-
Avastin
Hi folks, It has been a while since my last visit to this site. My wife was diagnosed with Anaplastic Astrocytoma Grade 3 in 2006 - surgery, radiation and temodar. Surgery again in July 2009 followed by Temodar again. Since then she has only been getting worse. She now has a new tumor that is inoperable (too deep) and has…
-
Nausea *after* Temodar?
I'll be checking with my doctor on this this week, but I want to ask about others' experiences as well. I finished up a six-week round of daily Temodar and radiation within the past two weeks. Reportedly, 99% of my tumor (grade 3 anaplastic oligodendroglioma) is now gone! (I know they grow back, but having it mostly gone…
-
wanting to know were to login to chatt about cancer?
its boe i like to talk with uall again can someone help me thanks,i have kemo and rad comeing up soon
-
seizure first day taking temodar
my dad had his first radiation treatment wednesday this week. he had a seizure on the way home! the radiologist on thursday wondered if it's because he didn't have enough Keppra in his system so she changed the dose and he did fine with the radiation on Friday. one of my questions is....is it normal that his hands shake so…
-
Any survivors of inoperable Anaplastic Astrocytom Grade III?
My Anaplastic Astrocytoma Grade III cannot be resected due to the location where it is, that makes me very depressed but the Drs here say they treat those tumors with Chemo and Radiation and people can live many years like that ( 5 + ) Still, Im scared and pass all day thinking and praying that my tumor could be resected…
-
Regrowth of GBM Four Weeks After Chemo/Radiation
My mom's doctors confirmed late last night that my mom's tumor shows a regrowth. Only four weeks have passed since she finished treatment. Because the brain is still swollen, the doctors are unable to say with great confidence how big the new tumor growth is. (Her original post-treatment MRI was not scheduled until the…
-
Dilantin - does anyone have intermittent wild swings in their blood counts?
Every 12 months or so, my dilantin level - which normally sits within the therapeutic range suddenly soars to toxic levels (24 - 25), for no apparent reason. After the most recurrence of this phenomenon, my neurologist dropped my Dilantin dosage from (400mg daily x 7) to(400mg daily x 4 + 300mg daily x 3). Within 3 weeks…
-
Does anyone know?? The experts sure don't
My wife has meningeal carcinomatosis, cancer in the cerebral spinal fluid that has not so far attatched in the brain. She has chemo through her omayrra resevoir in her head. She has frequent and severe headaches. Her oncologist said the headaches should be lessening and by this time gone due to chemo. He said the cancer…
-
Seizures After Brain Tumor Removal
A very good friend of mine was diagnosed with a brain tumor a few years ago. He was initially classified as Inoperable. Six month MRIs showed little or no grow, however, he began getting horrible headaches and found a surgeon in San Francisco (he's in Chicago). He had the surgery and the surgeons reported that 70% of the…
-
Anyone have problems with absence seizures with grade II Astrocytoma?
Hi Everyone! Well, I've been having some issues and thought I'd see if anyone else has had anything similiar....To make a long story short, I have a grade II Astrocytoma in my left temporal lobe. Had a partial resection in August 2009, stereotactic radiosurgery in December. No chemo or anything else. I recovered really…
-
Temodar anyone?
Hi Im on temodar 280mg 5 days on 23 days off. I took the last dose 3 days ago but still feel very yucky. When does this get better? What patterns have you noticed with your cycles? I plan to be on this for 2 years so looking to get a better grip of what Im up against. My neuro pain in my leg is much worse also? Thanks
-
Brain
My name is Carlos I reside in San francisco California and my father of te age of 62 was diagnosed with a grade IV tumor in his head. He has gone thru 2 surgeries plus 2 more surgeries for just infection in his wound. He's also gone thru chemos and radiation , unfortunately they did a scan on his head to see wether the…
-
Just got diagnosed with Anaplastic Astrocytoma Grade III
Hi, my name is delia, and I just got diagnosed with an Anaplastic Astrocytoma Grade III, after more than 2 weeks and the neurosurgeons were trying to figure our what type my tumor was, they thought it was a Lymphoma, but ended up being an Anaplastic Astrocytoma Grade III. They did the biopsy, and more than likely my tumor…
-
Now Dad has a nasty Staph infection
my dad was diagnosed in mid april with lung cancer with 3 mets to the brain. the spot on his lung could not be biopsied because of the close proximity to his heart. he had to go back to the hospital last week because his incision started leaking spinal fluid. they repaired it and now he has a nasty staph infection. i have…
-
unusual lession/tumor
Thank you to anyone reading this. I have a 2.6cm mass growth on my right thalamas for the last 2.5 years. The neurosurgeon thought it was a low grade glioma and scheduled me for surgery. When he got to the site he could not see any tumor. Biopsy was taken in 3 places according to mapping software and instant path came back…
-
anyone have problems/infections/headaches with ommayra resevoir?
My wife had an ommayra resevoir put in for chemo. On the same day she had a med port put in internal jugular. For 2 days in ICU she had severe headaches and vomiting. Turns out she has a staff infection (not mrsa) in her IJ med port which was removed. 2 weeks after the Ommayra resevoir was put in her headaches are…
-
mom's bleeding due to critical lab results..this is so frustrating.!!
my mom was bleeding vaginally a few days ago..took her to er and they said it was just vaginitis and sent her home...i didnt believe thats what it was..i told them 3 times to check her blood counts..they wouldnt do it....then i find out today that the most recent lab results she just had were critical...they asked me if…
-
Are headaches after treatment for GBM normal?
My mom finished treatment with flying colors. Her only side-effect (some hearing loss) is beginning to resolve. Things were looking up, until her headaches returned a few days ago. And, the headaches are in the same place they were when she began having symptoms of GBM. Also, before she started radio/chemo and six weeks…
-
why is my mom having a period after having a hysterectomy 30 years ago? Does brain cancer cause this
today my mom had a period...she had a full hysterectomy 30 years ago she hasnt had a period since....today she had something that looks like a period and smells like it....anyone experienced this with brain cancer? could it be the temodar..she also started taking procrit for her red blood cells...wondering if that causes…