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Dr Battafarano at Hopkins
My bil saw Dr B at Hopkins yesterday and got a completed different opinion than University of Penn. Dr B does the open Ivor Lewis and claims to not have had an anastomosis leak since 2006. He claims that the neck incision requires that the surgeon pull the stomach up higher and the stomach is post radiation/ low blood…
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High grade neuroendocrine carcinoma
hi my mom has just been dignosed with high grade neuroendocrine carcinoma...every thing i have read is very scary... Can some one pls advise what to expect.
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high volume EC surgery hospitals
Hello I have a brother in law just diagnosed with Stage II N1 EC. We live between University of Pennsylvania and Johns Hopkins. I set up an appt with Hopkins for my BIL to see Dr Battafarano. Others suggested a thoracic surgeon at U Penn. Sloan Kettering is 2 1/2 hours away and he is not interested in going there for an…
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CarrieN~Here's my "personal" reply 2 your 8-19-17 ltr re EC recurrence now U R Stage IV!
Oh my dear Carrie ~ Your letter brings sighs of sorrow to my heart. We’ve talked in the past. However, I missed reading your post on June 2, this year, but I see that Ed and Paul both wrote to you. Although quite a few read that post but I had to go back and find when you had the esophagectomy. I knew that you wrote in…
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CarrieN~Specific links re chemo drugs in possible clinical trial treatments MDA mentioned
Hello again Carrie ~ In response to your last post - https://csn.cancer.org/comment/1593203#comment-1593203 You wrote: “Thank you - Thank you both for your support. I will stay positive and push my way through this. I don't have a choice!! MDA has recommended a clinical study that will have me in 1 of 3 groups. One group…
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Update - It was something
I had an open thoracotomy last Thursday where they removed a portion of my lung for biopsy. Unfortunately, the results show metastatic disease. I am now stage 4. The frustrating thing is that the nodules they tested are the ones that were there last November, so I have techinally been stage 4 all along. After my chemo and…
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New member, stage IV esophageal cancer
48 yr old male, retired military, current civilian government employee, father of 5, married 27 years, originally from upstate, New York but currently residing in Kentucky. Stage IV endocarcinoma Esophageal Cancer, lower section, clinical trial chemotherapy at Siteman Cancer center in ST Louis, Missouri. Hello warriors,…
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Post treatment, radiation scarring in esophagus - no idea what to do.
Hi there, everyone. I'm glad to have found this group - I have been muddling along with my dad's treatment for almost two years now and wish I had found this group sooner. I'm my dad's legal guardian as he has a brain injury that leaves him unable to understand and navigate complex situations. He has a caretaker who he…
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Julie~Basic things 2 expect AFTER an Esophagectomy-Initially DIET will B changed along w/permanent s
Well good evening Julie – First of all, this post is so lengthy, I’m going to put it on a separate post for 3 reasons. First because others will be answering you on your original post, https://csn.cancer.org/node/311322 -"What Should We Expect? " This letter is extremely lengthy. However, I think the information is…
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What Should We Expect?
Hello, everyone! My father was diagnosed with stage 3b esophageal adenocarcinoma of the GE junction in May of this year. He has had 28 radiation treatments and 5 rounds of carboplatin/paclitaxol, and just had an Ivor Lewis esophagectomy with gastric pull-up yesterday. He did so well with his neoadjuvant treatments, but he…
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Throat Cancer
Hello! My husband was diagnosed on March 24, 2016 with Stage 4 throat cancer. He received 7 chemo treatments and 35 radiation treatments. The cancer was gone but returned this year in February. We traveled to UAB to attempt laser surgery but the cancer was too close to the carotid artery. In April we traveled again to UAB…
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Just diagnosed w Stage 4 Esophageal Cancer-
Hi all, My partner has been diagnosed with Stage 4 Esophageal Cancer with small spots on the liver (2), some spread into to lymphnodes + some cardia. He is lucky in that he has Hers2 and can do herceptin. He has some difficulty swallowing but not much. He is not thrilled with the idea of chemo and is looking into a health…
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A break from chemo???
My Dad was diagnosed with stage 4 EC last year in Feb. When first diagnosed his health was really bad, the doctors all told us that he had weeks maybe months... He's superman! He said he wasn't ready to die and told the doctors he wanted to try chemo.. SO WE DID and I know that my daddy would be gone by now if it had not…