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Brain Cancer

Archives for February 2012

Getting a second opionion by phone?
Has anyone ever gotten a second opinion over the phone? Our son's NO is putting him on Avastin. He gets the first infusion tomorrow. However, I am concerned that no other chemo drug is being added. We were told that more or less, this Avastin is the drug of last resort, and median survival is 6 months. (His MRI last week…
Woodysmom? Rory1987? Sadinholland?
Hi, you guys. I haven't seen posts from you guys in a few months and I don't know if I just missed posts that you have done, or if you have just taken a little break from CSN....? I am wondering how you, Rory, are doing, and how your husband, sadinholland, is doing, and how your son Loren is doing, Woodsymom? I hope that…
seizures, seizures, seizures.....but not big ones....
Even with a lot of focal seizures, still.....David is doing better. We went to the surgeon yesterday for his second and final checkup to see how his wound from the abscess surgery is healing. The dr was so pleased with the wound. She said that it is doing wonderfully and I don't have to pack it any more with gauze. We are…
beother needing prayers
i am asking prayers for my brother . He is only 58and as I am typing his bdy is shutting down. I have stage 4 brest cancer with mets to the bones and I am unable to be there.He lives in indana and i am in Missouri. i am unale to drive the distance and thought about fling but i have to put to much on his wife and kids…
beother needing prayers
i am asking prayers for my brother . He is only 58and as I am typing his bdy is shutting down. I have stage 4 brest cancer with mets to the bones and I am unable to be there.He lives in indana and i am in Missouri. i am unale to drive the distance and thought about fling but i have to put to much on his wife and kids…
Mass effect
Has anybody found anything that relieves mass effect ?
Neurofirbomatosis 1 and Grade 4 Glioblastoma
I'm a fairly health 37 year old female who was born with Neurofromatosis 1. On January 29, my boyfriend took me into the ER because I temporarily lost the ability to speak. I was admitted immediately because the fear was I was having a stroke. the CT Scan showd a 3x3 cm mass in the brain. Spent two nights in ICU for…
Starting on Avastin next week. Not given a lot of hope
Well, we heard from our son's NO this morning, and the Tumor Board recommends Avastin. Apparently, they thought that additional surgery was too risky for creating more severe deficits for the little gain that might be achieved. Also, he doesn't qualify for clinical trials because his Karnofsky score is too low. So Avastin…
Repeated Radiation
I am starting a new thread to hear the experiences of you who went through a radiation treatment second time. I wanted to learn as much as possible before I make the decision for my husband. Jacob has a recurrent Oligodendroglioma grade 3 on the left frontal lobe. He had the dx in 1997 with oligo 1 and went through…
I would like to hear from Spouses who are supporting their partner with GBM
Gday from Australia, My husband (34 years of age) was originally diagnosed with stage 3 Anaplastic Oligod astrocytoma on April 5th 2011. He had surgery on the 8th April, they removed 7cm by 5cm from the right tempral to the occipital lobe. The neurosurgeon could not tell if she fully excised the tumor. 1 week later they…
Grade III Oli - MRI -No Cancer Present
Diagnoised September 25th with Grade III Oli, 99% of left frontal tumor was removed, nothing showed on MRI after surgery, completed 6 weeks Chemo/6 weeks Radiation. Only side effect was I now sport a mohawk. MRI 1 month out from treatment showed no cancer present, but started 5 days Temodar with 28 day break. I am working…
Not a good MRI, have some hard decisions ahead
Well, yesterday wasn't a good day. David's MRI showed "dramatic progression" of the brain cancer. In the words of his NO "nothing we do is going to change the course of the disease." I asked him if the tumor is now a grade IV, and he said, "Oh yes. This thing is very agressive". In fact, to me, he seemed incredulous as to…
Seizures? But getting better.....
Hi, everyone. David woke me up on Friday night and said that he thought he might have had a seizure. Maybe. He wasn't sure. He described it to me, and I am sure it was a focal seizure.....not a tonic clonic one, thank God! He said that his leg jerked, his eyes blinked really fast, and his mouth and head pulled to the side.…
Starting Radiation and Temadar...suggestions
I am starting radiation and oral Temadar in a few days and I'm worried about the side effects? Does anyone have any personal suggestions on coping with their side effects?
Pregnant GBM Survivor Philippines
Hi..From Philippines here.My wife ( 31 years old) was DX with GBM on December 10, 2011 and now 5 mos pregnant. She had 80% resection on 12.23. 2011 of her 7 cm tumor mass and have started radiation as of this writing. What makes the situation difficult is her pregnancy. We cannot start a low dose temodar with radiation as…
Newly Diagnosed and Needing HOPE
HiI'm a 27 yr old single mom of a 2.5 yr old with a hypothalamic hamartoma. He is doing well but needs a lot of extra care and I'm having the most trouble with my diagnosis because I'm too tired to take care of him! He's the light of my life and I don't know what I'd do if my family wasn't taking responsability for him. I…
What to do when an MRI is stable -update on my sister- and some rambling thoughts
Dear All, I have not posted an update in a while. My darling sister is doing well (if one can do well from a diagnosis such as hers, anaplastic astrocytoma). Her MRI brain is improving, she just got the results of her latest one; there is no abnormal blood flow seen on the MRI spectroscopy. The cyst that had formed in the…
Moms World
I was thinking about you today and wondering how you are.
Phoney Avastin?
Tonight's CBS national news broadcast had a very short clip about some vials of phoney Avastin circulating. Said there was no proof that anyone had been harmed. Does anyone know anymore about this? Or, has anyone's doc say anything about this? Depending on the results of our son's MRI this Monday, he may be starting it.…
Astrocytoma G2 frontal - temodar and radiation
Hi All! I was diagnosed with a large, inoperable fibrillary astrocytoma last summer. I did 5 1/2 weeks of radiation (5 days on) and temodar (7 days a week), month off, then started my 12 months of 5on/23off rotation of temodar. I tolerated my rad/temodar schedule well, living away from home by myself to have treatment…
Avastin failed- unfortunate for us-Need your suggestions
I was hoping Avastin will work for my husband,Jacob, for a long time (he has AA3).Unfortunately,after one infusion, he had a seizure and an unexpected hemorrhage at the residual tumor location.There are conficts of opinions among NO and the surgeon about the root cause;bleeding caused the seizure or seizure caused the…
Ganglioglioma tumor - anyone?
My husband, age 55 has this type tumor. It is very rare and usually found in children.
Radiation necrosis from radiaton treatment
My husband has a rare tumor called ganglioglioma in left temporal lobe area. He has had 2 surgeries and done great. This last surgery required chemo and radiation and now the radiation has caused necrosis. He now has speech and reading problems. He had his first round of avastin. Anyone out there ever had this type tumor…
New, confused and scared...
Maybe its too early for me to post here, but just discovered last week I have lung cancer, and my pulmonary surgeon ordered a brain MRI and found 2 "concerning" spots, and cancelled the futher diagnostic stuff for my lungs. I dont even have an oncologist yet, they were supposed to call me back yesterday. Of course its the…
Glioblastoma grade 4, aged 24
My boyfriend was diagnosed with a glioblastoma grade four tumour in August 2010, aged 23. He has had surgery, where they removed part of it but they couldn't take it all as it would have left him paralysed. He then had six weeks of daily radiotherapy and is now on his 13 month of oral chemotherapy. I have been with him…
Follow-up on DavidO
Hi to all - I don't post very often, but I definitely keep up on the board and pray for all of us as we go through this difficult journey. My husband, Dave, age 51, was diagnosed with a GBM last March. They were able to resect it, and he has undergone the standard of care, although he hasn't been able to complete very many…
Seizures :(
I'm laying in a bed in ICU and my blood pressure cuff just went off! After feeling so very hopeful over the positive MRI, I had a setback last night. I got out of the gym last night and went home. At the gym I felt a little faint, but put it off as being tired from exercising. As I started pushing the numbers on the…
cdolive4
I was reading a post of yours that said your husband would be going for an MRI soon. I just wanted to say I will be praying for him. God Bless!
Has anyone had this treatment? Treating cancer with electric fields
I just viewed this in TED. Anyone familiar with this? http://www.ted.com/talks/bill_doyle_treating_cancer_with_electric_fields.html Thanks
Birthday Anxiety
On March 10th I will turn 27. I am not concerned about the age but it is difficult to get excited about the special dinner plans with family and friends when I am thinking how many more of these will there be? I don't have a timeline hanging over my head but I think of the day when we face the birthday when I am ill or not…

Brain Cancer

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