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Should I be so tired already?
Hi everyone. My question today is: Should I be so tired already? I started chemo on Monday and Radiation on Tuesday of this week. I get up at 4:30 each morning and drive 35 miles to work. I have my tx at 1:00 in the afternoon and I have to drive 40 miles round trip for that. Get back to work and then drive back home again.…
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Follow up PET scan
Question for you all: I am now 5 months NED and my schedule for follow up is every 3 months scope with the surgeon. No more PET scan necessary so they say. Should I push for one after 12 months? My alternative doc told me that chances of it reoccuring at the anal area are slim to none since they radiated it. However, if…
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scope CLEAN!!!!!!
GOOD NEWS. My 5 months scope came back clean... NED! So happy I could hug the whole world but especially all of you. I decided to start something I have not done before each time I get good news. My friends call it midlife crises... I call it happy to be alive. Now, I am going to learn how to ride a motorcycle... who is…
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life expectancy
what are the chances of surviving 25 years after successfull treatment. every where i look and everyone i speak to who has been through this seems incredibly brave but nobody talks about life expectancy.
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already
my tail is sore. I bought the aquaphor but doesnt seem to help. I thought my Dr. was going to call me today but hasnt so far. I guess I will tell them tonight at treatment.
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Troops!! Need your help
Hi Everyone Tomorrow I start chemo at 1:30 PM. I will be given Mitomycin and 5-FU. My Doctor said the Mitomycin would take about 30 minutes to go in and the the 5-FU will start and I will continue to receive it through a pump that I will carry with me for 4 days. My questions is: What should I expect? Will I notice…
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giving it up
I'm done y'all. now they want to start trestments all over. I can' do it. Good luck to you all, Melodie
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4 years bleeding before diagnosis
4 years of bleeding before diagnosis what the chance of survival hi i just been diagnosed. feel like i been hit with a brick anybody out there had long term bleeding before they got the cancer treated. stupidly thought it was piles
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Picc Line In - Sore-Pain-Help?
Good Morning Everyone I received my picc line yesterday and ........they said I would not feel anything after it was in.WRONG It hurt going in. Dr said my veins were small so he had to go with the large vein, I do not remember the name, that runs all the way down to my hand. I had tingling and twiching in my wrist and…
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Tattooed and Ported
Hi = just posting to complain I got my port today and feel like I got shot in the shoulder. I was very irritable last night. Tried hard to be upbeat but I just confessed to everyone around me, especially my dear husband, "please forgive me as I know I am irritable." So I guess I am still a little irritable and tired. Also,…
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scope coming up monday
My 6 months scope coming up Monday. Please send some good energy into the universe. So far my pet and scope were clean. I will let you know how things go. Lots of love to all of you!
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PET Scan considered clean
Got the results of my PET today. There were some areas in my abdominal area that showed some activity, along with some uptake in the anal area consistent with PET from Dec '10 and previous post treatment PETs. They considered both consistent with radiation inflammation. My left lung is really scarred up from the radiation…
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New Memeber on the Block
My world changed on June 7th 2011. Things have been moving pretty fast. June 3 colonscopy June 7 Anal Cancer June 10 CT/Pet Scan June 14 Meeting with my two wonderful doctors and results of PET scan June 16 Lymph Node biopsy in my right groin June 21 Results are great - node is clear - I get my tat's and I am simulated to…
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Doctors just love looking at my butt . . .
and I don't mind at all! I go back to Scott & White again on Friday. My radiation oncologist prefers to see me every month and a half for the first year. My surgeon oncologist wants to see me every three months and then my general medical oncologist has me on a six month appointment schedule. I'm not feeling ignored,…
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PET Scan
PET scan tomorrow morning with results on Wednesday. I am trying not to get to anxious about the scan, easier said than done, as you all know. The steroids seem to be helping with the radiation pnuemonitis. I am feeling some improvement, but it is slow. My face is as round as a moon and I cannot get enough to eat!!!…
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SOMEONE PLEASE ANSWER MY POST, RE: PLEASE HELP ME, ANAL CANCER SURVIVOR CT RESULTS
note: I had made a previous post...reading, Please help me, anal cancer survivor ct results PLEASE HELP ME, CAN YOU READ MY POSTS Can someone other than the 1 poster who responded to my post, also answer my post, with similiar experience or any ideas, opinions. I am so very scared. Those women of you who didnt have a…
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HELP ME PLEASE, ANAL SURVIVOR, CT SCAN RESULTS
PLEASE SOMEONE HELP ME.....PLEASE HELP ME.......I AM SO SO VERY SCARED. Hello, My name is Nina, I have visited the boards in the way past. I am a 2x cancer survivor, of 9 yr breast and 6 yr anal cancer, neither were related. I am 50. I have other health issues and disabled housebound. Here is the recent activity with my…
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Losing it
Hey Y'all...has anyone ever gotten to the point I am at I am 8 months post tx and tonite I finally lost it. I totally understand that it,s hot out &nmy husband works hard, but do I need to be his scapegoat for the **** he goes thru at work? I'm going to apologize for any language I use, but I have f....... had it! At least…
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new here
Hello everyone. My name is Suzy diagnosed with stage 11 anal cancer no spreading on May 6th. Will start six weeks of radiation and chemo starting Monday. Got my tats today. I have been lurking and just thought it was time to tell you all hello. Any advice appreciated. Sorry I dont know the abbreviations on things.
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No Ovarian Cancer = June 15th surgery over
I had a genius surgeon who pulled multiple tumors out with my ovaries and fallopian tubes (I lost uterus to cervical cancer in 1976). Well much to his surprise, I think since he had take out lymph nodes in the surgery plan, no cancer in my ovaries! Whoo hoooo!So he left those lymph nodes right where they belonged. Now I…
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A good check-up
Hi, everyone. Just wanted to say that my scans showed all clear, so now I am 15 months clear since treatments. I have my next scan in 4 months. Today's doctor's appt was about the worst as far as waiting for results. Does it get any easier as time goes on? I think I get more nervous the longer I am in remission. I know I…
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Follow up appointment
Just need some reassurance. I am now 5 months post treatment. PET scan was clear and scope showed completed healing. I have another scope scheduled for July. I am feeling something annoying in my anal area. It's that familiar feeling of having something there... I am wondering if I am just getting nervous... I am feeling…
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'Bridesmaids' the movie
Oh, my. The bride-squatting-in-the-street scene definitely hit a familiar chord. :) :) Not a movie for the easily offended, but a GREAT escape for everyone else. Funniest movie I've been to in chemo-brain memory!!!! (Rated R for foul language and sexual content.)
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Exercise
Hi All, Well I took it upon my self to start exercising, cuz I'm tired of waiting on my doc to set it up. I have decuded NOT to be an old woman at 50. So on Friday night I did 10, each leg, leg lifts. My joints still hurt, but I felt the muscle burn the next day. I can handle it...I know I'm not gonna stength in one time,…
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Ostomys - a subject seldom discussed
I cannot even fathom the idea of having an ostomy. Are there any survivors out there who are living with an ostomy? Is it standard procedure during surgery? If I could get some feedback perhaps some of my fears would be alleviated. I've not even seen any posts in regard to the subject. I take that back, I did see one when…
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Life Expectacy Less Than One Year
I have stage 4 anal cancer that has spread to the liver, lungs, and groin area. My oncologists give me less than a year to live. I have tried various chemo drugs to date, and my tumors, though small, are not reducing in size. I am surrounded by great friends and have a loving partner. Unfortunately, he lives in Europe, and…
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Checking In
Hi everyone. Well it has been an interesting 2 months. I finished radiation to my pleura at the end of March. It was ghastly and really knocked me to my knees. Rather than take the time to allow myself to regain my strength, I jumped in with both feet and resumed my regular activities about two weeks post treatment.…
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Howdy Folks:) Sue Relays Asked Me to Post My Results Here
I'm sorry to butt in your territory, folks. I got to know Sue when she visited the Colorectal Board - she's been a good friend and terrific supporter to me. And since she does not get over to our side very much anymore, she asked me if I would post my results over here so she could see them. I hope you don't mind. From…
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Is there a color now?
Not that this is the most important topic when dealing with anal cancer, but do we have a color that represents us now? I just participated in my first Relay for Life, where they were giving away 'colored' balloons to survivors. Clueless, I went with yellow because it represents sunshine. Pluh-eeeeeease don't tell me it's…
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first appointment
Hi, I finally had my first appointment and found out a lot about how little I understand doctor-speak. I had the ultrasound you must all have had. The doctor said the tumor was much smaller than the gastro doctor said it was - 3.5cm instead of "the size of a cigarette". That was such good news, I couldn't believe it at…