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Oligodendroglioma II, recurrence after 2 and a half years
I'm looking for similar experiences or support with this. I posted this on another person's comment, but I don't think this is what she was looking for. And I am looking for something myself... I have a stage II Oligodendroglioma, and have 1p, 19q deletion. My tumour is on the left-frontal lobe, right up against my motor…
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aphasia
Last September, my mother began to show symptoms of aphasia. It was from this that the doctors discovered that she had brain cancer, which was later found to be GBM 4. The aphasia first manifested itself in loss of vocabulary and saying the wrong words sometimes. But it has gotten worse, to the point that she seems to be…
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Leg Pain...any suggestions?
Hi! I was diagnosed with Medullablastoma in October of 2010 and I am currently going thru treatment. I am 26 years old. I have done 30 sessions of radiation and have completed 2 of the 6 rounds of chemotherapy. I have been trying to deal with severe leg pain for the past 3 months. They think it is neuropathy, but cannot…
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Brain cancer cure
Hello Anyone tried hemp oil to cure their cancer as stated in these videos: http://www.youtube.com/watch?v=99Wwlv3ejCI http://www.youtube.com/watch?v=dSXhwP5QjUQ&NR=1 a lot of research on THC suggests cure. Thank you. Kishi
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GBM - My Dad, my Hero
My Dad was diagnosed with inoperable Stage 4 GBM nearly 8 weeks ago. Symptoms began with him becoming forgetful, short term memory only. He left for the hardware store and forgot where he was going and what he was doing. Primary doctor did an immediate scan to reveal a large brain tumor, 3" x 2" inches. Dad is a previous…
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AT/RT
My 1yr old daughter has recently been diagnosed with a rare brain tumor. She had the tumor removed but now we're looking for further treatment for her as we don't want to see her going through chemo. If anyone has any information on alternative medicine please, please write back.
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GBM grade 4
I am a 34 year old woman who was diagnosed with GBM 4 in March. Apparently I have the tumor in a few places. They got the big one. I am currently undergoing radiation and chemo. I was fine the first 4 hours after my first radiation appt (2 weeks ago) and then.... I dont know what happened. I didnt remember anybodys name…
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son
My son Brian had brain cancer in 1983.Oct it was determined he had stage 4,he lived 6 weeks,he had a treah no talking on his part.You must ask your family member questions if they cant talk to raise their hand or leg ,for instance he was acting like he was in pain.I said Brian if your in pain lift up your left hand,he did…
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More whole brain experiences wanted
Hi everybody, my 72 year old father has thyroid ca that has mets'd to his brain. He had a single lesion in an inoperable location. We got several opinions and went with the general consensus to do whole brain (15 over 3 weeks) than SRS. It appears that the tumor was 'killed' but he is having horrible side effecgts from the…
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DCA
Hi again everyone, I stumbled upon this online and wondering what you guys think - http://www.thedcasite.com/dca_how_it_works.html http://www.medicorcancer.com/dca-therapy.html There's not talked about this DCA therapy, although it sounds promising.
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Avastin with or without CPT-11/Camptosar/Irinotecan and MSKCC?
Hi everyone, I am new here, and writing in regards to my mother who is a non-small cell lung cancer survivor (currently 53 yrs old) of 7 1/2 years, who, unfortunately, is battling with metastasized brain cancer at this point. She was first diagnosed with 2 mets in Feb 2006, and went through a round of WBR, and a long…
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GBM IV in my daughter 5 years old
My daughter 5 yrs old was found to have Supratentorial Glioma in the CT scan. She was operated with complete removal of the tumor last week. The histopath report shows Glioblastoma GBM IV. The doctors are reviewing the reports and would shortly call us for the suitable treatment. Would request inputs from members... Tnks…
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Problem of No Taste
Hi Everyone - My husband, Jerry had 12 hour brain surgery where they got ALL the tumor. However, due to it being Cancer and some stray cells he underwent 33 radiation treatments. Now he is in the recovery period after all the radiation and his biggest problem right now is NO TASTE and NAUSEA. He has 3 different meds to…
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GBM IV with new growth at 15 months
Hello My dad was diagnosed in Dec. 2009 and followed what seems to be the standard protocol; surgery, radiation and temodar. Things had been going well until this week. His MRI shows signs of new growth. So I am wondering what this means. The doc's just keep telling us that the original diagnosis still remains (12- 18…
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CCNU for GBM
My hubby, whose GBM was only in the optic chiasm and thus caused blindness, now has two new areas of GBM tumors - corpus callosum and near the basal ganglia. He had Temodar in '09/'10 for the three inoperable AA tumors, which still mind you look great. His Duke doctor is trying him on CCNU, but she's advised the prognosis…
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stage 4 glioblastoma multiforme
My mother in law was recently diagnosed with a brain tumor. in November of 2010 she had a stroke and was paralyzed on her right side...she went thru therapy and was doing better until the last month we took her back to the doctor because we felt there was something else wrong and they diagnosed the brain tumor. After…
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cyberknife after whole brain radiatio
I need some information on side effects of cyberknife after whole brain radiation. I'm hearing that there could be somepretty bad swelling. Can anyone give me more information?
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Brain, Liver, Colon, Lung, and Adrenal gland Melanoma
My husand has been diagnosed with brain, liver, lung, colon,& right adrenal gland melanoma cancer. They have said 6-8 weeks to survive if treatment didnt work and only maybe 6 months if it does. We are Christians and believe in miracles. It all started from a mole on his back. He had it removed in 2007 and a few lymph…
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GBM grade IV and Keppra
In October 2006 I had a brain seizure and passed out. After a series of medical tests I was told I had a brain tumor. Within days I had brain surgery. The pathology report indicated that I had a malignant grade IV glioblastoma multiforme. (I asked for a second opinion – and it mirrored the first analysis.) A week after the…