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Brain Cancer

Archives for December 2011

Oligodendroglioma III Recurrence After 13 Years
My 41 year old brother has had a recurrence after 13 years! 13 years. We thought he was clear. He was still going for checkups. He had been telling us something was wrong and he insisted on an MRI. The results came back yesterday. All I know is it is small, but from what I've read recurrent grade III is not good. He had a…
New treatment plan, etc.
I heard back from David's team today. The plan is for David to have a month off from all treatments, starting today, so he can recover from the BBBD treatment that was so hard on him. Then at the end of January, he will do the same chemo combination: carboplatin, etoposide, and melphalan--but without the mannitol--no blood…
Avastin after Radiation, Temodar and CCNU?
My husband (52 years old) is scheduled to start on Avastin on January 12th. He has Grade 3 tumor; First radiattion then Temodar chemo for the last 3 year that kept the tumor under control until this April. The doctor considered Avastin then, but due to some cell bleeding issue they couldn't start on Avastin (the side…
Glio tumor grade III that is inoperable
My dad age 57 was just diagnosed last week with grade III Glioblastoma. The doctors say they are going to treat it as a grade IV. His tumor goes from one side of his brain to the other, it is inoperable. He goes Tuesday to meet with his oncologist to set up radiation and chemo treatment options. From what I have researched…
carcinomatous meningitis anyone else?
Lung Cancer survivor 6 years gets carcinomatous meningitis Hi, My sister six years ago at 37 was diagnosed with stage four lung cancer. She survived by taking Tarceva/Avastin. But she had to battle 3 brain tumors with cyber knife after having seizures. A month ago she had blinding headaches, confusion and double vision…
Newly dxed with breast ca mets to brain, OMG!
New to this board, was diagnosed with stage 3C invasive ductal carcinoma on 11/1/2010, 18 of 18 positive nodes, estrogen positive, progesterone and herceptin negative. Left mastectomy, no reconstrution. Did 8 chemo and 33 rads..2 clear chest CT, 4/11 and 10/11, also clear bone scan in Nov. 2010, Taking Tamoxifen for…
an update on David
I started typing a description of David's situation and I just can't do it. It would make too many people on here feel horrible. I will say that there has been some improvement. We get to go home tomorrow. David will be living with me and my husband (his dad) and David will get tender loving care and anything he needs. We…
Low Grade 2 Astroyctoma
Hi there, this is my first time on this forum. My beautiful wife had her Cancer successfully removed in JAnuary 2010. Since then she has suffered no symtoms or any illness from the Tumour. We have had twin boys and have gotten married so its been a mad couple of years. We are approaching the 2 year mark and Nadine is about…
MRI shows new tumor, changing chemo regimen
Well, our son David (age 34, dx 4-13-11, inoperable AA3) had his MRI last Thursday. This comes after David had completed round 4 of the 5/28 Temodar cycle. The results were not what we had hoped. Dr. C first started out saying right out, there's a new tumor showing up on the scan. It's an elongated shape, just to left of…
Bad experience/recovery from chemo, anyone?
My son is having some serious issues but we are not sure of the cause. I suspect it's from the aggressive chemo treatments that he just had. I am wondering if anyone else has been really messed up from chemo treatments in this manner: trouble swallowing (off and on) trouble speaking (off and on) drooling (off and on) lack…
Not a report I want to give
I've put off posting for a while, and now there is so much going on that I feel overwhelmed to write about all of it. I am up at OHSU and I don't think we are going home any time soon. But I need to back up a little. I posted on here when David got his puppy. I think it was Dec. 7th. In that post, I mentioned that David…
stage 4 colon cancer with mets in the liver, 1 lung and the brain
I was diagnosed with stage 4 colon cancer in early May with liver, lung and brain mets. Early on I had Gamma Knife for the brain mets and it seems to have worked well. I originally had 9 spots in the brain. This week, I was told that 1 spot has done nothing...not growing, not shrinking. Dr says to watch it. The other two…
Grade 3 Anaplastic Oligoastrocytoma Diagnosed.
Hi, My father is 50 yrs old & has been diagnosed a non malignant Grade 3 Anaplastic Oligoastrocytoma in left brain. He got operated on 30th Nov. & is recovering well at the moment.Visible Tumor has been removed completely & he has been advised to undergo Radio & chemo therapy.Dr. says regardless of the fact that it has…
Tried Ovarian Cancer board with no reply
Hello all, I am fairly new to ACS I would like to start off by saying hello and god bless. I am a caregiver to my mother she is 63, very young in my eyes. At 40 years of age she was dx with bc, she went through chemo, radiation and had a partial mastectomy. for 20 years she was in remission. Last year at the age of 62 she…
Caregivers and patients
Hello all It's interesting to read the posts on here. I'm not surprised that 90% of them are from caregivers. I'm one of the patients and I can see my mother's frustration in a lot of your stories. I can also see myself in how you describe your loved ones. I had my resection in 2008, they only managed to remove 80 percent…
picked up David's puppy today
Just wanted to let you all know that we finally got our hands on David's puppy and brought him home today. He's a real cutie and we all love him already. David is so happy to have him. He texted me last night and said that he was going to bed early because he wanted today to hurry up and come. He said he felt like he used…
December: the month for MRIs
Looks like many of us on this list will be dealing with MRIs in the next two weeks, whether it's for you or for a loved one. Hope to hear from all of you and that the news is good!
picking up that puppy
Forgot to mention that David received a letter a few days ago from our NO saying that he thought a puppy would help David deal with the "distress and and discomfort" of chemo. It couldn't have been a better letter if I had personally dictated it myself. David has no idea what went into getting that letter. No point in…
Update on my sister grade 3 AA- adjuvant therapy-
Hello, My sister got diagnosed with a grade 3 anaplastic astrocytoma July 2011. I still want to scream and throw up when I write these words. Cancer stole our happiness. We are sometimes happy but never again that perfect innocent happiness that I knew and cherish so much. She already had 2 surgeries, completed the…
Living with Side Effects of Full Brain Radiation
My husband was diagnosed with Primary CNS Lymphoma 13 years ago and we were told he would not survive more than 48 months. He received many different kinds of chemo (I remember vincristine, methotrexate, procarbazine - and there were more) - and full brain (and eye orbit) radiation. The good news: HE'S ALIVE!!!! The bad…
Web site listing stats re: brain tumor treatment centers
I just stumbled on this web page, listed on the National Brain Tumor Society's web site. You can click on a state and it lists hospitals with neuro-oncology departments and gives stats about them, as in number of surgeries performed a year, type of imaging technology available, etc. I thought it might be helpful for those…
momsworld
I have been thinking about and praying for you and your daughter. I pray she is doing better.
CDX110 phase 3 for GBM & Gliosarcoma is now open!
Hi, all, Just want to bring this good news to all GBM patients: http://www.clinicaltrials.gov/ct2/show/NCT01480479?term=cdx110&rank=2 Phase III Study of Rindopepimut/GM-CSF in Patients With Newly Diagnosed Glioblastoma (ACT IV) This study is currently recruiting participants. Verified on November 2011 by Celldex…
Need Doctor Recommendation in Colorado Area ASAP!
Hello All, I’m new to this forum and helping my wife’s son researching his condition. He is a soldier stationed at Ft. Carson, Colorado. He is 36 years old and in excellent health until yesterday. He recently passed out while walking to his car to go to work. He met with an Army doctor who prescribed an MRI and referred…
Stage 3 Brain Cancer
My best friend had brain surgery to remove a tumor that was the size of a softball from his frontal lobe. Tney just got the test results back today and they said it was a stage 3 and that they are going to start radiation next week, followed by chemotherapy. If anyone here has had this, or knows someone who has.. let me…

Brain Cancer

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