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Information please
In 2007 my boyfriend found out he had a brain tumor. I'm not sure the type, it was removed with surgery and he went through chemo and radiation. It was gone. We recently found out it was back. I didn't know him the first time around. I met him right after his surgery and then again a year later-when we fell in love. We…
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"love and affection"
My husband (mid 30's) was recently diagnosed with GBM-4 about 1mth ago. He has already undergone a crainiotomy and is on rad treatment w/ temodar. Life has changed for us in a blink of an eye. Our marriage has always been good, we were very into eachother sexually and emotionally. He went from being extremely active and…
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Temodar
Hi. My friend's mother is being treated with Temodar for brain cancer. They got her nausea and vomiting under control, but now she's very, very tired. I know that is to be expected, but listed in the side effects it says, tired, nausea, constipations........ and please call your doctor for unusual drowsiness. She seems to…
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Astrocytoma, Anger and Other Health Issues
Since 1975, my husband had Type 1 Diabetes. October of 2008, we discovered he needed a transplant and after being on the transplant list for only two weeks, he received a simultaneous kidney/pancreas transplant on Christmas day 2008. Less than six weeks later, during a routine physical his primary care doctor discovered an…
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Long term brain tummor survivor
Hello everyone I have not been on this site for a while but back to tell you what I have been doing. Well I do not work and have social security disability and my big hobby is photography and I do alot of senic and nature photography but like to photograph anything. I had a brain tummor removed at Childrens Hospital of…
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(constipation)
The 800 pound gorilla in our living room is not my brain cancer. The tumor only weighed a few ounces. No,... the 800 pounder is CONSTIPATION. I'm on the 5/23 protocol for Temodar, starting ever fourth Monday, and my bowels won't budge until next Wednesday. Any remedies that work? By the way, do you know what you get when…
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hollow tumor after radiation
Friend of mine recieved 3d comformity radiation, temador for 6 weeks afterwards his tumor was the same size but the inside of the tumor was empty. Does this happen often? Does it still push on the brain? How hard is the outside of a tumor? Any one have any answers lol
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GBM4
I have had GBM4 for 14 months now. I had surgery (1/13/09) to debulk, then 6 weeks radiation and have been on Temodar ever since. Just lately I started getting some pretty bad dizzy spells. Dr. really not sure whats going on, I had an MRI scheduled for 4/22/10 but the Dr. moved it up one month to see if something has…
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relay for life
I had a brain tumor when I was 14. Now I am 18 and in college. I was asked to do the survivor ceremony for relay but none of my college friends know that I had cancer. I tend to keep this to myself, and my other friends from camp and stuff have no problem sharing and post it on their facebook. Why is it so hard for me to…
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Pnet "peanut" brain/spinal cancer
Wednesday, January 17, 2010 (just incase the date isn't with the post) Our 31 year young daughter has just had a large tumor removed from her left front lobe. We're told it was about 20% of the size of her brain. The cells have still not been identified but they are called primitive. This cancer is rare in adults, and also…
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Grade III: Anaplastic Oligodendroglioma lifespan?
My 26 year old son was diagnosed with an anaplastic oligodendroglioma in May of 2009. He had a craniotomy and they felt like they got all of the visible tumor out. He then had 6 weeks of radiation along with 6 weeks of Temodar. Now he's doing the 5 days of Temodar/23 days off, indefinitely. Except for nausea etc while on…
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Need some direction
My dad is 75 years old and was dx with lung cancer over 5 years ago. Long story short...he was doing good after he had part of his lung removed. A few years later the lung cancer returned, but treatable, and it has not grown much since his dx. A few months ago he was dx with a brain tumor, and had the surgery to remove it.…
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Glioblastoma
How come any cancer can be detected on early stage? my brother 49m, was diagnosis with glioblastoma in December, after 2 strokes, one on July 2009 and on sep 2009, on the second stroke he was diagnosis with seizure, he was released from the hospital with medication for seizure, according his dr stroke was caused by AFIB,…
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Glioblastoma grade IV
My husband is 45 years old and on September 18 was diagnosed with glioblastoma grade IV brain cancer. He has 2 tumors that are both inoperable, confirmed by several doctors. He has had the standard treatment of 7 weeks chemo plus temodar and is now on his 3 round of maintenance temodar (300 mg 5 days on 23 off). He is also…
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been diagnosed with inoperable brain cancer
My breast cancer mastetized to my brain, I have three tumors and one is in the Pons section and I would like to know what to expect from here on out. I had a mini stroke so my balance is off but i've noticed more unbalance, once in awhile double vision but that can be cleared with Visine Tears. Anyone going through this…
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melanoma
My brother 41 years old just told he had melanoma. Its start on his back seven month ago. He had removed it and it came back. He told Dr.dont send it in for testing didn’t have the money. Time went on and he started to get head pain. They said had mass on back left side of brain as big as the left side. They had brain…
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Fast recovery from AA3--Miracle or Mistake?
Ladies and gentlemen I could really use your expert advice. I want so much to believe this is real but it seems so bizarre I'm afraid to fully embrace it. In March 2009 my kid sister was diagnosed with Anaplastic Astrocytoma 3. They surgically removed a tumor that was an inch in diameter. There was still an inoperable…
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Am I the only one on the planet?
I was diagnosed with a oligodendroglioma level 2 in April of 2006. Had the infamous "awake craniomoty". The surgery was very successful in removing over 95% of the tumor in my right side frontal lobe. After 10 weeks I was able to return to work. Did not have any other treatment at that time. This January, I had to have a…
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Ladies out there dealing with hair loss
Okay, I realize that in the grand scheme of things, hair loss from radiation is not really that big of a deal - but now that radiation is over (ended mid-September 09) and I'm on the Temodar cycles, I am seeing NO real re-growth! It's frustrating. With a limited life expectancy at this point, I really am trying to enjoy my…
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Weekend Plans Anyone?
For the third time this winter, we are having a Friday night/Saturday horror show. What I mean is another blizzard!!! I know Sherri and Mimivac both live in my vicinity, so are expecting the same snow I am. I plan to run to the grocery tonight on my way home from work, leave work tomorrow as soon as the first snowflake…