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Brain Cancer

Archives for May 2012

Have you tried "alternative" treatment or therapies?
My husband was diagnosed with DIPG in January 2011. He completed radiotherapy in April 2011. He is currently stable and feeling okay. (His only symptoms were headaches.) I often look up alternative treatments. We've considered DCA and Ruta 6, but haven't gotten to that point yet. When he was sick/nauseous all the time with…
Clean MRI
I had my four month follow up at UAB on Wednesday, and the MRI is still stable. They said it looks better this time than it did the last time. My next follow up will be in four months! Praise God!!!! Michelle Mobile, Al DX: 10/20/09 AA3
Need help regarding whole brain radiation decision
I am new to this board, I stared on the kidney cancer board in late Feb, when my mother was diagnosed with stage IV kidney cancer. She has been following treatment guidelines for the kidney cancer and mets in lungs, spine and femur; but after my repeated concerns about her being confused they did an MRI and found lots of…
Good MRI and Petscan
Hello my fellow brain cancer warriors: Today, we found out that Sarah's MRI and Petscan are stable. There is no sign of reoccurrence. It has only been a month since she finished her chemo, but I will take every day and cherish it. We remain in faith and give all the praise and glory to God who is with us on this journey.…
Traveling with Medication
I hope everyone is happy and healthy this Memorial Day. Kick back, and take it easy... or be like me and go through the stress of flying somewhere for two days, then flying back! I found this while making some preparations and wanted to share it: http://www.hemaware.org/story/traveling-medication Safe Travels! Happy…
Is there hope?
I had surgery in 2002 on Oli II after I had some seizures the year before; I was 33. The surgery went well and the only side effect I had (and still have)is epilepsy. I didn't need any other treatment. He told me that its the slowest growing tumour someone could have and that it wont re-appear for another 10-15 years but…
Cindy & David- wondering?
Hello Cindy & David, Was sitting here thinking about you guys, wondering how your last treatment went.How were the doctors and nursing this time. Hope everything went well, and David is continuing to improve, little by little. It's the small things that make one excited, a few steps, words, or outings if possible. I…
Love to Momsworld
Hello my friend. I am thinking of you and hoping you and your family are holding up well. Please know that you and everyone on this board are in my thoughts and prayers every day. Pam
For LeslieLand
Hi, I was trying to find some info about my hubby's tumor and I came across a another person with DPIG. Another adult looking for someone else who has what you hubby has. It is on another cancer board. Google Cancer Compass and then sign up. Go under brain cancer and go about halfway down the second page and look for this…
Tumor causing poor decision making...
My mom was diagnosed in April with GBM4. Since then, her memory and decision making has been extremely poor. She has a hard time performing simple tasks such as cooking, bathing, cleaning up after herself... she gets about half way through and forgets what she was doing. Naturally, I took over power of attorney so I could…
Glioblastoma good news
MRI today shows that my brain is still there with no extra junk. I am officially in remission. Monday I start a maintenence dose of chemo pills for the next year or so. 5 days on, 23 days off. Back to see the oncologist June 11 to see how I am handling the chemo, and then he will probably increase the dose. MRI in about…
Northwest Biotherapeutics DCVAX ® -L Brain Cancer Trial
Hi all! I wanted to share this press release from this morning. Good news I hope! 41 US Clinical Trial Sites Now In Operation BETHESDA, MD, May 17, 2012 -- Northwest Biotherapeutics (OTC.BB: NWBO) (NW Bio) announced today that it now has 41 clinical trial sites open and recruiting across the United States in its ongoing…
Secondary esophageal cancer to the brain
Hi folks I only posted here once and live in the UK. I guess when I posted I knew something was not quite right. Well my world has fallen apart! I wrote that since returning from your wonderful country on the 2nd of May I had been having symptoms which were consistent with a brain tumor. On Tuesday evening the headache I…
Treatment Tuesday
David is scheduled for chemo (carboplatin) and Avastin on Tuesday, if his counts are okay. We'll get bloodwork done tomorrow. David had a better week this week--of course, when I say "better," that's a relative term. He was able to feed himself, make it to the bathroom (with help), talk a little....we even went out for…
gbm4 brain stem
Hello everyone what a wounderful resource this network is , my darling brother Paul had surgery 5 weeks ago for a brain stem glioma really poor prognosis , he also suffered post op complications ( pnuemonia aspiration) and is now slowly recovering . the tumor was about 2.5 centimetres the surgoen managed to resect as much…
Headache doesn't go away
Hello, I'm not sure if this is the correct board to post this on, but I have a family member who has gone through and survived through different cancers (bladder, liver). She is currently fighting her most recent battle (stomach) and was told that the cancer was almost gone (with chemo). The problem is that she has…
Avastin already?? Too soon?
Hi, My husband Dave was dx with a GMBIV in Nov 2011. He is 40. It is in-operable. His tumor is towards the back of the Corpus Callosum and it has tentacles and some tumor intertwined into the Corpus Callosum He is being treated at Yale New Haven Smilow Cancer Center and has gotten a second opinion from Dr. Gutin at Sloan…
Stumbled across this article
And thought I'd share it. I don't know the full implications, but it's exciting to see such a battery of companies and scientists pushing toward a breakthrough. The article says 12 to 18 months, which makes me excited for the very near future!…
Shaving head to support family member with cancer?
So I have a question... My mom started chemo and radiation today and they said she would lose quite a bit of her in the next 10-14 days. They recommended her to go ahead and completely shave her head. She's really upset about the idea of losing her hair, even with a wig... she's just not happy with it. Soooo... I thought…
mothers day....
Its May 8, 2012...my mom is not doing well. Everyone is blessed in some way or the other. Our greatest blessing...our mother. Happy mothers day to all! thelma (AMRON)
Glioblastoma Multiforme grade IV perspective from a care giver
I came to be by the side of a 47 year old man who was diagnosed with GBM in May of 2011. I thought, "I can go be by the side of a dying human and be his friend and happy strength...I got this." I moved 150 miles to the other side of the state, to a whole new climate that's how far I moved... to begin my promise to him.…
Metastatic hemangio-pericytoma brain tumors
My 40 year old son had brain surgery in June, 2011. He had three hemangio-pericytoma tumors. They removed two and he had 35 radiation treatments to the third. In April, 2012 he started having pain and thought it was his appendix........turns out the tumors had moved into the liver/stomach area. He is now taking chemo. Has…
diabetes etc.
I started a new thread because it's easier for me. I meant to reply to each of the comments on the last thread because they all really touched me, but i'm overwhelmed and don't feel up to writing very much...well, that's what I say but watch this post be huge like all of my other ones.... David's chest cold progressed to…
Anaplastic astrocytoma group III)
Well hello, I am happy at the same time confused as to what to do. I had my MRI (2/12/12 and 5/01/12) both showed same with no brain tumar growing. But the Raditation doctor wants me to go through it, I am hoping that I can find the right program. After being through all things I had surgery of Brain Tumor (Anaplastic…
Avastin is being discussed in
Hello, Just picked up the spring issue of Cancer Today- available at most clinics free. Article of Avastin, about this drug being a roller coaster- ups and downs.
Is it possible to recover from left-side weakness?
My 28-year-old daughter is being treated for a second recurrence of a grade III mixed glioma. In January, she rapidly developed left-side weakness. She has a brace for her ankle to prevent it from giving out on her, walks with a cane, has very limited use of her arm/hand, and has no peripheral vision in her left eye. She…
Glioblastoma grade IV
I'm new here and I'm not quite sure how all this works. I guess I'm pretty much just looking for people I can relate with that are in similar situations. I'm 28 and as of April 6, 2012, I found out my 53 year old mother has a stage IV glioblastoma. Being very close to my mother, this has been extremely hard to swallow. Two…
Teenager with PNET
My 16 yr old daughter was diagnosed with a PNET-- WHO grade 4-- in February 2012. It is on (in?) her left temporal lobe. The actual tumor ruptured and caused a massive brain hemorrhage, so she had emergency surgery on Feb 9. Follow up MRI showed that the "fingers" of the tumor are still there, but because of it's location…

Brain Cancer

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