Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Brain Cancer

Archives for August 2010

Glioblastoma Stage IV
Hi Friends... I've just joined today so am new to this forum. I've read about half of the comments here under Brain Cancer and am both saddened that so many are suffering, and encouraged to hear survivor stories. I was diagnosed with Stage IV Glioblastoma on July 19, 2010 after several days of throwing up and migraines.…
Germinoma brain tumor survivor Question
I was diagnosed with a brain tumor at seventeen years old. I am thirty seven now. The tumor was erradicated with radiation and chemo. My doctors said the tumor could never return. Does anyone know what this prognosis could be based on? Can germinoa brain tumors appear twice in a person's life. What are the statistics for…
Pleomorphic Xanthoasytrocytoma (aka PXA)
Hi again, I cannot believe I have not had any posts on (Pleomorphic Xanthoasytrocytoma) PXA tumors, but on the other had it is a "rare" type. Please if you know of anyone dealing with or had dealt with this type of tumor please reply. Thank you, Sunshine123
Long Term effects after anaplastic astrocytoma
I was wondering if anyone has any experience with the long term effects of radiation after the diagnosis of a grade 3 anaplastic astrocytoma? My husband was diagnosed in March of 1989 and went thru 2 craniotomies, chemo(BCNU)(didn't work), whole head radiation, and radiation implants. He was originally given 6 months but…
GBM-low hemoglobin & very high ferritin..inoperable-temodar-radiation-dvt-coumadin....now ?
My Mom keeps hitting these road bumps & now she has had her HGB drop since starting on coumadin on 7/22 b/c of a DVT. She started her Temodar & radiation July 13 & b/c of platelets dropping they put Temodar on hold 8/9 resumed for 1 week. On 8/16 when they saw how much her HGB & RBC’s were dropping they held the Temodar…
My husband passed away
My husband passed away July 31. It was so fast. He never lost hope.............I missed him every second............. But he is not suffering anymore. Our oncologist told us there is not reason to continue chemo. It is not working and 2 weeks later. He passed away. I thought we had more time to enjoy. I took days off in my…
Malignant Melanoma Now in Brain and Liver
Hello and thanks for reading.. If you're reading my message than maybe like me..you have a loved one who is ill or is sick yourself..i'm sorry for your pain and I hope you or your member heals as fast and painless as possible... Dr's found Melanoma on the back of my mom's left arm about 7 years ago..it was removed and…
I feel like I am not getting any answers
I was diagnosed with grade 2 glioma of the optic nerve in 5/2010. They aren't able to remove the tumor so i had 31 treatments of radiation and 48 days of oral chemotherapy. I am to start the oral chemotherapy again for 6 months. I had an appointment with my chemo. doctor yesterday who tells me that i am still unable to…
I have not read the entire article but thought I would share.
http://virtualtrials.com/williams.cfm http://www.phoenixnewtimes.com/2010-08-05/news/til-death-do-us-part-they-got-married-then-everything-changed/1/
glioblastoma IV...standard therapy...trials...or omeopatic?!
dears, my name is Luca Angelucci and im writing from italy,Rome exactly. recently,a GBM has been found in my mother's brain.. too big and vascolarized to make a surgery.. after 2 weeks under control in a hospital, she was sent home, waiting to start the therapy without the possibility to have a surgery or a biopsy before.…
Next step for GBM?
My DH was DX'd with GBM in March- he had surgery (removed 80%), then radiation and Temodar with one maintenance dose of Temodar when an MRI showed signs of growth- so we switched to CPT-11 and Avastin. He's had 4 doses of that, and will have 2 more- then the Oncologist wants to review the MRI's again and meet- to decide if…
Glioblastoma
As i am so blessed this week to celebrate another birthday with my mom i thought i should post her story to give encouragement. When she was first diagnosed i really held onto encouraging stories for hope. On 9/11/08 she had surgery on the right side of her brain to remove the tumor at the University of Pittsburgh…
need to help my little brother.....
My thirty year old brother just had a malignant tumor removed five days ago. Preliminary results point to medulla blastoma. I feel utterly helpless, everything on the net insinuates nothing but doom and gloom. What can I do to support him and my my mother physically and emotionally. What can we expect? Any positive stories…
BRAIN STEM glioma FAST HELP PLEASSSSSSSSSSSSSSSSSSSSSSSSS
my little girl was diagnosed with a brain stem tumor in 8/2009 shes completed 6 weeks of radiation . and now she look like die any bady can tell me what can i dooooooo plzzzzzzzzzzzzzzzzzzzz

Brain Cancer

Discussion List