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Anaplastic Astrocytoma grade 3-4 in my 10 year old daughter.
Hello to all, My 10 year old daughter was diagnosed on 11/29/11 with Anaplastic Astrocytoma in the grade 3-4 range. This is a huge shock to my wife and I as she exhibits no signs of a problem. She complained about a very mild headache for a few weeks, but it wasn't until she started saying that her eyes were doing…
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Not too proud of myself these days....
Remember how I mentioned that we were going to get a dog (puppy) for David? David said that his apartment manager would make an exception for him and allow him to have a dog if David got a note from his doctor. I'm assuming that the note should say something like a dog would be a good companion and would ease David's…
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Entire right side feeling tingly and numb, but...
Hi everyone! So, I went to my neurosurgeon after my mri last week and he said that it was better than he has seen in a couple of years for me. I guess my brain is filling up the vacant space and he said the tumor may be dormant. I have a grade II Astrocytoma that has extensions - kind of like roots - and he said that he…
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Momsworld--how was your daughter's surgery?
I thought of her all day on the 22nd and I hope it went well. I'm sure you are very busy but when you get some time I hope you can tell us how she is. Hugs and blessings to you and your little girl.
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Grade II Oligodendroglioma - Partial removal Partially Inoperable - Update/Advice
Been a while since I have posted an update on our situation, figured while I had a few minutes and my brain seemed to be on a somewhat steady rollercoaster today, I’d try and write. We had our second opinion on Halloween (of all days) for Jordan’s remaining tumor and the wait and see approach. He weighed in again, and has…
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Update on David after the BBBD
I don't know what I posted here on this site about how David is doing since the BBBD. My memory is just toast...I think partly from stress. I am going to start new threads more often because I can't find where I posted what about David. Anyway.... David and I came home from the hospital on Saturday. We just took it easy…
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Post whole brain radiation 32 years ago
My son was diagnosed with astrocytoma to the right side of the brain just above and just behind the ear. He had a craniotomie, removed tumor and large doses of whole brain radiation for 4 weeks. Six years later had second craniotomie second tumor, larger, no radiation. Thyroid cancer nineteen years later, removed. Cancer…
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GBM SURVIVOR - PHILIPPINES
Our daughter at the age of 22 diagnosed with GBM at the Chinese General Hospital here in Manila, Philippines on 1st October 2011 based on the results of CTSCAN & MRI. A combination of Linear Accelerator and Oral Chemotherapy (Temozolomide / Temozam)have been given by the Neurologist & Oncology. For an estimated 33 therapy…
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Today: Treatment, etc.
We are back up at OHSU and David is being treated with the BBBD protocol. Dr. Neuwelt and his staff worked out the insurance issues for us--that's a miracle. Even Dr. N's top assistant did not think the insurance would authorize the treatments. Actually, they had us add David to Medicare, and Medicare is paying part, and…
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New Here
Hi my name is La Veren Almost 3 years ago my husband was digaonsed with stage 2 brain cancer Dr's said he had 7 to 10 years at that time. They did surgery and removed as much as they could and he went thru cemo and is on seizure meds 3 times a day. He handled the cemo pretty good lost his but it has grown back. The last…
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whole brain radiation
hi everyone iha lung cancer ha rad and chemo mets to brain 2 gamma knifes 3 craniacttomies 4 seizures now they want to do whole brain radiation going for consult 11 17 11 just looking for info thanx dave
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I think maybe things may be changing for the better?
We received GREAT news today!!! David is approved for that special treatment that we wanted him to have...the blood brain barrier disrupter protocol!!!! I spent the morning on the phone with OHSU, with our oncologist's staff, with a patient care coordinator, with social security, with David's insurance company, with the…
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Anaplastic Astrocytoma grade 3
My sisters husband was diagnosed a couple of days ago with Anaplastic Astrocytoma grade 3, The doctors told him they are going to go in the week after thanksgiving and remove all they can, then on to radiation and chemo. I am so scared for him and I am hoping that it goes well and we can help him beat this. I am wondering…
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Heres hope.........
On Decemeber 26th 2011 (last year) my dad went to the emergency , after fighting with him for weeks that he wasnt acting right, doing strange things, not being able to make conversation etc.. etc.. hes a stubborn man, and has barely ever been sick in his life. So with saying this, he kept trying to tell myself , my mother…
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MRI at local hospital or at the big hospital?
Hi: In December it will be time to do another MRI. We ususally travel to Seattle Children's Hospital. We live in Alaska. We are going to stay in Alaska and do the December MRI in Anchorage. We have been told that the machines are the same and they will have the Seattle Tumor Board read her film. Have any of you made the…
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Brain Cancer from Mets Breast Cancer
I am on the EC forum because of my mom's resent diagnosis, but my SIL has been diagnosed with brain cancer from her ongoing battle with breast cancer, so I find myself on this forum too. Two spots on the brain (eye and ear areas) that are too dangerous to operate on. She will be undergoing whole brain radiation treatment…
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Hormone Changes after surgery for Oligodendroglioma grade II?
Has anyone, namely female, experienced any types of hormonal changes since surgery? My hair is much more wirey. I am blonde, no European background and suddenly I have whiskers. Blonde but wirey and not just one or two, thicker to the point that my dad noticed! My husband jokes and says that the hair along my scar is…
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1p19q chromosome deletions
I've read in several posts on this site about the 1p19q chromosome deletions topic, and that several readers of this list have had this test, which I understand can be valuable prognostic tool and predict how a tumor responds to chemo. Our son (age 34, dx 4-13-11, AA3, inoperable) has not had this test, and when I brought…
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clival chordoma
has anyone on here ever heard of this or no anything about it??
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Cytomegalovirus (CMV) and GBM updated info
Hi all - I am interested in the current thinking on the link between CMV and GBM, and about the kinds of immunotherapies which might make a difference in battling this terrible disease. Does anyone have any current information on this? Thanks - CindyO
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Surgery, radiation, temodar and WHAT ELSE?
Dear All, I have so many thoughts but I will keep myself focus. This hopefully won't degenerate in some emotional post. Anybody suggested some treatment to your neuro onc and the response is " That is a good though, we should look into this."? Maybe I should be grateful that the neuro-onc is open to my ideas. But it…
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Questin for Cindysuetoyou
Hello Cindy, I have a question for you and I hope you don't mind me asking.....Was David taking temodar this whole time since his surgery? My husband stopped his in September and December will be his first MRI since not taking it and I have been so worried that the temodar was what was helping to keep the tumor away and…