could remove 80-90% of it and then do radiation and? chemo after. Another surgeon has said he would suggest not doing surgery but doing radiation or chemo (or at least he is…
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life after brain surgery
was wondering if anyone has the same symptoms i have? i was diagnosed with a brain tumor back in jan. of 09. i dont remember the name but i do remember the doctor telling me that it is a rare tumor and very aggressive. needless to say i had the tumor removed just above my right ear.since then i have had a list of problems,…
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Anaplastic Astrocytoma Grade III
I am new to this network as my miseries are new. April 22nd my wife (49 otherwise healthy) had a seizure and then it has been one roller-coaster ride and we are yet to come to the ascent. Initial diagnosis was cerebral hemorrhage then stroke, benign tumor and finally biopsy confirmed it as AAC-grade III one in left frontal…
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cramp
I keep getting cramp in my legs, and hands can anyone suggest a cure? or relief.
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Fying in commercial jet liners
I have had GMB4 which has been de bulked last November 2011. Radio hrapy completed . in btween chemo treatments What is the rule regarding flying. Need to fly for around 6-7 hours for a holiday .. Also
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MUTIPLE CYSTIC FOCI IN THE CLIVUS
I had an MRI post an auto accident and they found multiple cystic foci in the clivus and recommended dedicated MRI of the brain with and without contrast and gave differential diagnostics including chordoma. I am 32 years old and freaked out, is this common for males my age? could this be just anything else? I go in…
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When to stop driving?
My wife is having problems with her balance, speech and some other issues which have made me concerned enough for her driving that I now 'volunteer' to drive her when she needs/wants to go somewhere. It's a difficult subject, because while asking her if I can drive her, I might as well be saying "you're not well enough to…
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My dad has Gliblastoma Multiforme
My dad who is 67 years old and otherwise healthy, started complaining of headaches and 3 days later he passed out in the yard, after getting him to the hosptial it was found that he had a mass on the brain, after the initial biopsy we were told that he has Gilblastoma Multiforme, I am schocked and confused. the doctors are…
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Oli Grade III
Just had another MRI, clean bill of health for another 3 months, but actually both Oncologist, said that it could be 10, 20 or even 30 years before recurrance. I am totally of all medication, have no side effects, working full time, and back to normal. Was told, that I had excellent surgeons, treatment plan and great care,…
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Working through avastin
Hi All, Anyone have experience working through avastin? A little background: Brainstem glioma dx 2009 6 weeks temodar and rad, followed by 3 mos temodar had a very flexible schedule then. But have managed to keep a pretty rigorous work schedule (75 hours a week or so and oft 24 hours at a stretch) since then, and while it…
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update from momworld
Hi, I know that it has been awhile since I have been on and that is because my daughter has taken a turn for the worse. She had another brain hemorrhage the week before the 4th of July. Surgery was done to stop the bleed and thats when the docs discovered that the tumor went from a quater size to the size of a mans fist,…
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Brain Tumour Concerns
I am really concerned at how I have been treated since my diagnosis of a ‘low grade’ glioma. I had an MRI in January to investigate hearing loss, which incidentally found what they think is a ‘low grade’ glioma. I was told by an ENT consultant that I had a large mass on the ‘left side’ of my brain (glioma or anything about…
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Ependymoma
At 35 yrs old ( 39 now ) I was diagnosed with an ependymoma brain tumor (benign), and several spinal tumors from l2 through s1. The spinal tumors were removed, although the surgery was long and complicated, because the tumors were wrapped around the nerve sheathes. My symptoms existed for appxtly 2 yrs prior to surgery.…
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Anyone with this: Brain stem, strain on voice, swallowing issues...
My wife (oligoastrcytoma) had avastin and CPT-11 treatments) along with temodar for several weeks until they had to be halted due to an infection from an incision from a previous biopsy. In the last few weeks, her voice has grown really week and I've noticed she gets hiccups and has some trouble swallowing mostly liquids,…
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Struggling with a partners anaplastic oligodendroglioma diagnosis?
Hello, I am 27 years old and my partner is 29 years old. We have only been together a year but we fell head over heels in love the day we met and have been inseparable since. 3 months ago he had 2 nocturnal seizures whilst in bed with me and as time unfolded it became apparent it was a tumor. He had a partial resection,…
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Oligodendraglioma
HI, I have an Oligodendraglioma grade 2 on my left temporal lobe. I have been told that they will never been able to operate and also for the moment they wont use any treatment as the doctors want to use the wait and see treatment. Has anyone been through the same thing?
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Update
Once again I don't know where to start. It's 1:30 am and I'm one-finger typing on my iPhone in the dark in my recliner in David's room. So bone-weary and exhausted. We have been out of the hospital one week as of today. David had developed another abscess in a very sensitive place---between his front and his butt. He also…