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what now?
hello, I am here because my beloved cousin has stage 4 colon cancer. He lives in Maine and is Dr set it up for him to go to MD Anderson, Richard and his family made the trip to be told this!: At MD Anderson we learned that the clinical trials they have for which Richard might fit criteria for all have waiting lists. I am…
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Low blood counts
This is my third week of treatment, and so far it seems like everything that can go wrong is going wrong. Last week I started having anal leakage and I was mortified because I certainly didn't expect it only a week and a half into treatment. Maybe TMI here, but the consistency was like pudding and I never even felt it. I…
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What should I expect next
tomorrow I start my second round of chemo and 5 week of radiation. My doctors keep telling me thing are going to get worse but when I ask them what side effects am I going to get, they say more of the same. Well gee, that rally doesn't help me prepare. So can you help me understand what "worse" means and the time line? I…
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Biopsy 2 weeks ago
My moms biopsy was 2 weeks ago and she's still so sore, she had no pain, drainage, bleeding or anything before the biopsy and has been miserable since with drainage and pain. Tumor is said to be 2 cm
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Anal Cancer - Loose BM's
I am 1 1/2 years post treatment for stage 2 anal cancer. I am looking for advice/suggestions on how to deal with loose BM's - or if anyone has experienced this problem. I can be completely fine, but then will have a day or two where my BM's is somewhat loose, but more important, constant throughout the day. Not diarrhea.…
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Post-treatment pain with BMs
Hello all! I hope everyone is having a nice weekend so far! I am only two weeks out of treatment, and am having pretty bad pain with my BMs. My doctor said this was pretty normal, but I thought I'd bring the question here because you've all actually been through or are going through this. My body tends to constipate…
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shortness of breath
Hi everyone, hope everyone is doing well, I'm writting today because I have been experiencing shortness of breath, and I dont know if it is one of those long term effects from the chemo or what, I seem to recall from later posts that I read there were a few of you who were experiencing this also, I am quite curious to know…
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PAP and HPV test (new hpv test)
For follow-up, are we supposed to be getting annual Pap smears, as well as the new HpV test? Even if we knew we initially had a negative pap, but positive for HPV and/or our tumour was HPV positive. It would not have made a difference in terms of treatment; however, I seem to recall that we should continue having gyn exams…
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Post Treatment Pain
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Diet
I am six years out and still cannot get my diet under control. i am gluten free due to my ataxia. i cannot eat salad or raw vegetables or any vegetable that is not cooked to death. I cannot have pasta, bread or rice. i have been living on chicken, salmon and over cooked broccoli and nuts (I grind them up to a paste) for 6…
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Treatment Begins
Today I begin treatment. I'm nervous, but mostly I just want to get started and get through it. I've had breakfast and Xeloda and the anti-nausea med and it's not even 7:00 yet. The time change is messing with me too. I go for Chemo at 10:30 and radiation at 2:00. When I went for radiation planning, they put four stickers…
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Tired of Spammers
I am getting quite frustrated with this site. It seems that once again we are getting spammers and new members who claim to have all the answers when it comes to anal cancer who do not indicate that they have actually had or do have anal cancer. For anyone new coming into this group, please know that there are very many…
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Successful treatment with recurrence anyone?
Just wanted to hear from anyone who had recurrence, what was tre and outcome?
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Initial diagnosis: stage 4 anal cancer, anyone else?
Hello, I'm new to this network. My cancer is very rare, only 1 - 2% of all gastroenterological cancers. I was diagnosed in November 2016 and told my cancer was contained. However, my PET scan in December, revealed mets in the liver and the lung, putting me at stage 4. One year after a clean colonoscopy, I experienced some…
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Medicare & cancer drugs
https://www.medicare.gov/coverage/prescription-drugs-outpatient.html Oral cancer drugs: Medicare helps pay for some oral cancer drugs you take by mouth if the same drug is available in injectable form or is a prodrug of the injectable drug. A prodrug is an oral form of a drug that when ingested breaks down into the same…
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Need some reassurance
My mom was diagnosed with stage 2 Anal cancer in January of 2015 and treated with chemo and radiation. she's been ned since June 2015. She went for a checkup last week and her radiologist was concerned about a spot im the same area,but said could be scar tissue and told her to follow up with her surgeon. She did and he…
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chemocare.com
chemocare.com is an excellent site from the Cleveland Clinic. In addition to information on various chemo drugs, there is also a toll free number to speak with a nurse! Have questions about chemotherapy? Call the Cancer Answer Line at Cleveland Clinic 1.844.268.3901
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Preventive tips for burns?
Hello, i just started treatment last week. Do you have any recommended tips/creams to prevent burns? Thank you! Dominique
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Need help translating into lay terms
Hi folks. I completed all the testing last week. PET scan, CT scan, Pelvic MRI and another blood test. I saw the medical oncologist for the first time and the radiologist for the second time for planning. I'm tentatively expecting to begin treatment on Monday, March 13th. First the good news. No nodes involved and it's…
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How quickly did you get radiation burns?
I started radiation last Wednesday so have had three treatments. Today the radiation burns are bad enough that I have second thoughts anytime I have to touch the area. The area looks like raw meat and it looks like very rare meat. From everything I have read, this sounds w-a-y early. if it is this bad in just a couple of…
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Important Information
I don't know how to attach a pdf to this site, but perhaps you will be able to access this article from Medscape Oncology 'Important Milestone' in Anal Cancer -- Later Assessment Roxanne Nelson, BSN, RN February 28, 2017 http://www.medscape.com/viewarticle/876387#vp_2 It is a further confirmation that it may take as long…
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I completed treatment today!
Hello all! I completed treatment today, woohoo! That was the longest 7 weeks of my life so far, but I made it! I am anxious about waiting 6 weeks for a DRE/biopsy to make sure the cancer is gone, but I am seeing a therapist to try to learn to cope with that. I am so grateful to any/all of the people here who have helped me…
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MORE questions
I've been reading the report of the surgery I had on 2/2/17, and one of the items listed is as follows: Destruction of lesion(s), anus (eg, condyloma, papilloma, molluscum contagiosum, herpetic vesicle), simple; surgical excision When I asked the surgeon if it was HPV, she said she saw no indication of that, and after…